Hereditary Breast and Ovarian Cancer

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Hereditary Breast and Ovarian Cancer
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I’m new here!

Hi, my name is MistyBlue. I'm here because I need to find out more info or managing, finding supports, advice for things like what type of travel insurance does everyone use when they have physical & mental health issues? I would like to be able to articulate my diagnosis correctly & so much more.
Ta.
#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ADHD #ChronicIllness #ChronicDailyHeadache #ChronicInflammatoryResponseSyndrome #complexpost-traumaticStressDisorder #DissociativeFugue #DegenerativeDiscDisease #SuicidalThoughts #Suicide #PanicAttack #HereditaryBreastAndOvarianCancer #ManicEpisodes #OCD #DepersonalizationDisorder #DerealizationDisorder

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I'm new here!

Hello. I'm Caroline but my username is Loudflower. I'm here because I've recently been diagnosed with hypermobile Ehlers-Danlos - this diagnosis came a few years after being diagnosed with breast cancer due to a gene mutation and going through all the surgeries and treatments that follow. That is the very short version. Life has changed, y'all. Some days I am determined and optimistic and too many days I am just struggling. It's a lot. I have even retired early (I am a pharmacist). I'm hoping to learn from everyone, and hopefully to find a laugh or two as well.

#MightyTogether #EhlersDanlosSyndrome #JointHypermobilitySyndrome #Hypersomnia #HereditaryBreastAndOvarianCancer #HereditaryPancreatitis

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Worried.. #HereditaryBreastAndOvarianCancer #BreastBiopsy #BreastCancerAwarenessMonth

I'm worried....
I'm high risk for getting breast cancer. My mom died from it before she was 60. Her mom got several cancers, including breast cancer twice. She died of cancer. Her mom (my GGM) died of breast cancer. My dad's mom got cancer years ago but survived it. I just turned 40. I had my first mammogram done 6 months ago. My breast tissue is so dense, I needed a breast ultrasound as well. "Normal looking" nodules were found. I was told come back in 6 months for a check up. I havent been very worried. Yesterday was my check up. This time I got a breast MRI. I was told the results would be sent to my primary care physician and I'd get the results from her in about a week. I'm still not very worried at this point. But that changed this morning when I got a call from the place I got my MRI from, saying I needed to come in today for them to get a biopsy from a lump in my breast. I was not expecting something like that! I think that if they didnt wait for the results to get to my Dr and want me to come in right away to do a biospy, it must look like cancer from the images. I couldnt go in today. I'm going tomorrow. I'm trying to not freak out and think worst case cenario, but its hard. Its especially hard since I have MDD, PTSD and high anxiety. I told a friend and told my boyfriend. I'm not telling my family right now. No point in them worrying for nothing if it turns out to be benign. I dont see how I will be able to sleep tonight!

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