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Work from home helps people with chronic conditions

I wish my employer would understand truly how much it helps to work from home instead of seeing the hybrid policy of 3 days at home and 2 days in the office as minimal and pressuring me to come in more often. I work best from home for so many reasons not the least of which includes delayed sleep phase syndrome and chronic pain. I focus better at home without the distractions and noises of an office. When I am in the office to work, it is chaotic for me and I get less done and I feel physically stressed and it causes pain flares. I have an accommodation note from my doctor but I don't want to use it because then it can become contentious. Yes it is illegal to discriminate against someone because of a disability but it happens all the time and you still have to fight it. And I don't have the spoons or energy to do that. I need the job. I'm just very disappointed that work from home is still seen as not working as much when it's clearly the opposite for me. #workfromhome #remotework #SymptomManagement

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Advice on leaving job/career

I am two years into a fibro/CFS diagnosis which was ultimately caused by both physical trauma to my body from years of health issues and years of emotional trauma from growing up, placing daughter for adoption and my career, social work. I got COVID last year and still struggle with post-COVID symptoms-especially in my breathing and headaches. I have extreme arthritis as well. After working through trauma and getting to a place where I have more insight, I am seeing that I need a different job/career. One less intense. One with support. I need to heal more and cannot do so while doing the very thing that caused trauma. Any advise on changing careers? It would be beneficial to work from home bc I get sick whenever I leave my house and my anxiety is so strong right now. The world does not feel safe. #Fibromyalgia #ChronicPain #Trauma #ChronicFatigue #COVID19 #BrainFog #Anxiety #socialwork #Work #workfromhome #Arthritis


Wedding Planning, Migraines, and Brain Injuries - OHHH MY

HI y'all (yes, I am from Massachusetts and say y'all, haha) - my fiancé and I will have been together for #tenyears coming August 17th and we are getting married in October. We are so excited! I

I had brain surgery for intractable #Epilepsy when I was 17 years old, and he and I have been friends since I was 8 years old - so he has seen it all, and then some. Since we got together when I was 20 years old, I have sustained three concussions, one being in a major car accident in February - each causing my migraines to worsen. And each year, we have unraveled more layers of how my initial surgery impacted my mind and body. We have been through so much, surgeries for me and he has a detached retina that had an old suture come through - and we are *praying* we can find someone who can reattach it. SO, we have been through more than people I have met that have weathered thirty year marriages.

SO, our wedding is a BIG DEAL for us - however, it has become a disaster! Nobody seems to understand how draining it is to plan, chase down RSVPS (because half our guests didn't even get their invites), manage family opinions, and also look for a new job all at the same time. Did I mention my rock of a fiancé made sure he got a solid job so I could pursue my writing, and #workfromhome because I was in education and got #COVID19 twice? I am generally someone who can delegate well, but this is causing so much anxiety. Has anyone else had to set firm boundaries with family when wedding planning? I know weddings are stressful, but I didn't want it to be this way because of everything I have going on. Advice so welcome. Thank you!

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Working with fibromyalgia

So, I’m having a really bad day today. I have a part time job sewing table cloths 4-5 hours a day depending on how I feel, 5 days per week. This morning I had to call in to tell them I was coming in one hour later bc I needed more sleep.

At home, I have an art quilting business that I don’t want to give up, it’s hard to make money at it continuously, and it’s what I totally enjoy to do. Just so you have that background information.

All the while I sewed at work today, I was thinking that I really wanted to be home and sewing in my basement. When I come home from my part time job, im exhausted and/or have to cook so I can eat bc im on a special diet. I have not worked in my basement and really miss being down there. So much!!! I haven’t had the energy to clean my basement, or complete the quilt that im working on as a job (thank God that this customer is very patient).

The other thing that I continue to think about is if/when is my boss going to get fed up with dealing with me bc im sick a lot and cannot work the full time job, and always complaining that I cannot lift boxes, fold the tablecloths bc Im hurting and not feeling well.

Yet, if I quit my part time job and focus on my art quilting business, there will be a lot of people disappointed in me bc im not making steady money.

This lead me to think, “How do other people with chronic pain and fatigue deal with their work and disease?” So, if you could, please share with me how you handle this situation. #Working #Fibromyalgia #Depression #workfromhome #ChronicPain #ChronicFatigue

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#Accessibility shouldn't be optional

There is no good reason to undo all the accessibility that has happened over the past year. They gave us such grief about wanting to be able to accomplish things from home, until "they" needed to be able to do so. Then, magically, it was figured out. So they've proven they can. Choosing not to is discriminating against all of us that drastically need remote options for work, appointments, education, government & community programs, etc. There is no reason the same things put in place during the pandemic can't be made permanent. Other than it may interfere with their profit somehow- which is not a good enough reason. Neither are archaic notions about what "working" is. I'm really frustrated with the world right now. As humans, we weren't meant to be focusing on money above all other things- which is what is forced on us, considering it literally takes money just for survival. Countries should be pitted against each other- they should be working together to progress the human race. We are stuck in what I believe they'll eventually label "The Age of Money" or something similar. One day, when our children figure out that how it's been done up until now is not working, and it's time to take a different approach. We are holding ourselves back by not learning from each other, and working together to make sure all humans have the basic requirements for survival. Competition is doing what it is meant to, but it's also having a greater impact of restricting communication, and preventing cooperation. It's all about who can make the money off of whatever rather than what it means for society, and that isn't doing us any favors. For more from me, visit the link in my profile #ChronicIllness #ChronicPain #ChronicFatigue #InvisibleIllness #Spoonie #MyalgicEncephalomyelitis #fibrowarrior #Fibromyalgia #MultipleSclerosis #MentalHealth #remotework #workfromhome #Accessibility


Fibro Fatigue Advice Needed #Fibromyalgia #ChronicFatigue #Spoonie #workfromhome

I’m really having trouble staying awake for the whole work day. I just started a mostly remote job so I could try and figure out ways to manage my mental health issues with work, but the fatigue is currently getting in the way of everything. Does anyone have any tips to help them stay awake to work with chronic fatigue? Thanks in advance 💕


It's been awhile....

So I haven't posted in quite some time but I hadn’t been able to work for over two years due to this demon we all know as Ménière’s but today I had my very first day starting a new work from home position that is more conducive to my current capabilities. My anxiety has literally been through the roof but I made it through ok & I’m excited to be becoming more self sufficient again. My mom (and daughter) have been my caretakers & biggest supporters but I’m sure they’re just as happy that I’m able to take some of my power back from this disease. ♥️ #Anxiety #MenieresDisease #HardOfHearing #workfromhome


When every noise makes you feel crazy...

Anyone else feel like every tiny little noise made in your surroundings is amplified by a 1000. I’ve been feeling extra anxious yesterday and today. Everything is making me agitated. I have been working from home, helping with online school, my husbands presence is making me nuts, he’s trying to be helpful but it seems to make me more anxious.

The noise of the dishes being done make me want to scream. The sounds of anything “small”. Sometimes I just feel like I’m crazy and my family doesn’t understand what I’m feeling so I try to just not say a thing about it.

Thanks for listening. #Anxiety #trigger #noise #Family #workfromhome

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#workfromhome #Cats #MentalHealth

I have depression and my cats are essential in dealing with it. They give so much love and they’re so sensitive and intuitive that they know when you need love or cheered up. They each do it their own way. Some cats will shower you with affection, some stay near and take care of you and others are little clowns who try to make you laugh.