tics

Hi I’m new here…. I have #Autism #OCD #ADHD #PanicDisorder #GeneralizedAnxietyDisorder #Depression #Trauma #Agoraphobia #RheumatoidArthritis #Fibromyalgia #tics

Does it ever just hit you out of left field that feeling "oh **** I am actually way worse then I realized!" Like I know I have been sick and my abilities are limited. It just hits me at random times how bad it actually is.

So like today I had to do an assessment for my Physical therapist and for an upcoming appointment with a new Dr and say how well I was doing balance wise and ability wise. The answers were not great. Along with getting some positive test results back that my Dr got back and scheduled an appointment that night so somethings up...

Then I started thinking about if I could get a job cus my parents where joking about my dad working at the new hobby lobby that just opened and realized I physically couldn't handle working at all maybe 2 hours a week max. No job would hire me at that and I would require acomidations so no way am I qualified for anything. As a young adult you want to work and do things on your own and realizing you can't because your body limits you so much is frustrating.

None of this information is new to me on the contrary I have been dealing with the decline of my independence since I was 17 (3 years now). It just hits me at different times and I go "oh ****" when you go from working full time and graduating high-school to being in a wheelchair struggling to speak or do basic tasks and no one knows why. The grief of the life you lost just hits at random moments. Most days I am ok and try to stick to my homework of pt, ot, cognitive, and speech therapy and if I have the energy I work on my comics or art if I don't, I don't and I go rest. I forget how much I have lost and how bad my body is.

Even with the diagnosises I have done explain all my symptoms and what is going on. The continuation of decline is frustrating. The constant questioning of if today will actually be better then the last but telling myself that tomorrow might be.

But man are those "oh ****" moments hard.

#oh **** #tics #nurologicaldisorders #FunctionalNeurologicalDisorder #Tourettes #dyskinesia #Dystonia

It's finally starting to warm up outside! Seeds are sprouting flowers are budding and blooming and leaves are on trees! The sun is shining! It's all so beautiful! Hope you all get to enjoy some sunshine and smiles this week!

What are some of your favorite things to do in the sunshine?

The artist loves to watch things grow as she draws or crotchets.

Go to Ticed Off Adventures websites for more comics and characters. Link below

kwillow92.wixsite.com/ticedoffadventures/comics

##ticedoffadventures #TouretteSyndrome #TicDisorders #tics #FunctionalNeurologicalDisorder #sunshine #Comic #Sensoryfriendly

In my family, we have experience with a variety of conditions. My first-born has a series of mental health diagnoses. My second-born has cancer. And, I have my own experience dealing with Lyme Disease and anxiety.

As a rule, I do not compare between my children. I equally do not want to compare the pain and hardship of people battling different diseases. Instead, I want to acknowledge that cancer, mental illness, and other lesser known medical conditions all come with loads of pain, suffering, and hardship.

In my experience, the hardship is distributed differently. I think of one like a wrecking ball and the other as a heavy, unending rope.

The Wrecking Ball: Cancer hits like a wrecking ball, stopping you in your tracks. If you are a "lucky" cancer patient, you might avoid being taken out entirely by its forceful swing. To all those battling cancer or caring for a loved one with cancer, I am with you. Helping my child navigate this disease has been like nothing else I've experienced.

The Rope: Mental illness is a heavy load of rope that stretches out forever. You drag this rope with you every. where. you. go. You may trip over it, be slowed by its weight, get tangled up in its grips - or worse.

As a parent, I’m tired. But, I know that I am not alone. I have met a small handful of parents who are going through similar challenges. And that makes all the difference. Yet, there is one aspect that I was not prepared for.

While I never compare my children or their struggles, children often compare themselves to others. It has been hard to see my first-born realize that society does not fully understand the pain and hardship of someone battling mental illness. Our first-born watches our second-born receive card after card, gift after gift, emblazoned with: Brave, Strong, Heroic, Amazing, and more. All the while, our first-born wakes up to her own (invisible?) battles each morning, drags them to school with her, and tries to put them to bed each night.

As parents, we work for our first-born to be seen/understood by insurers, school staff, family members, friends, and even our medical providers. I hope that we can teach our society more about these invisible and lesser-known struggles so that those who come next get more support, less judgment, and less assumptions.

I truly hope that this post lifts up all who are struggling and does not imply that one battle is harder or worse than another. Cancer is hard. Mental illness is hard. All deserve support, compassion, and empathy.

To those battling cancer, mental illness, or a lesser known disease, you are all [insert word from inspirational greeting card]. And, not always because you want to be. Sometimes, just because you have to be.

#Cancer #Leukemia #AcuteLymphoblasticLeukemia #OCD #ObsessiveCompulsiveDisorder #TouretteSyndrome #tics #Anxiety #PANSPANDAS #LymeDisease

Everyday is pain and even worse than that is that the people around me seem to not even notice or get mad at me for “messing up their plans”. However, no one ever considers how I feel, as the person going through it. For the last 5 years I have felt like a shell of a person and a burden. It hurts when you can’t remember your own name or anything, but the person you remember yells at you and makes you feel worse. You know, as of it wasn’t hard enough to not know who you are or where you are. I want to be a survivor and not a victim, but everytime I get better, I just start experiencing new symptoms. I have dealt with, leg weakness, ataxia, hand locking, tics, seizures, and now amnesia….yet there’s nothing my neurologist can do for me. I feel so powerless…I feel like no one cares about me and all I do is suffer. I don’t usually just rant like this, so I apologize I just need to get this off my chest, so I can cope in a healthy way. Thanks for listening! #FunctionalNeurologicalDisorder #Depression #PsychogenicNonepilepticSeizures #tics #Anxiety #RareDisease #MightyTogether

Hi all. I have made a number of posts and even one article where I reference Autistic self diagnosis. For some reason I feel guilty about diagnosing myself when I have so many other 'official' diagnoses... But I feel it fits after extensive research, as a neurotype for me. I may pursue an official diagnosis in the future when I can financially, but in the meantime, I feel I am Autistic. Some may argue that this isn't a thing, while many (the majority) I've seen in the ND community seem to think self-diagnosis is valid in such cases, especially AFAB individuals such as myself.

I am learning to accept and love myself.... and being neurodivergent is a part of that. Being autistic is a part of that. AND accepting and processing and coming to terms with complex trauma is a part of that. I do wonder if my being neurodivergent, such as having ADHD, NVLD, Autism... made me more susceptible or vulnerable to the traumas I endured. Regardless, I am getting stronger each day, and self-acceptance is the goal. If claiming an Autistic identity is going to help get me there, I think that's okay. I hope to get an official diagnosis eventually, but for the time being this is the case (note; I have been diagnosed with many mental illnesses, ADHD, nonverbal LD, Dyscalculia, etc)

How do YOU implement self-acceptance?

I am journaling to my inner child, allowing myself to stim and 'act neurodivergent' (things I have typically masked or suppressed) and just give my inner child the hugs and comfort she needs and craves so that she knows she is far from alone... that I love her, and working on loving me too

#Neurodiversity #Autism #ADHD #Anxiety #ObsessiveCompulsiveDisorder #SensoryProcessingDisorder #BipolarDisorder #PTSD #BorderlinePersonalityDisorder #EatingDisorders #MentalHealth #Dyscalculia #Dyspraxia #nvld #tics