Chiari Malformation

Hi, my name is laurajxn66. I've been diagnosed with Chiari malformation , EDS TNXB, POTS, SVT, and hemochromatosis.

#MightyTogether #Migraine #ADHD #ehlers-DanlosSyndrome

Hi, my name is Alegrashields. I'm here because

#MightyTogether #ChiariMalformation

Good morning everyone! what are your plans for this weekend? or self care ideas? just saw this and thought it would be a great reminder for everyone to remember that you and your health are your biggest concerns.I definitely struggle with Saturday plans and feeling required to participate regardless of my spoons sometimes. The main thing is that, any plans, weekend or not never should mean more than your physical and mental health. Happy Saturday warriors!

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#EhlersDanlosSyndrome #Dysautonomia #MastCellActivationDisorder #ChronicIllness #Anxiety #ChiariMalformation #PosturalOrthostaticTachycardiaSyndrome #funny #Gastroparesis #Spoonie #SpoonieProblems

Hi, my name is MIKEMO. I've been diagnosed with Chiari Malformation 1

#MightyTogether #Anxiety #Depression #Migraine #PTSD #RheumatoidArthritis #ChiariMalformation

I’ve been on the rollercoaster ride of what is the unfortunate ugly side of the country’s medical system, months of waiting lists, waiting from referrals from my primary care who will not touch me & authorizations from insurance AND I’M OVER NAVIGATING & ADVOCATING this never ending nightmare. I started this out of nowhere shoulder pain journey in November of 2021 here we are 24 doctors appointments, 12 prescriptions, 2 diagnoses 1 of chronic migraines & 1 of Chiari Malformation 1 - no surgery due to Chiari but there is some nerve damage in my brain which my NEUROSURGEON couldn’t telll me about because he just operates & referred to my neurologist. TAG your it!!! So now what…I sit here and wait in misery for your phone call to tell me when you can “fit me in next” WOOF

Hi, my name is Dezz. I'm here because

#MightyTogether #ADHD #Migraine #PTSD #OCD #Depression #Anxiety #ChiariMalformation

Hi im having a brain MRI this weekend and wanted to know anything i should be prepared for. I’ve had one years ago but this one will be longer i think a hour atleast 😭 im very nervous to say the least my mom has chiari malformation and we think I may have it to #ChiariMalformation #MRI #Advice

Hi, my name is itsbecca. I'm here because I just feel I need to be proactive about my general well-being and need a community and support group.

#MightyTogether #Depression #Anxiety #PTSD #ChiariMalformation #Syringomyelia

#ChiariMalformation