Chronic Fatigue

Hi, my name is Aloha621. I'm here because I have PPMS and have been falling more than usual. I even fractured my left foot (this side has been impacted the most). I hardly drive and if I do, it can only be within a few miles. I hate that I am disabled and losing my independence!!! I also hate having to rely on others for help shopping and keeping up in my house. I find myself not caring about the mess these days, which is so unlike me.

On top of my PPMS, my husband is bedridden and I'm his primary caregiver. I also still work full-time because I have to. It's depressing seeing my husband in this state and I just think about that being me in the bed in the future. That scares me big time. I notice my decline more and more. I notice my foggy brain and the chronic FATIGUE, which worries me because it's starting to make my job harder. The fatigue is unbelievable, I find myself drifting off in meetings and at the computer. WTH?!!!

I have a 2 story house that we live in and raised our children in. It's getting so hard to do the stairs, but I remain grateful for the fact that I'm still able to navigate the stairs, but it's not pretty. I am normally a very positive person but this has really been rough. I was diagnosed in 2023 and it's the worst form, PPMS. I mean, really? I didn't even have the luxury of time to slowly get used to this ever-changing new normal. My family doctor always attributed any symptoms to my needing to lose some weight. However, it took me going to a different doctor and about 6 years later (had to start from scratch to figure out what was going on.

There's more but I'm exhausted typing and checking my spelling and sentence formation. Any insight, advice, support, suggestions would be greatly appreciated. I get so lonely and I feel so alone and isolated.
#MightyTogether #MultipleSclerosis

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis

Hi, my name is Paige61.
I’ve had major depressive disorder (MDD) since age 15 and anxiety issues since around 30. Until the past couple of years, I had not had a depressive episode since 2006 when I received successful day treatment at Mclean Hospital. I’m here because I’m struggling and nobody gets it. My one friend (friend since birth) who mostly got it & who would always listen, when/if I could get the words out, died unexpectedly a few weeks ago. The grief from that & major MAJOR losses the year before, have left me depleted. Numb. Lost. Overwhelmed. Wondering how to keep putting one foot in front of the other. And since COVID, I have become permanently disabled with physical issues, which just turns the depression up along with chronic pain & chronic fatigue. Okay, I’ve spilled it. Can anyone else relate?