Backinjury

Felt a little defeated today, had to get another PET scan with Radioactive dye. Since my 6th surgery in April, I’ve had swelling in my back and increased bone & breakthrough pain. We are checking for stress fractures from my last surgery.
I didn’t know that 6.5 years after my injury & accident, I would still be searching just an ounce of pain relief😔I’m on a waiting list for a new type of stem cell procedure in my disc.
It just feels hard…
I want to be happy, outgoing, dating, working, getting married, having a social life, experience life’s joys, become a mom, I’m already a fur mom♥️I just don’t have the energy, the pain barely allows me to get through simple tasks each day. How do you make energy allowance for social activities when your symptoms are at an all time high?

For now, I’m going to keep doing whatever I can to find that magic thing that helps reduce my pain. Because I still feel a glimmer of hope that it’s out there 🪄✨

#BackPain #Backinjury #ChronicPain #RheumatoidArthritis #MastCellActivationDisorder #AnkylosingSpondylitis #Intractablepain #Anxiety #SpinalFusion #sacroilitis

I did this sketch last week, does anyone remember the old tv show, Fantasy Island? Mr. Roark is a favorite of mine, especially since the actor Ricardo Montelban, persevered through a back injury. 💙 Anyhoo, I've been watching shows from my childhood for anxiety relief. Hehe. Off to my 1st neurologist appointment of the week! Hoping everyone has as good a day as they can. 🦋 #Backinjury #ChronicPain #ChronicIllness #AnkylosingSpondylitis #BackPain #neckpain #SpinalStenosis #Art #ArtTherapy

I hope everyone is having an ok weekend and are all staying safe and rest 🤍 Wanted to share my sweet girl Poppy’s first birthday with you all 🥳 it was definitely the distraction I needed and she loved her new play tent!! I took a few months off from my back procedures and dr appts which I really needed… I recently started back up again and was told I need a 6th back surgery as certain things have severely worsened. However, I’m going to be trying some other things first including another injection and another outpatient procedure. Lots to start back up again but my pain is too severe to ignore any longer. I had the best time making my Poppy girl smile and have a great birthday 👑🤍Sending lots of love and positive energy to you all!!! #ChronicPain #ChronicIllness #BackPain #Backinjury #RheumatoidArthritis #MastCellActivationDisorder #sciatica #Anxiety #ComplexRegionalPainSyndrome #ChronicFatigue

Wanted to share this beautiful quote with you all! It’s been a while since I’ve posted but always thinking about you all often. Hoping everyone is doing the best they can!! Sending lots of love 💖 #ChronicPain #ChronicIllness #RheumatoidArthritis #MastCellActivationDisorder #BackPain #Backinjury

Thank you so much for everyone who wished me well and sent their love for my back procedure today 🤍🙏🏼 I hope this day has found you as well as possible. I feel so lucky to have so much amazing support and a soft, safe place to land ❤️you all are such a blessing.

Most of us have been on a very long road with our health/illness/pain journeys and can handle a lot. I’ve had 5 spinal fusion/si joint surgeries and today was my 31st outpatient procedure. I was not nervous, anxious or scared for this today. I was quite hopeful and eager for good results.

I can say that aside from my fusion surgeries, this was THE most painful injection/outpatient procedure I’ve ever had‼️I was wailing, flailing, bawling and asked for more sedation (didn’t get it) because felt like complete torture and agonizing pain ❌ after it was done the pain kicked up over a ten (I almost never use a ten) and at this point I was panicked and engulfed by this pain.😢

They left me with a caprisun juice and walked away, couldn’t get anyone to address what was happening. I texted my mom and she contacted the office manager. Then I did get a small IV of a pain med but it didn’t touch the pain, it was that bad. I asked to go home, in the car I had to use my rescue meds and it still didn’t help the pain.

I’m icing and now in bed snuggling with my Poppy girl 🐕I can only pray this result means the dr is in the right place. I remain hopeful but more uneasy about his next treatment plan. I need a long term solution… I can’t keep getting these painful injections with no pain relief. I will recouperate and recalibrate and come up with my next game plan✊🏼I’ve come too far to stop now.

My heart goes out to everyone struggling today or feeling frustrated and exhausted. We’re all in this together ❤️🙏🏼 Thanks so much for listening my mighty friends 🤍 #ChronicPain #BackPain #sciatica #SacroilliacJointPain #spinefracture #FailedBackSurgery #Anxiety #RheumatoidArthritis #MastCellActivationDisorder

Just wanted to remind you that you’ve been through a lot and I’m proud of you! Of how you all keep fighting for your self and your health. Whatever you can do today is enough. You’re enough!! I’m so grateful to this community of special people who make me feel so supported and uplifted ✨💫

Also my Poppy girl 🐕says hi! She’s 5 months old now, will post a new pic soon of us ❤️ Still waiting for my #RadiofrequencyAblation to help my #BackPain but right now it’s a bit brutal🙅🏼‍♀️
Thank you for checking in with me🤍

Hang in there everyone, I know I will be doing my best 🙌🏼🙏🏼 #RheumatoidArthritis #MastCellActivationDisorder #ChronicMigraines #Insomnia #Anxiety #Backinjury #sciatica #DegenerativeDiscDisease #RaynaudsPhenomenon #SacroilliacJointPain #SpinalFusion

Today was another outpatient procedure for my back, number 4 for this year and the last one of 2020 wahooo!!! This time my mom and I brought miss Poppy girl 🐕 with us, so I could see her as soon as I was brought out! 😇 My amazing mama kept her busy for 2.5 hours. Of course I had pain during/after which I expect 70% of the time with these procedures. But my tears turned to smiles as I showed the nurses my little pearl wearing girl!! We matched with pink jackets today 💕 She was such a good girl and loved all the attention she was getting!
I’m hoping I get some relief from this one, my awesome anesthesiologist called me while I was eating dinner to check on me, he’s the best! Sending everyone lots of strength and love this week, Poppy and I are thinking of you all!💕🙏🏼✨😇 #ChronicPain #BackPain #RheumatoidArthritis #ChronicIllness #Anxiety #MastCellActivationDisorder #Migraines #Backinjury possible #ComplexRegionalPainSyndrome #Insomnia
#sciatica #sacroiliacjointdysfunction #SpinalStenosis #MightyPets