Chiari Malformation

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Fnd

So my neurologist can’t be sure that my chairi malformation isn’t the cause of my weakness down one side of my body (awaiting tests) and he strongly suspects FND. I’ve accepted I’ll have another diagnosis soon but having a really hard time not being able to do most things daily. For days I can’t even function what’s your go too? Can’t seem to concentrate on anything just feel numb #FND #MentalHealth #ChiariMalformation

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I'm new here!

Hi, my name is Chellesblessed. I've been diagnosed with Chiari Malformation and have had the decompression surgery, at 55 years of age. I still have pain and numbness and tingling on the right side of my body, It's like I'm split down the middle, left side normal right side in continuous pain.

#MightyTogether

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Painful Shocks in Eyes?

I’ve been experiencing painful shocks in my left eye along with pain around my eye socket. Sometimes the pain travels to my cheek and mouth. The left side of my eye saggs, face goes numb and throbs with pain that can be felt in the bone. I keep reading about trigeminal neuralgia but don’t see anything about the eye shocks. Does anyone experience this? #TrigeminalNeuralgia #Fibromyalgia #ComplexRegionalPainSyndrome #ChiariMalformation

7 reactions 11 comments
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Doctors - given up

Anyone else completely given up with fighting doctors to be diagnosed? They take one look at my mental health and say my neurological conditions are psychological with no investigation. Think I’ve finally given up. #PTSD #ChiariMalformation #MultipleSclerosis

13 reactions 6 comments