Chronic Obstructive Pulmonary Disease (COPD)

Hi, my name is Chronic2. I'm here because, I’m Blessed that God has given me another Beautiful day to experience life. I suffer from decades of migraines too & feel for you. I think a lot more research needs to be done Re: Migraines & Ehlers Danlos. There are 13 different types of: EDS, & there seems to be a lot of the same symptoms listed for both diagnoses. It’s not until more recently that a few good Dr’s have thought outside the box & realized, that when their patient has been diagnosed with Several Symptoms of: Migraines, CSF Leaks out of my nose (3 failed attempts to seal it), TMJD, Fibromyalgia, COPD( never smoked or drank), cardiac issues, Peripheral Vascular Disease, a detached & convoluted large intestine, GERD, Schatzkes Ring, IBS, Carpal & Tarsal Tunnel Syndrome, Arthritis, Double Jointed & hyperextension of joints, neck, shoulders, back, hips, knees, elbows, ankles, hands & feet pain, Arachnoiditis, RLS, & a whole lot of Pain, etc.
I am wondering if there’s anyone with Ehlers that can relate to me? Did you ever have a DNA test done to confirm your Diagnosis? I am 63 now & it’s taken up until now for, not my PCP, but for my Cardiologist to suspect EDS. (I also have SVT, A-Fib., Mobitz, Paroxymal contractions, a bovine chest, & Bicuspid Heart). My Cardiologist recently did a DNA test on me that came up with these Results: an Unknown Significant Variant gene marker called, p.R440H (c.1319G>A) in the COL1A2gene. He told me that he did not know exactly what that means, & said he wanted me to see a Geneticist. When I asked him who he recommends? He said, that he did Not know of any, or where to refer me? I’m Thankful he did the test, but thought to myself? Then why did he know to do the test, if he didn’t know how to Interpret it? I went home & googled, Geneticists near me. My Dr was right And the nearest one that came up is in California!
I happen to live in Illinois. It’s a Long trip from home. Anyone have any ideas on this? Unfortunately, I guess we have to be our own Patient Advocates these days more than ever! It Appears to be an, out of the ordinary box that Drs apparently can make money charging for, but can’t deliver! It’s so frustrating sometimes. Feels like it’s better to leave the box unopened on a shelf! Have to see my Neuro. Dr. for 31 Botox shots to Treat my Shattering Migraine! Thanks for letting me vent! Thank you & have a Wonderful day. Sincerely

#MightyTogether #Migraine #Fibromyalgia

Hi, my name is GwynStone1492. I've been diagnosed with FND, Fibro, osteoarthritis, psoriasis, migraines, osteoporosis, hypothyroidism (post-irradiation hyperthyroidism), asthma, copd, depression, anxiety, ptsd

#MightyTogether #Fibromyalgia #PTSD #Anxiety #Depression #Migraine

Hi, my name is Scratchy. I'm here because I will get surgery in 2,5 weeks to have my right lung removed It has been severely damaged by giant bullea's which are pressing on my heart atm. High risk of tension pneumothorax so they are removing it now, double lobectomy and bullectomy

#MightyTogether #COPD

Hi, my name is Scratchy. I'm here because I will get surgery in 2,5 weeks to have my right lung removed It has been severely damaged by giant bullea's which are pressing on my heart atm. High risk of tension pneumothorax so they are removing it now, double lobectomy and bullectomy

#MightyTogether #COPD

Hi, my name is Armadillo26. I'm here because I want to live more peacefully despite my parents' COPD and lung cancer (My father passed from this).

#MightyTogether

As long as I don't move there's no pain.
I had to go downstairs for 2 packages cuz Pauley was not going to help. By the time I got back to my apartment I was out of breath and wheezing.
My COPD got bad over the last 2 years. Now I've got dulera and a rescue inhaler.
My hips don't hurt like I expected. My tummy doesn't hurt anymore. And I don't have a migraine. But both of my knees are very ouchy. And I've got a mass the size of half of a hot dog under my abdominal wall. It's basically a cyst from a testosterone injection. It really hurts.
I keep thinking I have plans for the weekend but the only thing I can think is I wanted to do a fun charcuterie board and movie night. I need to get grapes.
Next week Saturday is the curiosities and oddities expo. We're going with my QPP. We've gone the last 2 years and it's become something we really look forward to. I'm gonna try to find a really cool necklace and a new shirt. I'm gonna wear my baphomet shirt from last year. I decided I'm gonna wear my puppy gear to the expo. I'll have my partners take cool pictures so I can share.
Of course the week before that I have 5 appointments. I'm gonna really need to unwind and be surrounded by dark macabre trinkets baubles and tchochki.
I've been crying off and on for a few days. So much emotional weight on my shoulders. And I need to talk to someone who understands how scary it is to have so many health issues happening all at once.
I messaged my aunt over the weekend and she replied today. We chatted about health issues. I told her about what I have going on. My mom doesn't tell her about me. And I found out the only way she talks about me is to bitch about what topics we discuss.
#CheckInWithMe

#MultipleSclerosis I formed this group for I did not find any for those living with osteoporosis. I called this new group: "Living with Osteoporosis". The goal for this group is like other groups in that it is a space to discuss any and all difficulties with this condition. There are many people who have it and I am among them. Apparently, my case is severe enough to take medication for it. Who out there has had difficulties with this? If so, what are they?#Anxiety #Arthritis #ChronicFatigueSyndrome #CommonVariableImmuneDeficiency #ComplexRegionalPainSyndrome #CoronaryHeartDisease #CrohnsDisease #CheckInWithMe #CheerMeOn #MightyTogether #MyCondition #MultipleSclerosis #MoreDiseases #ChronicIllness #ChronicIllness #Osteoporosis #Other #ChronicObstructivePulmonaryDisease #Fibromyalgia #Endometriosis #EhlersDanlosSyndrome #UlcerativeColitis #RheumatoidArthritis

Hi, my name is Sumorg. I'm here because I have 3 spinal compression fractures, scoliosis, kyphosis, COPD and anxiety and depression

#MightyTogether #PTSD

Hi, my name is GwynStone. I'm here because I have multiple chronic illnesses including FND, COPD, Fibro, Arthritis and Diabetes. I'm looking for tips, tricks, and support in dealing with living with multiple chronic illnesses.

#MightyTogether

Hi, my name is mari101_2000. I'm here because I think online support is critical. I'm a 48-year-old mom of two. Brittany is 28 and is on the autism spectrum and has PTSD. My son, Tyler, is 24 and diagnosed with bipolar and ADHD. He is unmedicated by choice. He's been sentenced to three years for probation absconding. We don't have a relationship at the moment. I've been through a lot of trauma, I'm either MDD or Bipolar 2, and I don't know why they can't tell the two apart. I have CPTSD, depression, and anxiety. I also have a chronic illness.. I have very bad gastroparesis, and it's really affecting my life. I also have horrible arthritis, fibromyalgia, and back and hip pain. These are the things that I'm struggling with. Brittany had a baby that she'd worked very hard to bring forth. She had Everleigh, and she was a stunner. Five weeks later, she died of SIDS. So we are all grieving her. Also, we lost my mother to Alzheimer's about 6 months later.

Sorry, I just spilled my guts. Hope to make some connections!

#MightyTogether #Anxiety #AutismSpectrumDisorder #Depression #PTSD #Grief #Fibromyalgia #Migraine #Gastroparesis #Arthritis #COPD