Trigeminal Neuralgia

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Lost the battle but not the war-I hope

I had to retire early due to my illness. I loved my job, it defined me. Couldn’t do it well anymore. Now I am home wondering what’s next and who am I now. Everyone is supportive but I feel terrible I have to pretend everyday that I feel great about it. #Depression #TrigeminalNeuralgia

8 reactions 7 comments

Tooth Removed and Having a flare

So I had a tooth removed a few days ago....I've been putting it off 'cause of my #TrigeminalNeuralgia issues that flare when I go to the dentist. And dang, I've put these issues off a while outta fear...I know that's bad. I'm a therapist and I know avoidance creates that stronger negative reinforcement cycle, but I also have chronic health issues like #SUNCTHeadache #Fibromyalgia and frankly Im terrified of the needles going near that nerve and the brutal reaction that will cause me to lose time taking care of kids, taking care of clients that I love and care about. And it makes me useless to everyone. Anywho I went and I did get it taken out and that was my win I did the right thing so it didn't infect anything. But dang doing the right thing, the healthy thing sucks I just had to say it.

7 reactions 1 comment

I’m new here!

Hi, my name is jonestra. I have Complex Regional pain syndrome, as well as 8 more chronic pain diseases. I hope to find others who have what I have . Fibromyalgia, Ankylosing Spondylitis, Psoriatic Arthritis, Trigeminal Neuralgia, Gastroparisis, Hypothyroidism, Cervical Dystonia, lymphedema, I hope to meet others with my diseases so I can learn more about each of them I have had Complex Regional pain syndrome for 23:years this June. I was healthy until getting this and now I live daily with something flaring.


5 reactions 1 comment

Painful Shocks in Eyes?

I’ve been experiencing painful shocks in my left eye along with pain around my eye socket. Sometimes the pain travels to my cheek and mouth. The left side of my eye saggs, face goes numb and throbs with pain that can be felt in the bone. I keep reading about trigeminal neuralgia but don’t see anything about the eye shocks. Does anyone experience this? #TrigeminalNeuralgia #Fibromyalgia #ComplexRegionalPainSyndrome #ChiariMalformation

7 reactions 11 comments

Amitriptyline Weirdness?

I have some odd things going on and I’m wondering if any of you wonderful #MightyTogether have had them happen too? I have #GeneralizedAnxietyDisorder , #Depression , #TrigeminalNeuralgia , and #Fibromyalgia . I had a terrible TN flare recently so we had to change up my meds a few weeks ago. I’m taking Amitriptyline (sp?) now. Mostly when it’s not quite time to take my meds yet, my arms get heavy, my fingers feel slow to move, major brain fog, and those aren’t even what I’m wondering about! Fun! 😂 Sometimes I feel like my stomach “drops”, like the feeling when you know something bad is about to happen, my vision gets weird, and I feel like I might pass out. Just me? I’m sure it’s the meds, but I don’t know if I should be concerned or not?

Sorry this was so long! Thanks in advance for any wisdom you might be able to offer! 🩵

20 reactions 19 comments
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It’s the kind of day where one pain runs into another. #Whiplash from a near miss, #TrigeminalNeuralgia and #Sarcoidosis #LupusPernio in my sinuses. Tea, rest, rX and lavender oil head massages.


Rough Week

Hi All. I haven’t been on in a week or so. It was a rough week, and I’d like to share. I thought I was misdiagnosed with #TrigeminalNeuralgia (after having #longcovid 2 yrs ago) instead of #Fibromyalgia . Turns out I have both. The more the merrier, right? Lol. I had an atrocious flare last week. Put me down HARD. I might write something about it, because that really seemed to help me recently. I’ll spare you all for now lol. Welcome back #TrigeminalNeuralgia . You were not missed. 😣

I hope you Mighties have been as pain free as possible, whatever your particular poison may be! ❤️

9 reactions 9 comments

Chronic Lyme and Trigeminal Neuralgia

I have been struggling with both neurological chronic Lyme and Trigeminal Neuralgia for almost 20 years. I was a very active person before running marathons and doing triathlons so my life has drastically changed although I do my very best to exercise most days. It helps with the physical pain and depression . I look fine to others except my family because they see how difficult it is for me to do most things . My problem is that I have close friends who either don’t care that I struggle , don’t realize how bad it is because I do my best to fake it or don’t believe me. I do tell them how difficult each day is. What do I do about this? Can I say something to them? Thanks and best to all. Wishing all a very healthy and happy new year.

7 reactions 4 comments
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Chronic Pain by Melanie R. #ChronicIllness #ChronicPain #RheumatoidArthritis #MitochondrialDisease #BackPain #MightyPoets #MightyMoment #TrigeminalNeuralgia

Chronic Pain

Through battles of despondency,
Rare chronic illness muckings.
Hear echoes of their laughing,
rub hands of their stalkings.

Stinging pain;
A spiritual world war.
Meant to divide and conquer,
those standing by the sword.

My burden of my symptoms,-
it’s tortuous attacks.
They’re one behind the other;
My light seen,

A ship in fog kept idled.
My engine just won’t start.
Reaching for my Bible-
as my body falls apart.

Can spirit separate from body?
to escape the suffering?
Crude hell of inflammation,
raging fire from within.

A rumbling embodiment;
endless lava burning–
proclastic hyperglow
emitted from my yearning.

Feel branded.
Hot pokers of this thorn,
attacking my body…
I lay here and I mourn.

Felt unclothed out in winter,
I shivered on my own.
I needed Him beside me,
to clothe me, bring me home!

A martyr full of valor,
burned alive for faith,
a yesteryear believer,
the blood runs through my veins.

Coursing and crying for justice in pain, Lamenting in writhing…
My tongue calls his name!

He heard me,
procured me,
Bottled my tears.
Filled me of healing,
replaced all my fears.

Cut open,
I’m slaying.
Filleting of flesh,
I share in His suffering,
soul-fired and blessed!

In cells of his captors
Paul sang of His songs,
The Word was his strength-
I sing all day long!

Have rhythm,
Give glory!
Mountains have moved!
My symphony of suffering,
sweet melody of truth!

#AutoimmuneImmunodeficiency #CheckInWithMe #InsideTheMighty #Bursitis #ComplexRegionalPainSyndrome #MightyTogether #BackPain #RheumatoidArthritis #MightyPoets #ChronicPain #MitochondrialDisease #Disability #Christians on the mighty

1 reaction

I’m new here!

Hi, my name is undialavez. I'm here because I need to find a tribe that understands the day to day struggle of this chronic illness

#MightyTogether #TrigeminalNeuralgia

5 reactions 3 comments