Talk about it.
Hello. I suffer with Syringomyelia. I used to hide the fact I have this disease, but recently I've decided I'm going to talk about it with anyone and everyone who will listen. Lets educate those that have never heard of Syringomyelia and Chiari. Lets get people thinking about the fact that just because you can't necessarily see this disease doesn't mean it doesn't exist and cause pain and suffering. Lets hold the health care entities accountable and insist they educate themselves fully by reading all of the research done regarding Syringomyelia and Chiari before they even consider disregarding the pain, trauma and suffering of these patients and their loved ones!