Hypopituitarism

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Hypopituitarism
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    Community Voices

    GAH! Im having and autonomic disfunction attack.

    My whole body is tight and shakibg and shivering.

    Woke me up. Can barely type. I need to go take a klonapin & a muscle relaxer.. . and maybe some rescue hydrocortisone b4 this turns into an Adrenal Crisis.

    Been awhile since Ive ht ad one.

    #disautonomia
    #AskMe
    #adrenal crisis
    #Hypopituitarism

    Community Voices

    Anyone out there in their 20s or raising a toddler with hypopituitarism? Looking to make a friend that understands :)

    I’m a 24 year old mum to a 2 year old girl from Australia, currently living in the thick of the Victorian Coronavirus pandemic. I’ve also got hEDS and some heart problems along with all the other fun bits and pieces like anxiety, depression, RLS, scoliosis etc but the thing causing me the most trouble right now is the hypopituitarism. I would love to make some friends with the same condition. #Hypopituitarism #HEDS #svt #heartabnormalities

    Community Voices

    Abusive household

    Hey, currently living with #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #HashimotosThyroiditis #HypothyroidismUnderactiveThyroidDisease #Panhypopituitarism #Hypopituitarism #RheumatoidArthritis #GrowthHormoneDeficiency and am in an abusive household where I am dependent. my mom took my savings of $5,000 when i was 18 and bedridden and spent it. my dad is violent and my brother. i lost all my friends cause of multiple reasons including whats listed above so i have nobody. my family is homophobic ( im lgtbtq+) and my dad is racist and im half latina. he says im faking everything. i was raped by a boyfriend i had and my mom uses it against me in arguments all the time or brings him up to upset me.

    i plan on moving to NYC as im an artist. im also going to college there so ANY ADVICE would be extremely appreciated. such as financial advice, books, tips, tricks, for any thing ive mentioned. thank you for reading. peace and love 🌈💜

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    Community Voices

    A day in a Hypopituitarism patient life #RareDisease


    My alarm goes off at 6:30 am . Beside the bed I've put a cup of water and a box of levothyroxine . I take the pill and go back to sleep to 7 am , giving some time for this dizziness to subside . Then it's breakfast time , something my stomach can tolerate . I've been diagnosed with so many GIT issues due to hormonal imbalance , so I can't eat most of foods . Here comes the AM steroid dose . Then it's time for a warm shower to loosen up those painful muscles . And that large cup of coffee is a necessity , without it I can't get through the day .
    I leave the house , the one I rented just five minutes away from work as I can't travel long distances . I reach work at 8:30 am and I start feeling the pain crippling through my body again , but somehow I manage to do my best .
    Then it's 12 pm , time for lunch break and the second big cup of coffee and the estrogen pill . If I had this pill on empty stomach , I'd spend the rest of the day throwing up .The pain subsides here just to come back 2 hours later .
    I get back to home at 5 pm totally drained and exhausted . Here are some snacks I brought on my way back . I eat some of them to take the PM steroid dose and jump into bed . It's time for some videos or mobile games . It's 8 pm and I'm finally able to get out of bed . I barely reach for the refrigerator to get that meal I already prepared on the weekend to heat it in the microwave . Then here comes fun time . I may bake some cookies or decorate a cake if it's a good day . If it's a bad pain day I'd prepare a warm drink and read an interesting book while lying in bed . Untill it's 10 pm & it's time for the sleeping pill , the one without which I'd never be able to sleep and I'd miss work the next day . I close my eyes untill my alarm goes off at 6:30 am .

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    Community Voices

    To Sleep.

    <p>To Sleep.</p>
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    Community Voices
    Community Voices
    Community Voices

    A Smile To You

    <p>A Smile To You</p>
    55 people are talking about this
    Community Voices

    A Comfort Hug

    Hello my fellow Mighties. Today is a so-so kind of day. I ask that you take a deep breath with me; just one inhale then exhale. You’ve just received a virtual hug from me to you 🤗 It may feel lonely in what you’re going through, know that you are not. If hugs aren’t your thing, that’s okay too. We survivors are a community located all over the world supporting one another every day all day. Believe it can get better. One day at a time, one hour at a time, one step at a time and one deep breath at a time. #MightyTogether #ChronicIllness #Hypopituitarism #HidradenitisSuppurativa

    7 people are talking about this