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Anyone taking Benlysta?

Hello friends. I've had to go on medical leave due to an extreme flare. I was diagnosed about 11-12 years ago and after I got on benlysta I felt fantastic! Now, it has stopped working and its all I can do to get out of bed all day. Does anyone have similar experience with Benlysta?#Benlysta #flare #SLE #Lupus

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Migraine flare?

To anyone with chronic migraines besides myself: do you get flares so bad you can’t walk due to the pain, your entire body hurts, or just me? #chronicmigraine #flare

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What Are Your Unusual Symptoms?

Some people have back hair. Not me. I have something better. I have back flares! Yes, erythromelalgia rises up in my back. It often turns red, burns, and tingles like a sunburn dipped in acid. I know you probably want this too, but it's reserved for the select few, like the VIP area in the club.

EM is unusual enough by itself, but I've been told back flares are very odd. This is probably the most "unusual" place I get flares, but it happens relatively frequently. The best part is that I get to go shirtless, even when it's cold. Fun!

Anyway...what's the most "unusual" way you experience your chronic illness or disability?

#ChronicIllness #Erythromelalgia #ChronicPain #InvisibleIllness #Disability #Anxiety #Depression #MightyTogether #RareDisease #CheerMeOn #flare #Fibromyalgia #MultipleSclerosis #ComplexRegionalPainSyndrome

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Allergies set off a firestorm of a flare that went into a cold that went into bronchitis. Haven't slept in days. Y'all know how I'm feeling today :(#Fibromyalgia #Allergies #flare #ivebeenhitbyabus

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Trying out a new type of #Yoga content

It's taken me ages to build up the courage but I finally did it. I made my first video on yoga and chronic pain :) . I made a voice over on how I use yoga as a tool to manage my pain. It isn't a silver bullet but it helps. I have so much more #Spoonie content planned. I'm excited, but I need to pace myself from burning out. I am recently recovering from a 4 week #flare .
#InvisibleIllness #ChronicPain

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#flare

Today I had a flare. My gerbil Barry Allen kept me company when I felt well enough to hold him for a few minutes.

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Fibro Worse Once is starts warming up

As much as I love the beautiful weather coming around lately; I’m also so upset that it’s making me flare more! I’ve made it from winter til now with such a minimal amount of a flare. I just always hate having that feeling of a just a tiny bit of relief to be reminded, yeah it’s still here! I’m a very strong personality but sometimes defeat is what I need to feel, because it’s my truth! #venting #Fibromyalgia #flare

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Sorry I have been away!

Ugh #HeartCondition problems! My 13 year old is currently in the middle of a #flare up with his #pericarditis and my 8 year of had a bad #nosebleed Friday night so she is now on iron with the hope of not developing #Anemia ! the fun never stops around here!!! we are doing ok though as always we #JustKeepSwimming

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Amblyopia (lazy eye)

Does anyone else experience a stronger symptom of amblyopia when the are having an #Fibromyalgia #MultipleSclerosis #flare ?
I try to patch my stronger eye which isn’t great either because while patched it strays as well! 😱😎

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