Hemiplegic Migraine

#Migraine #HemiplegicMigraine I realized yesterday that I haven't had a migraine with aura since August 23rd, or at least, maybe I took medication once since then, and it worked. I have a lot of unexpected feelings about this.

Anxiety: what did I do that caused a reprieve in my near-constant migraines, and how do I figure out what it is so I can keep doing it?

Awe: I am not just having one good day where I get everywhere I meant to go. I feel restored, energetic, creative, and happy. Like a few weeks without pain have scraped away layers of exhaustion and emotional numbness. I did laundry and remembered to switch it. I helped my daughter organize her drawers. I didn't lie down after dinner; I socialized and took the dog out. I feel like parts of my mind that have been absent since my last reprieve are awake.

Grief: This feels like a peek at who I might have been without migraine.

1 car accident with 1 neck surgery with a damaged vagus nerve…..5 years, 136 tests, lost profession, financial collapse, mental breakdown, unanswered questions, life interrupted, medically educated by necessity, forced into disability.

#MightyTogether #Dysautonomia #HemiplegicMigraine #PosturalOrthostaticTachycardiaSyndrome #LongQTsyndrome #AdrenalInsufficiency #Gastroparesis

Hi, my name is Zebritis. I'm here because I want real answers.

#MightyTogether #Dysautonomia #AuditoryProcessingDisorder #Anxiety #HemiplegicMigraine #Epilepsy #MixedConnectiveTissueDiseaseMCTD

Hi, my name is Scootet1974. I'm here because LONG COVID HAS WRECKED MY WORLD!

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #HemiplegicMigraine

Hi, my name is 14fs37. I'm here because I might suffer from chronic hemiplegic migraine. Except my headaches cause me permanent neurological deficits so I’m still very confused!

#MightyTogether

Hi, my name is Alandwehr. I'm here because

#MightyTogether #HemiplegicMigraine

Hi there! My name is Robbin and I’m new here. I’m wondering if anyone here takes or has taken Lyrica ? And what are your thoughts on it for #HemiplegicMigraine and/or #Fibromyalgia ?
I’m currently in a drug study for fibromyalgia and metformin so I can’t take it until I’m finished with the study. (Pretty sure I got the placebo 🙄) I don’t like taking meds - most affect me strangely and most side effects are things I already have from Fibro - so what’s the point … I was on a drug for my heart (I have a PFO) that was helping with my hemiplegic migraines and Fibro. But have had to get off of it because of a bleeding ulcer, and have had a long and major Fibro episode since. I know we are all different, but I’d love and appreciate hearing how lyrica has helped or not helped.
Thanks so much for having this space to learn, share and question. 💕

I have polarized sunglasses at last to help my chronic migraine # at last. When I’m feeling a little better, I want to get outside in the early spring sunshine and look for spring shoots and flowers. #HemiplegicMigraine

Hi! I joined last night. My migraine is developing from hemiplegic to daily aura w/ hallucinations of clouds and gold lights. Also have ankylosing spondylitis. Then last week I got a positive ANA IFA on my blood work, but no communication from my doc. Needless to say my anxiety/mental health is going through a rollercoaster. Yay.
#HemiplegicMigraine #AnkylosingSpondylitis #Anxiety