Neuropathy - Hereditary

Hi, my name is Beautifulcrazy93. I'm here because
I have about 30 plus diagnosed medical condition Most are not here some are very rare so they say i just need to find people to fell less alone and maybe give some hope maybe find a doctor who’s up for a challenge #MightyTogether #Fibromyalgia #Migraine #PTSD #Anxiety #OCD #EhlersDanlosSyndrome #NeuropathyHereditary #Dysautonomia #Dysphasia #Dysthymia #Depression #Epilepsy #Agoraphobia #PosturalOrthostaticTachycardiaSyndrome #HeartDisease #IrritableBowelSyndromeIBS #IronDeficiencyAnemia

Hi, I found my way here via ChatGPT. Amazing! I’m here because I feel completely invisible. I have suffered chronic pain for the past 2 years. We moved interstate to be in a better environment to help deal with the pain but I feel it’s backfired as I’m unable to meet people. I thought I might be able to get a part time job to make friends but I just can’t. I ride/compete horses and have been reducing the amount of work I have to do for them but even what I have leaves me crippled and in bed by 1pm. Even if I didn’t have the horses I don’t know how I would meet people as I feel like I have nothing to contribute since suffering from the neuropathy. I just need some friends and to be able to feel worthy and mean something in the world.

#MightyTogether #Depression #NeuropathyHereditary

Hi, my name is cdeevers. Hi, I’m Carolyn! I’m a writer, memoirist, and longtime advocate for people navigating hard things—chronic illness, trauma, and complicated relationships.
My own health journey has been anything but straightforward. After decades of misdiagnoses, I finally began piecing together answers about my conditions and how they connected to prolonged stress and trauma. Those experiences shaped not just my health, but also my writing.
I write personal essays, a blog, memoirs, and articles about resilience, faith, and the hidden costs of living through crisis—like my book-in-progress, Knock Knock, Neighbor Tales. My work combines raw honesty, a dash of humor, and a deep belief that our stories can help others feel less alone.
If you’ve ever felt unseen in your health journey or overwhelmed by what life has thrown at you, you’re in the right place. I’d love to connect, share, and learn from one another here.

#MightyTogether #PTSD #LymeDisease #NeuropathyHereditary #MastCellActivationDisorder

Hi, my name is Claytoshi. I'm here because

#MightyTogether #NeuropathyHereditary

Hi, my name is Ljharrison91. I'm here because

#MightyTogether #Fibromyalgia #Bipolar2Disorder #Migraine #EatingDisorder #AnorexiaNervosa #BulimiaNervosa #OrthorexiaNervosa #OCD #Asthma #PTSD #ComplexPTSD #GastroesophagealRefluxDisease #IrritableBowelSyndromeIBS #Gastroparesis #EhlersDanlosSyndrome #MastCellActivationDisorder #PosturalOrthostaticTachycardiaSyndrome #Hypoglycemia #MajorDepressiveDisorder #SocialAnxiety #GeneralizedAnxietyDisorder #AutismSpectrumDisorder #ADHD #Alpha1AntitrypsinDeficiency #ChronicPain #ChronicIllness #RestlessLegsSyndrome #NeuropathyHereditary #TemporomandibularJointDisorders #Bursitis #OccipitalNeuralgia #TrigeminalNeuralgia #ChiariMalformation #Dystonia

Hi, my name is DiamondsintheTrees. I'm here because I’m tired of feeling alone when it comes to my pain.

#MightyTogether #NeuropathyHereditary

Hi, my name is Emotioninmotion1990. I'm here because

#MightyTogether #Anxiety #Depression #PTSD #KidneyDisease #NeuropathyHereditary

Hi, my name is Stacie1873. I'm here because

#MightyTogether #Anxiety #PolycysticOvarySyndromePCOS #Arthritis #NeuropathyHereditary #SleepApnea #Grief #DiabetesType2 #Insomnia

Hi, my name is Jvt4. I'm here because I am in pain and need help

#MightyTogether #NeuropathyHereditary

I wish I was normal, whatever that is. It’s so hard to keep pushing, when your body is telling you to slow down. Your mind is racing, you can’t stop the thoughts. I would be more approachable if I didn’t have resting pain face. I hide it so well that a lot of people don’t know the truth. The truth is, my spine is deteriorating and there’s nothing I can do to make it better. I can take meds, do stretches, but it still feels like my back is broken. Shattered into tiny pieces that make up my spine. There’s no such thing as comfortable when you have a sharp, shooting, gnawing pain that is now making your legs go numb. I’ve told my doctors but they say I’m too young for surgery. I think now is the perfect time, my body is still young enough to heal! I can’t stand up straight, I can’t even stand up to shower. I feel like an Emmy Award Winner with he show I put on day in and day out. The smile on my face that never fades, bc I don’t want my friends and family to leave me alone and to deal with this pain alone. I also don’t want certain people to tell me nothing is wrong, when clearly something isn’t right. I’m hoping for some sleep tonight, and that my pain killers get filled tomorrow. Popping meds like skittles isn’t ideal, but if you have no other solution for me, I will take them until the pain goes away. Thank you Big Pharma for making me a drug addict at the age of 13. I’m now 30 and I know these meds have taken a toll on my health, but there’s only so much I can do on my own. I feel like a burden on those I love. I feel like a liar every time someone asks how I’m doing. But I know you don’t care enough to know the whole story. I let you know what I want you to know and nothing further.