Mixed Connective Tissue Disease (MCTD)

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Mixed Connective Tissue Disease (MCTD)
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I’m new here!

Hi, my name is MoniCat. I've been diagnosed with SLE and Sjogrens. Possibly MCTD with dematamyositis after feeling like garbage for years. I have relief now that I finally know I’m not crazy but now I’m scared because I’m not crazy and there is something wrong with me. I need to connect to learn how to manage, what helps, what hurts, and find support.

#MightyTogether #Lupus

5 reactions 2 comments

Hi everyone I'm somewhat new here. I have Fibro and chronic fatigue syndrome plus a rare autoimmune dis MCTD dis plus osteoarthritis and osteoporosis and others.I love how this group is helpful and upbeat I need that just wanted to finally make intro.Lord Bless.❤

2 reactions

Symptoms Overload

Recently January 12 to be exact this year I was taken off 2.5mg dosage of Prednisone. I’ve been on a combination of 5mg and 2.5mg sense December 2021. I ran out and doctor took me off it in full .

I have had nothing but bad side effects from being taken off a steroid that I have been on for 1+. As of recent is a full blown rash like symptom covering my face.

Anyone else ? #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon

1 reaction

I’m new here!

Hi, my name is Jyl1960. I've been diagnosed with MCTD and Behçet’s

#MightyTogether #mixedconnectivetissuedisease(MCTD)

3 reactions 2 comments

I am so exhausted from being exhausted 🥱

Does anyone else ever get this way. I go to bed exhausted (mind you that’s me barely making it to 9pm every night) wake up by 7am (out the door by 7:30am to get to work) . I wake up exhausted. Drink caffeine to try and help the sluggishness and cut myself off way before noon.

I’m just so tired of feel exhausted and drained 24/7. It makes it hard to spend quality time with my family and significant other.

Any recommendations?!

#MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #Insomnia #Depression #Anxiety

49 reactions 13 comments

How do I navigate unlawful termination?

This was my 4th job I’ve been fired from since being diagnosed.
When I say diagnosed it’s not just my Mixed Connective tissue disease, I have bipolar disorder, PTSD, Fibromyalgia, anxiety disorder, and depression.
I had been sick a few times within 4 months and actually felt I was doing well adjusting to a sales line of work I had never done it before. I’m typically in administrative positions.
Continuing on; I had enough when my manager tried to make a joke about me wearing a dress one day and reported him. I was told he had been written up.
Since that day my performance was scrutinized repeatedly I was made fun of because I stopped using alcohol. - my flares were out of control.
I was told I wasn’t a team player but also since I didn’t volunteer to move hot tubs around I had lost “points in the game which my coworker had been winning” at the time. (I was unaware of a game)
Two days later I was terminated for “not following policies and procedures.”
I have tried contacting an attorney which I have been informed many times there’s a conflict of interest , the EEOC which the soonest appointment available is in mid May 2023.
I need help- I’m not married, I don’t have savings. Why was I the one let go?
#MixedConnectiveTissueDiseaseMCTD #PTSD #Fibromyalgia #AnxietyDisorder #BipolarDepression #BipolarDisorder