Latest
Not sure what's going on with me and it's scary.
I'm not sure what's going on and it's scaring me and my husband. I have a variety of chronic conditions, including sleep apnea, autism, and ADHD. During the last year or so, a new symptom or condition has started presenting itself. I'll try to describe it as best I can and hopefully someone will recognize what it is, or have some ideas as to what it might be, because the doctors I've talked with think it's narcolepsy but aren't sure about that, either.
It usually happens when I'm sitting still for long periods of time, like reading things on the internet, playing computer games, or watching tv, but not always. All of a sudden, I jolt "back to consciousness" or "awake" and I have no clue that there's any lost time. I put those in quotes, because idk if I really lose consciousness or fall asleep. My smartwatch thinks I fall asleep during these times.
When I come back to myself, I have a cottony feeling in my mouth like I've been asleep, I jolt back (like muscles physically jump a little), and my mind races to figure out why. I see that it's not the time I thought it was and sometimes I'm on a different website, part of an e-book, tv program, etc. I'm disoriented and have trouble thinking, like I just woke up suddenly.
During the time I'm "out", my husband says I look like I fall asleep suddenly and am unresponsive. Sometimes I snore. Often, I fall forward or lean to the side somewhat.
Sometimes, I can feel it starting, like a dark curtain getting pulled tight around my eyes and sometimes around my other senses. Usually, though, it just starts suddenly and I don't seem to have any warning about it.
Does this sound familiar to anyone? I'm willing to answer questions about it, so please post if you have any ideas! Yes, I understand that nothing on here can be construed to be diagnosing, but it will at least give me a direction to ask doctors about to rule-in or rule-out things.
1 reaction •
6 comments
