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A New Diagnosis

After weeks and weeks of leg and hip pain and some blood tests, yesterday my GP diagnosed me with Arthritis that’s associated with my joint hypermobility (Ehler’s Danlos Syndrome) I’ve just gotta have an x-ray of my pelvis to make sure the bone hasn’t been damaged from the constant grinding feeling in my hip joint when I move my leg, etc.

I’ve been prescribed some kick ass anti-inflammatory medication called Meloxicam and it’s really helping! I managed to tidy my room up and get a nice hot shower (which definitely helped my back and hip). So, now I’m gonna maybe make a cup of hot chocolate and relax while playing WoW.

(Yes, I’m aware my hair looks awful - I’m trying to grow it out so I’m back to my natural colour).

I wish you all a very Happy New Year! 🥳

#chronicillnesswarrior #ChronicPain #POTS #PosturalOrthostaticTachycardiaSyndrome #EDS #EhlersDanlosSyndrome #LiverDisease #NAFLD #BorderlinePersonalityDisorder #BPD #InterstitialCystitis #ic #Diabetes #Migraines #Arthritis #Jointpain #NewYearsEve #Happynewyear

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Reason for hope

A definite highlight of 2022: This year, researchers proved a link between the Epstein-Barr virus, which causes mono, and MS. They're not sure exactly how it works, but immediately came news that there's already ongoing development of an EBV vaccine to hopefully prevent MS – or maybe even help those already diagnosed!

"[S]cientists are discussing how to proceed from here. Antivirals or drugs that target infected cells, some of which are already in development, might help MS patients. Vaccines against EBV are in development, too. The authors of the Science paper say widespread vaccination could prevent most instances of MS. ...

"Scientists first suggested more than four decades ago that the two conditions might be linked. In the following years, the evidence piled up: Nearly everyone with multiple sclerosis has latent EBV in their cells. People who recall being sick with mono have a heightened risk of MS. Immune cells harboring the virus are more prevalent in the brains of MS patients."

A groundbreaking finding on multiple sclerosis is dividing scientists

#hope #Happynewyear #2023 #MultipleSclerosis #ChronicIllness #Depression #newlydiagnosed #MightyTogether #Disabilities #Caregiving #Disability #Support

A groundbreaking finding on multiple sclerosis is dividing scientists

A recent study has provided some of the strongest evidence so far that the Epstein-Barr virus and MS are linked, but scientists point to other possible causes.
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#Happynewyear Goodnight 🙋🕯💌

"Heres to A MUCH Better/Kinder/Sweeter Year. May it bring forth such an abundance of blessings. that our "cup runner over"....and we are full. May we find (be blessed with) some PEACE & CONTENTMENT, HOPE & Lotsa & Lotsa WARMTH, & JOY. I honestly don't know "joy". It's been so so so long (over 25 yrs)since I "did" joy. I can't imagine it anymore. Much JOY to all this New Year. 🌞 🙏 🙏 🕯 Good Night, Dear Sweet Friends on here on #TheMighty . 🌞💡⚡🔥🎯🍬💐💌🙋

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#Happynewyear . 🌞 🙏 🕯

........that is,...."Im asking, "Please , God, Father, make us that our "cup (of joy)runneth over " it time for, & I need......a change. Lord, Need a Great Big Change. Like now. & for all that read this. This I ask. In Jesus' Name.
- Amen"


New Year's Resolutions

Every year, I always set myself difficult NYRs that I never manage to fulfil for some reason or another. It's usually something like losing 35kg/80lbs off my weight within months, but I never do it.

So, this year I've set myself two relatively simple ones that I think I'll be able to achieve by the end of the year, as long as I keep reminding myself. Hell, I might write them on my white board that's in my room so I never forget.

Number one: To learn to accept and respect my limits with regards to my physical health.

Number two: To know my worth and never settle for anything less.

What ones have you set?

Happy New Year, my lovelies!

#chronicillnesswarrior #ChronicPain #POTS #posturalorthostatictachycardia #EDS #EhlersDanlos #NAFLD #InterstitialCystitis #BladderPain #Diabetes #Migraines #Depression #BPD #BorderlinePersonalityDisorder #newyearsresolution #nyr #Happynewyear #goals

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Happy New Year #Cancer #NeuroendocrineTumor

Hi all, I am not new to Mighty but am new to this group. March 2021, I was diagnosed with neuroendocrine cancer, a rare incurable yet treatable cancer, often called NETs, short for neuroendocrine tumors. On average it takes 5-7 years for patients to get a correct diagnosis as NETs mimic many other chronic diseases. In my case, it took 4 years. Meanwhile, the tumors spread from my small intestine to other areas of my body. I still have flashbacks (not as many anymore) of that one day in the hospital when I went from being treated for IBS and dehydration to metastatic cancer, or of the series of colonoscopies and upper GIs that didn’t catch it when I became overwhelmingly fatigued beginning in 2017, or of the dismissal by doctors in 2020 when my symptoms were out of control and all attention was given to Covid-19.

To say the least, it has been difficult but God has been faithful. I surrendered my will, stopped the grieving of what-ifs, and amazing things started to unfold. Through a support group, I found NETs specialists willing to review my case as most oncologists are not aware of NETs and their sneaky behavior. I became educated and learned quickly that it was important to receive second, third, and (sometimes) fourth expert opinions on treatment options and the order in which to pursue them. Fast forward to this week’s scan where I learned I am stable with the current treatment. As you can imagine, I needed to hear this win. 💃🏽 Join me in celebrating. Yes, my healing testimony is on its way!

Faith has truly carried me, my husband, and two adult daughters. There’s no way we could take this journey alone. We are blessed with supportive friends and family. To this day, not one has forgotten about us. Cancer survivors and patients I discovered through Google have given me much needed tips and inspiration. My fellow Mighty friends, you have encouraged me especially on low days when you didn’t know I was there with tingly hands that kept me from responding. Your stories, posts to each other, and fun games brought smiles to my face. (In fact, my first post from the hospital was to the Mighty and you helped me through.)

As we near a new year, may we all be richly blessed with better days, deepened faith, supportive online & on ground friends, renewed strength, good health, positive thoughts, peace in the midst of chaos, and joy through our Lord and Savior Jesus Christ. Cheers to 2022! #Happynewyear


✨ THE #1 RULE IS TO WELCOME 🎉 2022✨ #Happynewyear 'sEve#Mightyfamily




I called suicide hotline last night and now I’m here.

I tried to write down my collective thoughts on here, but I reached the maximum character limit so I had to start over...

So in short,
my husband kicked me out of the house last night.
I thought what I did was right..
People keep telling me I was right. But why do I still feel I’m wrong...
I feel like I am worthless. I feel like I don’t have a future. I have ruined my children’s lives.