I am so sick of healthcare providers blowing off my concerns and not explaining things to me. When I had COVID, no one thought it mattered that my oxygen levels were dropping at home when I was moving around because they were fine at the clinic and hospital while I sat there. No one will tell me why I supposedly don't need to be concerned that my heart was enlarged on my last CT. And the doctor I saw after the hospital because I couldn't get in to see my primary, blew off all my concerns and told me that either all the issues were caused by dehydration or that it wasn't an issue at all. Didn't matter that my labs showed I was not dehydrated, and that it's not normal to have a pulse over 120 for 8+ hours straight. And the acting like I'm exaggerating the memory and cognitive issues I've had since getting COVID is driving me nuts too. Plus, I've been dealing with this stuff for years because I usually don't wheeze when I have an asthma attack so most doctors assume that because there's no wheezing I'm fine and just making it up. Or having to explain to doctors that I am immunocompromised so that infection they think is going to clear up on its own definitely won't.
So still having a ton of issues that need to be handled. But I don't have anyone to go to appointments with me, and I don't have the energy to fight with all these doctors who don't know me and won't listen to me/take me seriously. So now my friends and coworkers (and probably soon my family) are on my case because I am putting my foot down and refusing to be seen by any healthcare provider who doesn't know me. At this point it means I have to wait longer to get seen to address all this stuff, but I honestly would rather wait and risk something happening while I wait so I can see a healthcare providers who knows me and my history and will listen to me and explain things well. So have to wait almost a month to see my primary, but I did at least let them put me on the wait list in case there's a cancelation sooner...I think the scheduler thought I was nuts for taking that appointment since heart issues are one reason I need to be seen but I'm over it.
I finally told someone that I am so fed up with this crap, that this is a hill I'm willing to die on. I shouldn't have to fight to be believed and taken seriously as a patient. #COVID #SinusTachycardia #Hypogammaglobulinemia