iihwarrior

I had a lumbar puncture Friday, and while it was a temporary bandaid, my headaches are getting worse again. My blurring vision has started up again, but I have an appointment with my neuro-ophthalmologist tomorrow, so hopefully that goes well. I also don’t want to jinx it, but I’ve finally got a neurologist appointment next Tuesday with a doctor who treats IIH. We’ve been waiting since March, and I’m very grateful it’s happening.

I think I just feel so lost, and like my treatment plan is so up in the air and wishy-washy that I’m just existing. Everything just takes time, and I hate waiting. I think I could use some words of encouragement, if anyone’s got some to spare.

#CheckInWithMe #wordsofwisdom #encouragement #encouragementiswelcome #IIH #iihwarrior #IH #survivingnotthriving #IdiopathicIntracranialHypertension #IntracranialHypertension #checkin #AdviceWelcome #advicewanted

I colored and was remotely creative for the first time since my diagnosis in March! I’m so happy I’m able to color in this motivational quotes coloring book without making my symptoms worse! Does a coloring book count as a craft in this group? I sure hope so (I’d like to share more pages as I color them)!

#Color #coloring #coloringbooks #AdultColoringBooks #Bekindtoyourself #Bekind #TheMightyCraftRoom #CraftRoom #mightycraft #Crayola #crayolamarkers #IIH #iihwarrior #IdiopathicIntracranialHypertension #IH

I was going to start this off by apologizing for not posting and for not being as active, but something I say to others and that I believe in very strongly, is that health should come first. And that’s what I had to do for the last week. I took some major steps to (hopefully) sending my health down the right path.

As some of y’all know, my pressure headaches and neck and back pain have been increasing for a short while now. They ended up getting so bad that I couldn’t lay down for very long without the pain getting unbearable (this is a normal symptom of a major high pressure headache). So the Thursday before last I was directly admitted to neurosurgery and plans for a shunt was made.

However, the next morning, they came back to me and said I was a candidate for Venus Sinus Stenting, which is much less invasive and could also help me drain csf fluid from my head. So for the next four days they helped manage my pain, prep me for surgery using specific medications, and introduce me to the team that was going to operate on me.

Tuesday late afternoon, the procedure happened on my right side. I honestly can’t remember all the fancy scientific names, but basically they stuck a small metal tube in a vein in my head to hold it more open and to allow more cerebral spinal fluid to be drained.

As of right now, I am home, still recovering, but excited to see how much this can help me in the long run!
💕

#stent #IIH #iihwarrior #IdiopathicIntracranialHypertension #IntracranialHypertension #IH #CheckInWithMe #LifeUpdate #Hospital #hospitalstay #Surgery #Headache #Operation

#iihmemes #IIH #iihwarrior #RareDisease #ChronicIllness #IdiopathicIntracranialHypertension #IntracranialHypertension #csfbuildup

Greatful they know what’s wrong now! #iihmemes #IIH #iihwarrior #CTScan #Meme #funny #RareDisease

Sorry there was no meme yesterday, it was kind of a rough day. I’m counting down the days until my newest specialist doctors appointment, and as I said in another post, the anxiety is high with this one. Anyway, this meme made me laugh, so I hope it does for you too.
#IIH #iihmemes #iihwarrior #RareDisease #doctorsappointment #Meme #funny #DistractMe

#iihmemes #IIH #badbalance #Dizziness #gettingdressedishard #Fatigue #iihwarrior #ChronicFatigue #funny #Meme