Rare Disease

No more vague goals. Choose one thing depression is taking from you and work backward into daily steps.

Comment your specific goal and the first tiny step on your ladder. I’ll help you refine it.

If you want to learn more about this, check out my video by clicking on one of the links below.

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Managing a mix of symptoms from a disability or health condition (or several) can take a lot of time, patience, and energy — plus juggling doctor visits and the different perspectives that come with seeing multiple professionals such as primary care doctors, specialists, physical or occupational therapists, nurses, social workers, care coordinators, nutritionists, or mental health providers.

Who on your care team has helped you understand your treatment options the most? What about their approach has made a difference for you?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Whether this is something you or your family are managing, or you just want to learn more, we’d love to hear what stood out to you in the story. How does this topic connect to your own experiences? 🌱

📚 Explore GHD, it's causes, and how it's diagnosed in our story of the week here:
Understanding Pediatric Growth Hormone Deficiency in Kids

#RareDisease #ChronicIllness #MentalHealth #GrowthHormoneDeficiency

Yes, the connections we have with others are super important, but so is the connection we have with ourselves!

We do spend the most time with ourselves, after all, and we deserve to have the best relationship we can. 💌

How can you improve the connection you have with yourself? What are some ways you can strengthen it?

Mighty staffer @sparklywartanks says she can strengthen her relationship with herself by doing the activities she enjoys more consistently.

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

At its core, resilience is the ability to recover, adapt, and adjust when faced with change or difficult circumstances. But what resilience looks like can be very different for each of us.

What are your thoughts on resilience? What does it look like in your life? How do you define it? What’s something you’ve learned about resilience lately?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Pain changes you.

Not in the way people think, not by breaking you, but by deepening you.

If you hadn’t gone through what you went through, you wouldn’t feel as deeply.

You wouldn’t understand struggle the way you do.

You wouldn’t have the empathy, the humility, or the compassion you carry now.

Yes, suffering hurts.

But it also shapes the parts of you that are wise, gentle, and real.

Most people move through life untouched, never questioning, never growing.

Not you.

You were cracked open and that crack is where your strength and humanity entered.

You didn’t come out of your pain empty.

You came out with depth.

And that is something only survivors have.

What is one thing your struggle has taught you about life or about yourself?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

When your young you have a idealistic vision of what life should be, go to work and do a good job and you will be rewarded. Then one day you become disabled and now you find yourself fighting for a small stipend and prove to the SSA that you are disabled enough not to work. I had all those dreams of a pain free life even if I have to wear the full leg braces it's better to be just disabled and not in constant pain. I miss the person I used to be ready to explore the mountains with my dogs and go for a swim in the lake. I miss having friends although friendships are hard when society looks down on my disability and I have to cancel plans because of the muscular dystrophy. So I decided to reshape my dreams so I'm not heartbroken when I look into the past and I'm 58 and became disabled at 40 so I have lived 40yrs without major pain so I'm happy I got to spend those years .

So if you find yourself thinking about brocken dreams then it's time to change your dreams 🙂#Anxiety #DegenerativeDiscDisease #MajorDepressiveDisorder #MuscularDystrophy #RareDisease #OCD #disabilty #Allodynia #hyperalgesua

Sometimes people mean well, but their words can sting, dismiss, or just fall flat — whether it’s about your health, emotions, or everyday life. From “helpful” advice to overused platitudes, we all have phrases we’re just done hearing.

💬 Maybe you’re over hearing things like:

“But you don’t look sick.”

“Everything happens for a reason.”

“It could be worse.”

“Have you tried yoga?”

“At least you can still ___.”

“You should smile more.”

“Don’t be so sensitive.”

“It’s all in your head.”

“Other people have it worse.”

“Cheer up.”

“Just don’t worry about it.”

✨ Instead some more helpful or validating phrases can be:

“I believe you.”

“That sounds really hard — how can I support you?”

“You shouldn’t have to be this strong all the time.”

“Take all the time you need.”

“I hear you.”

“That must be exhausting.”

“You don’t owe anyone an explanation.”

“I’m here if you need to vent."

“You’re allowed to feel how you feel.”

“Thank you for trusting me with how you’re feeling.”

“You’re doing your best, and that’s enough.”

💡 Take a #MightyMinute today to share the phrases you’re over hearing — and what you’d rather hear instead.

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie