Hi Barbie 👋
What's your vibe #AutoimmuneImmunodeficiency
Hi, my name is lauraburgstaler. I want to
#MightyTogether #Anxiety #Depression #Migraine #SystemicSclerosis #Scleroderma #CRESTDisease #AutoimmuneImmunodeficiency #Undiagnosed
Stem cell therapy is completely cost prohibitive in the USA, where I've been quoted treatments cost around $5000 dollars each from two different sources. I've been told by my CFIDS specialist that the treatment should be done every 3 months.
So I have a Christian holistic doctor with an MD educational background that amazingly offered me Chinese stem cell therapy at her cost, which was quite cheap since she had it shipped over with an order combined from a total of 3 doctors. I started it just over 2 months ago. I have autoimmune thyroiditis and immune deficiency. What I can tell you is that I felt a decrease in pain in my neck, where I have the most pain, but the effect was strongest right after I got the shot in both elbows, and it doesn't completely remove the pain. I still have to do my neck exercises and stretches and get adjusted by a chiropractor every three weeks so it doesn't become too painful for me and turn into headaches. I didn't notice an effect on my energy levels, but I got COVID-19 four or five weeks after the treatment, which hasn't helped me determine the results very well.
My doctor also has access to placenta stem cell therapy, which I would have preferred, but she wanted to try Chinese stem cell therapy on me first.
Thanks to keepontruckin at phoenixrising.me for showing us even better news on the current research for improvement on stem cell therapy for autoimmune treatment at Mayo Clinic here Scientists pioneer immunotherapy technique for autoimmune diseases
Will this new modified treatment turn out to be a less expensive option?
To understand the differences between Chinese and placenta stem cell therapy, here is an article entitled Development and regulation of stem cell‐based therapies in China and another article entitled Placental-derived stem cells: Culture, differentiation and challenges
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #AutoimmuneImmunodeficiency #HashimotosThyroiditis
So I got COVID-19 for the second time just over 2 weeks ago, and am unvaccinated. I have increased fatigue from the first time I got it more than 2 years ago, which has left me unable to work, whereas previously, with lots of treatment, I decreased my fatigue enough to work part-time.
I have CFIDS with immune defiicency and autoimmune thyroiditis. So I can't take any vaccinations using an autoimmune delivery system, which leaves only Novavax.
The only reason I would be interested in taking Novavax is to prevent Long Covid to try to get working again, since I have strong lungs and don't end up in the hospital with COVID-19. I am still trying new treatments for my immune system.
So have you taken Novavax, and if so, what was your response to COVID-19 after taking it? Are you immune deficient?
Thanks so much for responding to this. If you wish to speak more privately instead of posting here, please don't hesitate to message me.
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #HashimotosThyroiditis #AutoimmuneImmunodeficiency #COVID19 #longcovid
Had my big toenails and 3rd toenail on left foot, 4th on right removed the 23rd due to chronic ingrown toenails and infection. They had been hurting more and just not healing right, having discharge that was not pretty. I had this going on for a few days, kinda ignored it in hopes wound care alone would take care of it. Well I finally broke down and went to urgent care. All 4 especially the big toes are highly infected and spreading towards the ball of my feet. After a scolding from the PA and me sweet talking him, we are going to try treating this outpatient. I really don't want to go in hospital. Well now I feel like crap physically and mentally cause I waited. I feel guilty for ignoring the signs, and just plain ol tired.
Chronic Pain by Melanie R.
Through battles of despondency,
Rare chronic illness muckings.
Hear echoes of their laughing,
rubbing hands of their stalkings.
Burdens of my symptoms;
it’s tortuous attacks.
They’re one behind the other;
My light seen,
Followed.
Tracked.
A ship in fog kept idled.
My engine just won’t start.
Reaching for my Bible-
as my body falls apart.
Can spirit separate from body?,
to escape the suffering?
Crude hell of inflammation,
raging fire from within.
A rumbling embodiment;
endless lava burning–
proclastic hyperglow
emitted from my yearning.
Feel branded…
Tormented.
Hot pokers of this thorn,
attacking my body…
I lay here and I mourn.
Felt unclothed out in winter,
I shivered on my own.
I needed Him beside me;
to clothe me-
bring me home!
A martyr full of valor,
burned alive for faith,
a yesteryear believer,
the blood runs through my veins.
Coursing and crying
for justice in pain,
Lamenting in writhing…
My tongue calls his name!
He heard me,
procured me,
Bottled my tears.
Filled me of healing,
replaced all my fears.
Cut open,
I’m slaying.
Filleting of flesh.
I share in His suffering,
soul-fired, and blessed!
In cells of his captors
Paul sang of His songs,
The Word was his strength-
I sing all day long!
Have rhythm,
Give glory!
Mountains have moved!
My symphony of suffering,
sweet melody of truth!
#AutoimmuneImmunodeficiency #CheckInWithMe #InsideTheMighty #ComplexRegionalPainSyndrome #MightyTogether #BackPain #RheumatoidArthritis #MightyPoets #ChronicPain #MitochondrialDisease #Disability #ChronicPain #ChronicInflammatoryDemyelinatingPolyneuropathy #Gastroparesis #RareDisease
Hi, my name is MistiMiles22. I'm here because
#MightyTogether #Anxiety #Depression #BipolarDisorder #ADHD #RheumatoidArthritis #Crohn 'sDisease#Lupus #AutoimmuneImmunodeficiency
I’ve told people who’ve asked that it was because I hadn’t found the right person, when in actuality they hadn’t found me. In my depression I wasn’t available for a healthy relationship and men steered clear. I went on many first dates, but that was the extent of my love life.
Until now. While just “graduating” from weekly therapy, I’m finally stable and able to sustain a healthy relationship. He’s understanding, gentle and kind. And he showed up just when I wasn’t looking. ♥️ #Depression #Fibromyalgia #PTSD #MacularDegeneration #Arthritis #HashimotosThyroiditis #AutoimmuneImmunodeficiency
I got pneumonia.
Aside from the daily challenges, which offer surprising variety and mystery along with the pain, physical discomfort and brain fog.
I just want to scream, I'm so done rn. Or have someone else scream for me, I'm too tired and sick to do it myself.
Hard to keep my eyes open, hard to swallow, revolted from the honey candy im taking to soften my throat and swallowing... just too much at once.
And I missed halloween with my niece.
#rantover #Arthritis #Fibromyalgia #AutoimmuneImmunodeficiency
Hi, my name is Amilli_7557. I'm here because I’d like to learn more about my own mental health and caring for my mental and emotional needs while living with a chronic illness.
#MightyTogether #Anxiety #Depression #PTSD #ADHD #OCD #UlcerativeColitis #IronDeficiencyAnemia #AutoimmuneImmunodeficiency #ChronicKidneyDisease #PremenstrualDysphoricDisorder