Earlier this year I truly acknowledged how unpredictable FND can be. I finally accepted it's unpredictability, the fact I can't control what the next hour will hold & the adjustments I've made in this new body it took so long to understand.
I accept that this is my life, for however long it needs to be. And I realise now that it is a life I can still live in. Not a limited life, an adjusted one.
Hey everyone, just wanted to say hey, and see how everyone is doing..I know there are good days and bad, but It’s nice to know we can be here for each other and don’t have to listen to anyone say that they don’t know how to help. When all that is wanted is for someone to actually listen, be there, support, and comfort you.… I’m 24, my friends and family normally called me the CEO of goofiness, but as of 3 years ago, they (or what is left of them) call me the queen of chronic illness. Personally I liked the CEO of goofiness a lot better. But I miss that me, ya know? I try to be her.. but the new me always takes over. It’s a lot some days, and others I fight till there is literally nothing left.. when it all started I came up with a new hashtag and even created a Facebook page but I no longer use Facebook because it was a lot on my mental health. The New Normal I called it. Because that’s what this is, there is no… going back.. only forward.. sorry to talk your ears off.. I’ll let you get back to your day. Just know you’re cared for, you’re more than enough, don’t ever let it tell you otherwise… if you’re just entering The New Normal, or you’ve been here a while… thanks for coming.
#thenewnormal #chronicilness #ChronicPain #HypothyroidismUnderactiveThyroidDisease #Endometriosis #PolycysticOvarySyndrome #notalone #ChronicMigraineSyndrome #ChronicFatigue #earlymenopause
People never know how much strength it takes until they have to experience it themselves. Don't let their naive words hurt you and if you can't stop it from hurting a little, at least remember to tell yourself survival takes strength. #amplifiedpainsyndrome #arthritis #Asthma #ChronicFatigueSyndrome #CheckInWithMe #chronicpain #chronicilness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #PosturalOrthostaticTachycardiaSyndrome #RareDisease #SuicidalThoughts
I've been sat here reading a few #articles on here about loneiness and chronic illness, ways to combat it like joining a yoga class (physically impossible) meeting a friend for a coffee what if you only have a few friends and they're always busy. I feel I'm the one always reaching out to do things and I'm the one that's sick for once I'd love a message of lets have a movie day at yours and chill on the sofa with snacks. I feel the more I try the more abandoned I feel, I do have a good family but that's not the same as having q partner or laughing with friends. I'm 32 this year and whilst I'm happy for the #milestones family members and #Friends reach in life each one just reminds me of how time is passing me by and I'm alone 90% of the time. I try my hardest to stay positive but at the end of the day we all need that interaction, comfort etc to #thrive more as humans. I'm just putting mt thoughts out there today as ite a sunny bankholiday in the UK amd o can't help but think of a time I would have been sat out in the sun with friends having drinks and lunch somewhere but instead I'm totally #alone .
#Undiagnosed #chronicilness #Diagnosis
I have a Quest Diagnosis next to me where I live now (recently moved to a new state). If anyone has used this service, how is it? Did you get a test from here? Were you diagnosed after?
Last year my friends graduated high school (unfortunately I failed my exams). A year went by and we decided to meet up again. Last year was really hard for me because multiple chronic illnesses stood in the way of me living.
Don’t get me wrong, I loved to meet them, but it made me also realize how they have a life and I don’t. They have the energy to do things, they don’t have to cancel plans last minute, they are able to study and get a career and I’m just laying in bed thinking if I even will be able to take a shower.
I just sat there, listening. I felt like I shouldn’t have been there in the room because I haven’t experienced anything besides seeing a spider on the ceiling in my room (just kidding). It did really upset me, I was happy for them, but I would have loved to be able to do things I should be able to do as a young adult.
Did you ever experience something similar, if so, how did you deal with it? #chronicilness #reunion
For me, by far the hardest part of chronic illness is that, although I am SWIMMING in diagnoses, I'm still seeking the genuine cause, the underlying "Alpha"-diagnosis, so to speak. I know it will probably be generations before medical science unravels some of our mysteries, but it's so frustrating how many different"lists of symptoms" for different conditions COULD be what I have! #SeekingDiagnosis #DoTheseTestsEVEREnd ? #chronicilness #ChronicPain #ChronicNausea #ChronicallyFedUp
Today I finally shared a photo from a shoot I did with my boyfriend that I've been dying to share. But I was too scared of the potential judgement and how vulnerable it felt
But every time I do share something, it gets a little bit easier.
What's one thing you still want to share with the world?
#chronicilness #Fibromyalgia #feelthefear #AutoimmuneDisorder #Scleroderma
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