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The Case of the Mysterious Malady

So I have a problem. And before anyone comments, “just go to the doctor!” I am trying but I live in America with crappy insurance so it’s… difficult.

Anyway, all my life I’ve had fatigue, brain fog, and social anxiety. So I’m used to panic attacks and all that. But the past couple of years symptoms seem to have skyrocketed to what feels like an actual illness but nothing I’ve researched seems to perfectly fit. I was wondering if anyone on here has had this myriad of issues to help ease my mind that I’m not dying until I can get to a doctor:

Fatigue is present always, along with anxiety. Like, the jitteriness NEVER lets up. I’ve also developed constant dizziness. It feels like the earth is moving beneath me when I stand and walk and I also always veer to the left, so when I walk I look drunk. There’s also what feels like leg weakness. And when I stand my chest is heavy and I can’t take a deep breath until I’ve sat down for at least an hour.

Then, on what seems to be part of my monthly cycle during my period of ovulation and my actual period my heart RAMPS up. My resting on a good day is 73bpm. During these periods it stays at a constant 100-125bpm. It’s gotten as high as 160. But after this period it always goes back to normal. I also get even more anxious and emotional during these times and my previously listed symptoms get a thousand times worse.

I also get very hot very easily. Like, I have to stand in the freezer at work in the winter to feel normal type of hot. I lost like 50lbs very quickly during the onset of all these symptoms and now I’m always hungry. I also developed light sensitivity to where it hurts sometimes to watch my favorite superhero movies.

There’s also times where it sort of feels like I’m out of my body? I can’t really describe this sensation other than a combo of not being in reality and mildly losing my mind. But then the sensation passes and I’m just left in a weirder brain fog.

Has anyone else had this and did you ever get it diagnosed? The closest thing I’ve been able to find is a thyroid condition. It covers the heat and light sensitivity. But is it possible this is all just anxiety in it’s most annoying form? I just need reassurance.

Thanks for reading! #Anxiety #Hormones #thyroid #medical #Dizziness #BrainFog #weakness #Fatigue

5 reactions 13 comments


Our infirmities only give others the chance to Love.

Infirmity: physical and/or mental weakness

In Jesus’ name,
Amen. #Depression #ChronicPain #weakness


Arm pain!

Another night another fight lol, my hands, ELBOWS ESPECIALLY! and shoulders and fingers are just so sore and weak! my left elbow is so tender at this moment: (bout to try get some rest, have my heats backs on my left elbow and hips, comfortable and warm enough :)

I ate fish and chips covered in gluten tonight and had instent regrets... Hate when I'm on my pireod and nothing seems appealing 😝🤣

#Fibromyalgia #weakness #IrritableBowelSyndromeIBS #Autism


Arm pain!

Another night another fight lol, my hands, ELBOWS ESPECIALLY! and shoulders and fingers are just so sore and weak! my left elbow is so tender at this moment :( bout to try get some rest, have my heats backs on my left elbow and hips, comfortable and warm enough :) night world 🌈
#Fibromyalgia #weakness #IrritableBowelSyndromeIBS #Autism #ChronicPain


A Scream Into the Void

I used to be able to do so much more. Now I'm in bed a lot due to pain and fatigue. I want to work but I have soooo much going on so it would have to be from home.

How do I learn to be OK with my obstacles? It's been over ten years since I went down this rollarcoaster.

Maybe things will never change. Deep down I know they will...that there's still a spark of the person I was deep down inside.

I'm just frustrated. New problems: back pain that is turning me into a hunchback.

I just want my old "normal" back :(

I am trying my hardest.

But I always left therapy feeling like it was never good enough for my therapist.

I'm not severely ill so I can do this.

And I"m trying...


ever the people pleaser.

BTW, I have a new therapist now. I am slowly opening up :) Just trying to cope with all these new challenges. Needed an abyss/void to scream into xD

#Fibromyalgia #rheumatoid #Arthritis #BackPain #Osteoarthritis #DegenerativeDiscDisease #sjogrens #Neuropathy #weakness #Menieres


Trying #Pain #Depression #Anxiety #weakness

I have made up my mind that I'm going to try to improve myself. For 3 years, I have laid on the couch due to depression and back pain with terrible coordination. People kept telling me to get out and walk. It will make you feel better. Well, it did not I couldn't hold myself up more than three minutes and it hurt terribly. I couldn't even use the shower because my back and legs hurt too much from the standing. I also fell and lost my balance frequently. One day I decided to try a different approach by getting a rollator, a shower chair, and physical therapy. My doctor approved it, and I feel so much better physically and mentally. The problem is that my family has not been supportive. My husband acts like he's embarrassed by the rollator. My brother freaked out and said I needed to get my weight under control. Nobody knows I'm overweight as much as I do. My people are just not happy with my decisions. I feel so deflated. #Depression #Anxiety #Pain


COVID-positive life

Things definitely got worse before they got better.

