Trigeminal Neuralgia

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I’m new here!

Hi, my name is msinthe806.
👩🏻‍🎨 Artist 🐈‍⬛ Rescue Cats 🤘 Punk and Ska 🧵 Sewing
📍Nor Cal📍Maui 📍Texas
#MightyTogether #TrigeminalNeuralgia #Anxiety #Depression #BipolarDisorder #Migraine #Fibromyalgia #PTSD #occipitalneuralgia

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I'm new here!

Hi, my name is InnerLioness. I'm here because I have been diagnosed with the following:

#MightyTogether #Migraine #Fibromyalgia Cervicogenic headaches, Trigeminal Neuralgia, Occipital Neuralgia, Small Nerve Fiber Neuropathy.

Chronic head and neck pain sucks. Neurologist tells me I have to live with Trigeminal Neuralgia pain that Oxcarbezapine hasn't taken away. Topamax doesn't work for my migraine prevention (not looking forward to THAT withdrawal again). P.S. - Topamax makes you lose words & feel stupid! Injections in back of my head for occipital neuralgia are painful and debilitating for days afterwards - with sometimes marginal results. But, the injections are better than nothing. I think the Cervicogenic headaches may make migraines, etc worse, but who knows! Physical therapy has not worked ( I have done at least 40 to 50 sessions). Last ER visit at least gave me some short-term relief; Imitrex, Dilaudid, and Norflex. I realized that I have to bend my neck slightly downward while eating to avoid onset of nausea, dry heaves, vertigo, neck pain and severe headache. I avoid loud noises, stress and bright lights as they are migraine triggers. It's been a BAD pain week for me; I try to be positive; count my blessings. Next neurologist appointment in 4 days - wish me luck!

6 reactions 2 comments

I’m new here!

Hi, my name is ShelbyBelle. My life completely changed when I was diagnosed with an illness that went undiagnosed for 10 years. Now I finally have an answer as to why I’m in so much pain and going blind, but adjusting after the diagnosis has been difficult.

#MightyTogether #IdiopathicIntracranialHypertension #OccipitalNeuralgia #TrigeminalNeuralgia #PTSD #Depression #Anxiety

12 reactions 3 comments

I'm new here!

Hi, my name is SpoonieSensei. I'm here because bringing awareness to the illnesses with which I fight and many others is crucial to me; awareness necessarily informs, and the the more patients, doctors, and others are informed the more research will be sought out and funded. I fight for every chronic illness warrior out there as well as for my many friends and acquaintances who have been taken by illness and a lack of awareness and information. I don’t want anyone suffering even like I have had to suffer and that motivates me every day!

#MightyTogether #Fibromyalgia #PTSD #RheumatoidArthritis #EatingDisorder #Behcet 'sDisease#CommonVariableImmuneDeficiency #TrigeminalNeuralgia

12 reactions 6 comments

I’m new here!

Hi, my name is aprilchelle. I'm here because I'm looking for a good resource to share with my clients. Hopeful this is a place of encouragement and support

#MightyTogether #TrigeminalNeuralgia #Fibromyalgia #ChronicIllness #CentralPainSyndrome

1 comment

When you attempt to put off blinking because your eye feels like it is getting poked with a paper clip #TrigeminalNeuralgia


I’m new here!

Hi, my name is Dgrif24. I'm here because
I was diagnosed with Trigeminal Neuralgia in.1997. I help take care of a sister with Alzheimer’s and is in a nursing home

4 reactions 3 comments

My battle today

Today I am fighting thoughts of being completely defeated.
I know from my past experiences that I will make it through, but today I am struggling to hold onto the truth of that.

I am grieving the fact that I was well for so long after my surgery. I want that pain free time to come back. I may have grieved liked this last before, but my meds have made me forget how it truly was. I have forgotten many months of my life because of them and I don't want to deal with that again. I just want to be well.

So today, my battle is all in my head, but I can only look forward to when I wake up tomorrow and have a new chance to see my life with this disease differently.



I’m new here!

Hi, my name is zargon20. I'm here because I need some people to connect with to support and get support from with my trigeminal neuralgia battle.