I was laying down and I went itch my nose..
I had a Movement Attack.
Daily, spastic episodes; My whole body Being twisted in all kinds of directions, stuck in positions (like a bridge pose .. for 10 minutes), chorrea, tremors: varying from minutes to up to over an hour. this is my life now. Has been for a year. It is times as these that induce my disdain for what I can’t control and making socialization sometimes a very awkward thing. Not to mention - my very complex relationship with my bed. I go a whole night, weekly, without sleep due to my brain misfiring when I’m not focused on something, relaxing, or resting.
Some days are so bad all I do is: Lay down to rest cause I’m in pain, have a Movement Attack, wait for it to settle enough to put on clothes, shoes, etc.., walk for at least a mile, stretch, lay down again ( cause I’m so fatigued and in so much pain).... Repeat.
There is no medication to quell these movements. There is no cure for this affliction. The only salve for quieting my movements is bi - lateral motion (normally going for a walk) .. which is in direct conflict with my self care for my chronic pain ( DDD in Cervical and Lumbar Regions, No cartridge left in my L4 & L5 Lancets, both hips will need to be replaced within the next 10 years. )
The aversion from passing by someone on the street because I am moving and making facial expressions that are not normal... it’s palatable.
Regardless, this is a wish for everyone to keep on being courageous and remembering that change is our only constant and we will get through it because we can. And have. #CheckInWithMe