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    Community Voices

    Working again

    <p>Working again</p>
    12 people are talking about this
    Community Voices

    How much do you push your body when in an effort to fight for mobility you can’t control the nerve pain or the muscle spacticity and spasms?

    I’m living with chronic intense spine pain with nerve damage and muscle atrophy in my lower body. Just a few weeks ago I was in a wheelchair for eleven days straight and could not walk at all. I haven’t been able to do anything besides the bare basics of caring for myself and my pup. Yes, the bare basics. I’m not in a wheelchair right this minute but I cannot walk without my rollator or walker with my attached cane. It’s been that way for a long time now, years.

    Anyway, I’m trying to walk (via walker) and track my steps, push myself a little more each day.

    The pain, burning and numbness take over my body and I have to stop repeatedly to bend my spine forward and relieve the pain and pressure, ease the burning. It’s horrible and the pain sucks but still, I want my life back and I’m not going down without a whole lot more fighting (again). Yes, I’ve been living with chronic pain my entire adult life, so it’s been an ongoing battle for years.

    The problem I’m having right now and daily is: when I’m pushing for mobility and trying to save my lower body (mid spine to feet) from being permanently paralyzed I’m fighting nerve damage that only relieves with ice for hours (mid to low spine and bum and hips) but muscle spasms that only relieve with heat (legs/feet).

    Just exactly how much muscle spasms/spasticity is too much and how do I know if I’m pushing way too much or just not enough? I’m really not knowing and I know if I don’t keep fighting and just stay in whats comfortable and least painful I won’t be out of the wheelchair very long. Any tips, advice? I welcome them all please. This pain is making me a little bit nuts and I’m using ice and heat at the same time to combat the different parts and symptoms on my lower body. I’m exhausted and frustrated to say the least. #ChronicPain #FailedBackSurgery #Nervedamage #DDD #Osteoarthritis #spinestimulator #migratedleadwire #Exercise #Neuropathy #MuscleWasting #Tremors #numb #tingling #Burning #Spasticity #musclespasms #mobility #Fibromyalgia

    12 people are talking about this
    Community Voices

    Sketch of one of my book characters

    <p>Sketch of one of my book characters</p>
    8 people are talking about this
    Community Voices
    Community Voices

    Another procedure today! Wish me luck 🍀 #ChronicPain #BackPain

    <p>Another procedure today! Wish me luck 🍀 <a class="tm-topic-link mighty-topic" title="Chronic Pain" href="/topic/chronic-pain/" data-id="5b23ce6f00553f33fe98ff5b" data-name="Chronic Pain" aria-label="hashtag Chronic Pain">#ChronicPain</a>  <a class="tm-topic-link mighty-topic" title="Back Pain" href="/topic/back-pain/" data-id="5b23ce6400553f33fe98decc" data-name="Back Pain" aria-label="hashtag Back Pain">#BackPain</a> </p>
    10 people are talking about this
    Community Voices

    The come back

    I found out today that I have a long road of pain ahead of me, possibly it could be. I'm not claiming it but I sure am tired of going back and forth and trying every procedure under the sun. I can't get disability cause a sitting job should do me just fine. I can't believe some things went wrong during the surgery. I wish that I had knew then what I do now. I can't say I'd be in better shape but at least I'd be in peace. #laminectomy #FailedBackSurgery #imtired #imscared

    Community Voices

    I'm tired of the constant pain #FailedBackSurgery

    What do you do when the constant pain & limited movement interferes with your every day life Getting nowhere at the pain clinic, due to insurance company denials for medications. After 8 spinal surgeries, the latest this past November, I feel no better. Hip replacement, bilateral knees with no miniscus. If I kneel down, it feels like kneeling on glass. Both shoulders with torn rotator cuffs...I'm classifying myself as #DegenerativeDiscDisease and #degenerativejointdisease . I hate to feel sorry for myself, but I didn't imagine I would reach this point. Just a sad morning, I guess. I wish I could sleep 8 hours to escape the pain for 1/3 of my day.

    Community Voices

    The face of #Pain

    <p>The face of <a class="tm-topic-link ugc-topic" title="pain" href="/topic/pain/" data-id="5b23cea600553f33fe999848" data-name="pain" aria-label="hashtag pain">#Pain</a></p>
    5 people are talking about this
    Community Voices

    I've been a member here for a few years but have never been that active until last week. I realize this is the best place for me, Facebook and Instagram makes my depression much worse. I'm also realizing I don't know what my true mental health diagnoses are. I know I suffer from #deprrssion and #Anxiety also #PTSD but I KNOW there is more wrong with me. I have state aid insurance (welfare insurance) and I truly believe that I don't get the best care because of it. From my failed spinal surgery and the chronic pain I live with now, to my mental health I really feel I'm at the bottom of the totem pole. Since my daughter passed away in 2015 I have really drastically declined in every way. My brain is so gone I don't believe I'll ever be able to work again. I don't work now and haven't for the past 4 years because I've been fighting to get disability. I don't think I'll ever be able to retain information like I used too. I'm just wondering if anyone else out there on state aid and with lots of different health issues feel like they don't get adequate care. I've been going to therapy on and off since I was 15, I'm 35 now, and nothing ever improves. My physical condition has gotten so bad I barely leave my apartment. Just want to live a lil semi normal I know I'll never be normal again. #Depression #Anxiety #PTSD #ChronicPain #FailedBackSurgery #ChildLoss #ComplicatedGrief #TooYoungForThisNonsense #longlivebribri

    10 people are talking about this
    Community Voices