Occipital Neuralgia

Hi, my name is FKBP14andZNF469. I've been diagnosed with, um, a whole bunch of stuff this year. I’m hoping to meet others who know more than I do about EDS and maybe disambiguate whether all of it is part of this condition or maybe some of it is unrelated.

#MightyTogether #Fibromyalgia #ADHD #EhlersDanlosSyndrome #OccipitalNeuralgia #Aneurysm

For close to eight years I have been a facilitator for two in-person mental health peer to peer groups a week. Since April attendance to the groups have steadily declined for various reasons. Then since the beginning of September, no one came to the meetings, not a single soul. I knew the meetings would have to stop so I made the announcement on our Facebook page what the last day would be. I got a few objections which I thought odd since no one was attending. I arrived yesterday at the building where the meetings had been held and it was being closed up, the owners were moving. So that is that. The groups were intended as support for those having mental health issues, to share ideas on how to cope with day to day life. It was very successful for eight years, then it wasn't. I wish I knew why. In the beginning the groups were established under a national mental health organization. We broke from them due to disagreements over policy. Unfortunately, that took away our ability to get the word out about us. Today I feel sad and lost. And like I let people down even though that isn't rational. I'm going to try and be good to myself today and enjoy the little things… like my cat on my lap and my dog at my feet. Thanks for letting me express my feelings.

So yesterday I dressed up a bit to go to facilitate a peer to peer mental health group. It is a very casual setting and most of the time we are all dressed in jeans and comfy tops, T-shirts and the like. I was feeling good and wanted to look good too. It was a fun change. When I got home I took a picture of myself in my full length bathroom mirror (I didn't have anyone who could take a picture at the time). I liked it. I sent the picture to my daughter and she really liked it. Then I began wondering what the heck I was thinking. As we do, I systematically tore my looks to bits. I've inwardly cringed, thinking about what others must think when they look at me. I'm not one of the beautiful people! Today, I began my day by not wanting to even go outside... I must be hideous! I was embarrassed. But then I realized something: I not only was letting echoes of my Step-Father's voice that told me how ugly I was get to me even after all of these years, but allowing my mental illness to control my own self esteem. I would never talk to a friend the way I was talking to myself! I would point out all of the good qualities in her picture and in life! I would build her up, not tear her down, so what was I doing?! I don't know why we do these terrible things to ourselves. I'm worthy of self love, self appreciation. I restarted my thoughts with realizing I'm not hideous; small children don't laugh at me, dogs don't bark and try to run away when I approach. My looks are fine. My beauty is in my soul... right where it should be. I hope you have a wonderful day and accept yourself as you are.

Hi everyone! My name is Jaz, I’m 20 and a college student studying biology & molecular genetics. I struggle with several chronic illnesses and still being evaluated for others. My “main” conditions that impact my life the most are hypermobile EDS, POTS, migraines, asthma, GERD, IBS, occipital neuralgia, cyclic vomiting syndrome, anxiety, and OCD. I don’t have any friends who deal with chronic illness in real life, so I came here hoping to make friends who understand and connect with the chronic illness community! As for other parts of my life; I enjoy reading, figure skating (used to compete, now I’m unable to but I still skate for fun), anything horror or paranormal, yoga, thrifting, and rock music. I have a cat named Lele and a fish named Timmy. I’m also currently learning ASL. Feel free to reach out to chat or be friends! :)
#MightyTogether #ChronicIllness #EhlersDanlosSyndrome #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #Migraine #ChronicPain #ObsessiveCompulsiveDisorder #MentalHealth #CyclicVomitingSyndrome

Hi, my name is chronicallynatasha! I'm here because I have fibromyalgia, occipital Neuralgia and arthritis. I sometimes struggle feeling alone and like no one really understands how I feel. I'm hoping to make some connections with people going through the same things as me.

Hi, my name is SleepyHope23. I'm here because I am in constant pain from occipital neuralgia in my head and also cannot sleep after 4 hours with medication so I wake up at 1:30 to 2:30 and cannot fall back asleep and have been doing this for 4 years. I cannot take it anymore. My husband is in a facility with dementia and I am her alone with my dog trying to sell this house and get everything together. I am going crazy and feel that my life is over . I have tried everything and spent a fortune on alternative therapies as well and cannot get rid of this pain Nothing works. Please pray for me...Thank you. .Hope

#MightyTogether #Anxiety #Migraine

Hi, my name is koffeeandkats. I'm here because

#MightyTogether #OccipitalNeuralgia