Trigeminal Neuralgia

Hi, my name is Crowdreamer. I've been diagnosed with

#MightyTogether #Anxiety #Depression #Fibromyalgia #ADHD #PTSD #AutismSpectrumDisorder #SjogrensSyndrome #TrigeminalNeuralgia

Hi, my name is BeTheLight406. I'm here because
I have been recently diagnosed with Trigeminal neuralgia (TN) still attempting to navigate what this means to my life!

Hi, my name is Mightymouse4. I'm here because

#MightyTogether #MultipleSclerosis #Fibromyalgia #Diabetes #Osteoporosis #TrigeminalNeuralgia #BellsPalsy #Anxiety #Depression

Hi, my name is Crosscountry2. I'm here because my husband has trigeminal neuralgia for 13 years. I was married fir 5 years before he got sick. He is in so much pain. This disease has completely ruined are life. I just retired and am not looking forward to this life of watching him suffer and watching everyone live life.

#MightyTogether

If you've ever felt a sudden, stabbing facial pain so intense it stops you in your tracks — you may already know the agony of Trigeminal Neuralgia (TN).

Often called the “suicide disease” due to its severity, TN is a chronic pain condition affecting the trigeminal nerve, which carries sensation from your face to your brain. Even light touch, a breeze, or brushing your teeth can trigger excruciating electric shock-like pain.

😞 Life with TN isn’t just painful — it’s unpredictable, exhausting, and isolating.

💡 So, where does PEMF come in?

PEMF (Pulsed Electromagnetic Field) therapy uses low-frequency electromagnetic waves to stimulate the body’s natural healing processes. While it's not a cure, PEMF has shown promise in:

✅ Reducing nerve pain and inflammation

✅ Supporting nerve regeneration

✅ Helping with sleep, mood, and stress — all of which can worsen TN flare-ups

✅ Improving blood circulation to affected areas

Some users report gentler, less frequent attacks and improved daily functioning after consistent use.

⚙️ How to use PEMF for Trigeminal Neuralgia:

Choose a device with adjustable intensity and frequency

Apply gently to the affected side of the face (always avoid direct eye contact area)

Use low frequency (2–10 Hz) sessions daily or as advised

Always consult your healthcare provider, especially if you have implants or are on medication

Trouble sleeping has kicked in yet again, and I know my worsening mental health isn’t helping, either. This September will be twenty years of my chronic migraines. Or, more so, the horrendous pain and symptoms that literally have never left my side.

A few months ago, I was diagnosed with trigeminal neuralgia. Additionally, I have fibromyalgia, depression, and anxiety. That said, I’m pretty dang certain I’m AudADHD and leaning towards POTS and/or hEDS.

But while these ailments continue to worsen and affect my ability to work greatly, I can’t get myself to address these “newer” thoughts and issues with my doctor. The feeling of being a burden on anyone runs far too deep, and I’m honestly unsure of what would be the right amount and timing of addressing things before becoming annoying or appearing to be drug-seeking or a hypochondriac.

Does anyone else struggle with bringing up new ideas or issues? The worst part is my PCP is amazing and I know she wouldn’t brush me off. But those inner beliefs and fears of burdening anyone is far too great.

I’m not necessarily looking for advice or anything. Just feeling very isolated right now and needed to get thoughts into writing. Perhaps maybe I’m not the only one who feels this way?

Course, the panic attack this afternoon certainly did not help any.

#Migraine #ChronicDailyHeadache #Fibromyalgia #MentalHealth #ADHD #Autism #ChronicPain #Depression

Hi, my name is willethandid. I'm here because

#MightyTogether #Anxiety #Depression #Migraine #PTSD #ADHD #Grief #TrigeminalNeuralgia

At this point, I encourage the reader to explore ‘The Mighty’ platform. It was created in 2014 by Mike Porath to support individuals with health conditions, such as chronic disabilities or mental health issues, by providing relevant resources, creating a safe space for communication, and encouraging them to share their personal narratives. I invite you to read the post by Dan Dillenback (2024), a caregiver to his young wife affected by trigeminal neuralgia, whose story supports the idea that narratives can provide a rich and detailed account of one’s experience:

'Am I a Good Husband or Bad Caregiver?' When You Become Care...

While reading this story, I came to understand Clandinin's (2023) idea that attending to an experience involves considering all three commonplaces: temporality, sociality, and place. Dan’s experience is in a temporal transition between the past, the present, and the future. Twelve years ago, he was scared and could not understand his wife’s perspective when she wanted to keep living life the same way as before her diagnosis. Now, he is in the midst of uncertainty, questioning whether he is making the right choices by defending his wife’s decision to pursue her regular activities despite the risks to her health. But at the same, he sees himself continuing to support this decision in the future, hopeful for a “joyful, fulfilling, and longer life together.” Looking at this story from a sociality commonplace allows us to view social and personal contexts shaping one’s experiences. Dan is both a husband and a caregiver to his wife; he is a dad for two school-age children, carrying out financial obligations for his family; he is experiencing guilt and hopefulness while trying to manage multiple responsibilities. The third commonplace—place—considers the physical context of experience. While readers do not know Dan’s geographical location, we can consider ‘The Mighty’ platform as a digital place for his experience. This digital place may be as impactful as a physical setting, showing that Dan is seeking support and information by turning to an online community of people with similar experiences.

From this brief analysis of Dan’s story, we can gather numerous details about the experience of caregivers for their spouses. Attending to all three commonplaces allows us to consider the various contexts impacting one’s story, providing a rich description. I have chosen ‘The Mighty’ platform because it contains many stories, drawings, and pictures, each telling a multi-faceted story of someone’s health-related experience. But the question remains: why would we use narratives in research?

#403 #words

Hi, my name is thelatinurbanauthor. I'm here because

#MightyTogether #TrigeminalNeuralgia