At its worse (Thursday I think), my whole body ached, I couldn’t support myself, I was very fatigued, cold water caused physical pain, I had chills and I was very weak.

Thankfully things have got better and now all that’s affecting me is sore throat, breathlessness w/ below normal blood oxygen levels, distorted sense of smell, loss of appetite, chest pain, weird “eye headaches” when I move my eyes, weakness and sneezing!

Though I think the sneezing may be allergies as they have been playing up and I finally started taking the new nasal spray (it got better when the sore throat was real bad, I guess because it was just drying it or something as as the sore throat has got better the mucus has got worse).

With the loss of appetite it is a struggle because I was already underweight before COVID. Today was the first day I managed to eat two meals in basically a week, but it was a struggle to do so.

The weakness is also a bit of a frustration. Washing hair requires a sustained amount of arm strength, and I really don’t have it at the moment. Reminds me of the times when I’d shower after 10 hour cleaning shifts...

The breathlessness does have me a little concerned because it’s gotten worse every day, but hopefully it’ll get better soon. It kinda feels like I’m not breathing enough unless I’m breathing through my mouth, which probably makes my sore throat worse so I try not to.

The distorted sense of smell is just plain annoying. I noticed it yesterday when I went to eat some crisps and they just smelled really strong like chemicals (well that was the closest smell) and ever since then, everything else does.

Still got a few more days of self-isolation thankfully. Hopefully I’ll be in some sort of state to be able to work and wear a mask (because there’s going to be absolutely no way they’ll let me in without one on, given I’d only just been self-isolating with covid).

Anyway long post, but it seems like a lot has happened in just a few days.

#COVID19 #diagnosed #breathlessness #Fatigue #Pain #weakness #selfisolation

1 comment

Tested positive

Got the COVID test result today and it’s unfortunately positive. Very weak (can’t support myself for long), fatigued, achy, sore throat and a cough.

As a result of having COVID, I can’t take antibiotics for the infection I have in my gum (dentist asked me to send a pic of it, and said it was probably an infection but obviously couldn’t say it definitely was). Taking antibiotics would rid my body of the good bacteria and I’d be basically worse off. So it’s just a matter of waiting.

Thankfully it does appear to be getting better on its own. It’s probably TMI if I go into detail, so I’ll just say yesterday I was able to eat some food on the side that hurts AND I managed to wear my retainer at night. The day without it worked wonders (it was irritating it so I didn’t wear it for a day, I had asked 111 about it and they said it was fine otherwise I’d have worn it anyway).

#Infection #COVID19 #positive #weakness #Pain #Fatigue #unwell #Dentist


I saw my PCP today to follow up on the hyper mobility, joint and muscle pain, and weakness. I also brought up that I subluxed my back on Saturday and he didn’t say much about either thing.

Told me my echocardiogram was normal, which is a plus. Told me he will not start me on any more meds as I’m already on 14 but that includes vitamins too. Told me a brace is okay but good luck finding something for joints other than ankle and wrist that are readily available. He did put in a referral to the EDS specialist at the University of Iowa but who knows how long that will take to get set up.

I did mention how my PT didn’t seem to do much. Yeah the pain is diminished, but it was replaced with numbness. I also mentioned the comments PT has made about hyper mobility being normal which I agree with to an extent, but the amount I have isn’t normal. Again he didn’t say much about it.

I guess I’m at a loss for what to do. I know there’s nothing they can do for hyper mobility, but can’t they still do the MRI that I pushed through 6 weeks of PT for? Can’t that help me find a PT that works with hyper mobility and knows how to treat it?

Yes, I know I’m fat. Yes, I have mental health problems. If my weakness, pain, and hyper mobility were related to those things it would’ve been a problem 20 years ago, not just an annoyance and me being “clumsy” with bad posture. Also it would’ve improved when I lost 20lbs a couple months ago, but it didn’t it actually got WORSE!

Sorry about the rant/vent I just don’t know what to do. I’m missing work because of subluxations which I can’t afford. I have a support team, but they’re all paid to support me (therapist, dr, and home aides). I feel lost and alone and my mental health isn’t doing the best.

#EhlersDanlosSyndrome (?) #Hypermobility #Depression #Anxiety #quietborderline #BorderlinePersonalityDisorder #GastroesophagealRefluxDisease #HiatalHernia #dismotility #Gastroparesis #Endometriosis (?) #Anemia #Malabsorption #BingeEatingDisorder #Tachycardia #Hypertension #ChronicPain #weakness