Hi, my name is InnerLioness. I'm here because I have been diagnosed with the following:
#MightyTogether #Migraine #Fibromyalgia Cervicogenic headaches, Trigeminal Neuralgia, Occipital Neuralgia, Small Nerve Fiber Neuropathy.
Chronic head and neck pain sucks. Neurologist tells me I have to live with Trigeminal Neuralgia pain that Oxcarbezapine hasn't taken away. Topamax doesn't work for my migraine prevention (not looking forward to THAT withdrawal again). P.S. - Topamax makes you lose words & feel stupid! Injections in back of my head for occipital neuralgia are painful and debilitating for days afterwards - with sometimes marginal results. But, the injections are better than nothing. I think the Cervicogenic headaches may make migraines, etc worse, but who knows! Physical therapy has not worked ( I have done at least 40 to 50 sessions). Last ER visit at least gave me some short-term relief; Imitrex, Dilaudid, and Norflex. I realized that I have to bend my neck slightly downward while eating to avoid onset of nausea, dry heaves, vertigo, neck pain and severe headache. I avoid loud noises, stress and bright lights as they are migraine triggers. It's been a BAD pain week for me; I try to be positive; count my blessings. Next neurologist appointment in 4 days - wish me luck!