Degenerative Disc Disease

I'm having to live with Degenerative Disc Disease lumber is there anyone else has this. I'm disabled with it and doing day to day tasks are impossible.

Hi, my name is drbutcher. I'm here because

#MightyTogether #DegenerativeDiscDisease #Depression #RheumatoidArthritis

Hi, my name is bixby7352. I'm here because

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #Migraine #AutismSpectrumDisorder #ADHD #PTSD #Grief #ComplexRegionalPainSyndrome #DiabetesType2 #TraumaticBrainInjury #ChronicPain #DegenerativeDiscDisease #Scoliosis #Insomnia

I confess it's been a couple months since I've checked in. But wow! Where is everyone? I updated my app and posts are still saying they were put up like a year ago! 🤷...Hellloooo???!

I had toxic megacolon that required emergency open surgery total colectomy w ileostomy. I found out that the j pouch surgeries to reconnect my colon need to be open invasive surgery cutting open a large scar from abdomen to pubic bone from the colectomy. The colectomy and ileostomy was the most painful experience, the surgery was over 12 hrs w complications during and after. I can’t imagine reopening this scar and all the scar tissue around it 3 more times. I’ve had 8 spinal reconstruction surgeries in 10yrs w titanium screws, plates & rods including replacing my tailbone - those surgeries hurt less than the colectomy. Has anyone had j pouch after colectomy? I’m worried about pouchitis and other infections bec I have a primary immunodeficiency disorder? I read ppl have 8-12 bowel movts after surgery? How long does recovery take? Is the pouch connected and working after first surgery? Is life every normal w a pouch?
#CrohnsDisease #DegenerativeDiscDisease #Colectomy #Ileostomy #jpouchsurgery
#Pouchectomy
#colorectalsurgery #Scoliosis #PrimaryImmunodeficiency #InterstitialCystitis #demyelinatonsyndrome #demyelineatingsyndrome

I have degenerative disc disease, Sciatic nerve, compressed C3 -C7 which causes daily headaches plus my L meniscus tore in half & was completely removed a few years ago. Both wrists had to be fused after a forward fall, went to E.R. & was told "they don't look broken" 2 years later while trying to do p.t. post shoulder repair surgery the wrist pain was so bad , my ortho did xrays which showed both wrists were severely fractured with the bones scrambled so badly, all they could do at the time then, was "salvage" surgery. Since then, it has been one mess up after another post surgeries. I have been in pain management over 14 years, never having had wrong pill counts or bad UA's..then was told quitw frankly I was going to be tapered down to the 90mme which I agreed to as I am the type of patient who let them jab me with steroids, burn my nerves, have caudal injections, you name it,, I did it . Then this summer my "Pain" dr started leaving me hanging, not coming on for my telemed appts,, some times over an hour til some other dr came on,,I was treated with total disrespect as a human disregarding of why I am in pain management altogether. Then the m.a, finally told me "the dr here is no longer prescribing meds over the 90mme forcing me to take taxis an hour north of Anchorage after having flown from a rural town to get there. All they are concerned about is getting me off the meds that were helping me for over 10 years. Now I live in constant withdrawal every 4 hours on top of my pain not being addressed any more. This was NOT me who put me on these meds, and I get lectured at every appointment about them risking going to jail. I really do not care to hear about their worries, when I am the one suffering because of all of this. I am sorry for running on here. I just feel like the medical drs have forgotten their motto of to do no harm. They are hurting me & have hurt me physically by their mistakes SO many times. I yield back

Both my kids are persevering with multiple serious medical problems. I’m a single mom with very limited family, friend and community support. I’ve nearly died three times this year and 1-2 times every year for the past six years. My kids are very depressed about almost losing me again. My kids both have treatment resistant depression, CPTSD, endometriosis/ademomyosis,
rheumatoid arthritis, Crohn’s, epilepsy, polymigratory arthritis, degenerative spine disease, scoliosis, reynaud’s syndrome, cardiac issues, migraines and fibromyalgia, complex regional pain syndrome. The crushing guilt of being an ineffective mother, giving birth to two children who each have 5-6 illnesses inherited from me and their father who hurt them physically and emotionally especially when I was in the hospital getting 8 reconstructive spine surgeries with hardware, screws, plates in nine years covering most of my spine. My son is autistic spectrum disorder high functioning and affectionate. I’m so lucky to be here for my kids with my kids. I understand that without emergency surgery and a fully invasive opening, I wouldn’t be here today. I’m grateful to Gd for saving me. What have I done to my kids. I wasn’t so sick when I got pregnant. I didn’t know when I got pregnant that the kids father’s side has most of the same illnesses and there are many. Now both my kids, as they mature, their health diagnoses increase to longer terrifying lists of diagnoses including many of my dozens of disorders including from Crohn’s, epilepsy, an unspecified connective tissue disorders, immune modulatory disorder, endometriosis, interstitial cystitis, seronegative rheumatoid arthritis, primary immunodeficiency disorder, MGUS/multiple myeloma (monoclonal gammopathy of unknown significance), demyelinating syndrome like MS without known disease prognosis. This year I almost died three times from necrotic aspiration pneumonia with large abscesses in my lungs. I am eligible for the reversal ileostomy surgeries (2 surgeries- the first 8-10 hours is almost as devastating as the emergency colectomy. There’s a small window (4months) when surgeons can do this. It’s my only chance to get my life back to live w/o an ostomy. It’s a long process after surgery and the stoma is repaired in a follow up surgery. I need this surgery. It’s a long long recovery and major surgery with many complications. How can I do this to my family? I worry that my son & daughter can’t handle this much disruption, stress, sadness. We have such little support and no one called my kids to check on them as the plan we created was supposed to happen in emergencies. No one called. Every one gave excuses, so disappointing. Such a problem for future surgeries. I know they should be independent by now yet given their medical status, being an independent young adult is very challenging. I’m so thankful to my daughter who has been helpful beyond any thing I could have hoped for. She’s incredibly giving and loving to me. It’s hard to be here. Not functional, not effective.

#UndifferentiatedConnectiveTissueDisease #MixedConnectiveTissueDiseaseMCTD # primaryimmunodeficiencydisorder #PrimaryImmunodeficiency #AutoimmuneImmunodeficiency #CrohnsDisease #PTSD #ComplexPosttraumaticStressDisorder #ComplexRegionalPainSyndrome #CongenitalHeartDefect #Epilepsy #RheumatoidArthritis #DegenerativeDiscDisease #Scoliosis #InterstitialCystitis #Pneumonia #AspirationPneumonia
#necroticpneumonia
#Gastroparesis #gastrointesinlbleed #RheumatoidArthritis #singleparent #SjogrensSyndrome #DiffuseIdiopathicSkeletalHyperostosis #Diabetes #ComplexPosttraumaticStressDisorder #Ileostomy #Colectomy