Sjogren’s is manifesting neurologically for me. Working along with my Chiari Malformation (hind brain herniation), I struggle with peripheral neuropathy, degenerative disc disease, and Tarlov cysts. If you suspect this is happening to you, the info in this article may help.
I was told by the neurosurgeon this week that I need spinal surgery for my scoliosis. It’s progressed in the past 6 years and he’s recommended I have T2-L5 done at a hospital 8 hours away from home. I’ve been in pain management for the last 4 years and tried many solutions to living with the curves and daily pain. I’m told it’ll be harder to recover the longer I wait, but I’m scared to move forward. #MarfanSyndrome #Scoliosis #ChronicPain #Migraines #duralectasia #ChiariMalformation
Even those I hate labelling it's great to know that I've not just been feeling rather crappy and in pain just because!!