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Community Voices

Scan Weight Loss Products

Some old family friends are selling scam pyramid scheme weight loss products. One their ads actually had the audacity to claim that using their product could help an E.D. , when in fact we know they make it worse. Taking umbrage at their continuing outrageous claims, I responded to one of their FB posts. So now, my husband is mad at me. I don’t know if I was wrong or right. But I do know that I feel better. Thoughts ?
#EatingDisorders #Anorexia #Bulimia

2 people are talking about this
Community Voices

Stigmas surrounding eating disorders makes it even harder for people to heal.

It took me a while to realize that my schedule and daily plans all evolved around how many calories I was eating/drinking, and that realization was a bit concerning. When 'making progress' meant I was now able to go out and eat in a restaurant or drink outside with my friends, that's when I knew something was off: I was struggling with a problem I couldn't identify and I had no idea why or how I ended up like that.

Some behaviors such as obsessively counting calories every day by tracking each food and its macros (and feeling anxious if you don't), avoiding social situations not to drink too many calories or eat "junk food", eating the same every day and not being able to bear with changes (having your 'safe food/safe products), weighting both yourself and your food every day or multiple times a week, these are all symptoms of an eating disorder (sidenote: I do not intend to diagnose anyone, it's just for context).

When we think of 'eating disorder', most of us have a certain idea of how someone struggling with it might look like: most of the times, it's either the very thin person or the very heavy one, no in-between. Although these characteristics might be true in many scenarios, they are absolutely not the only ones. Anybody can struggle with one, regardless of your weight, size and shape, and this is something I wasn't aware of, which is exactly what invalidated my daily struggle. I didn't look like someone struggling with an eating disorder or how they portray it on the media, so nobody could really tell something was wrong with my behavior, not even myself!

This is a reminder that if you feel that you're anxious all the time about what you're going to eat next, if food worries you too much and you feel like your life might be changing or even depending on it, if you can't stop thinking about it, or if you're constantly body checking, please ask for help or talk about it. I know it's hard to do so, specially with these stigmas or people trying to tell you "you look healthier now", and it might be even harder to share it if it's something you're not sure of (undiagnosed or mild symptoms). My inbox is open to chat if you feel like you're ready to share, and so is the comment section so we can all support each other. Stay strong!

#EatingDisorders #Anxiety #Depression #CheckInWithMe #Cheermeup #BorderlinePersonalityDisorder #AnorexiaNervosa #Bulimia #BingeEatingDisorder

4 people are talking about this
Community Voices

Surviving an eating disorder

Did you know that anorexia is one of the deadliest mental illnesses? Eating disorders are serious mental illnesses yet we barely ever hear about them. I don't think there is enough awareness or education surrounding eating disorders which is why I am so thankful for today's podcast guest. Suz Carpenter struggled with Bulimia most of her life. She was so ashamed that she kept it a secret even from her husband. It wasn't until someone asked her a profound question that she knew she needed to get help and change her life.

Listen to today's episode to learn more about eating disorders and Suz's powerful story of courage and hope.


#BulimiaNervosa #Bulimia #EatingDisorders #EatingDisorder #podcastepisode #MentalHealthAwareness #MentalIllness #MentalHealth

Adele Espy

How My Ehlers-Danlos Syndrome Contributed to My Eating Disorder

Imagine this… You are a young adult, forming your identity in the world, and suddenly you become very sick — seemingly out of the blue. You cannot eat or drink without becoming very nauseous and having extreme gastrointestinal (GI) pain, and sometimes you vomit for long periods of time. Imagine that you have other pain as well. Your joints ache, and your shoulders, hips, knees, elbows, neck, back, fingers, toes, wrists, and ankles all dislocate or subluxate, causing debilitating pain. Imagine that you cannot stand up without blacking out. You get the feeling of the world closing in on you whenever you move from sitting to standing, and walking any distance becomes a workout. Imagine that you have allergy-like reactions to scents, soaps, materials, medications, and foods — sometimes seemingly for no reason. Allergy tests suggest you’re not allergic to whatever your body thinks is an enemy. You’re never sure what will cause a reaction and when it’ll happen. Imagine that you are so fatigued that you can’t get out of bed for months. You aren’t just tired — you are deeply exhausted to the point where your bones hurt, your chest feels like cement, and your arms and legs feel as heavy as lead. Imagine going to the emergency room for the tenth time in two months with all of these symptoms and being told doctors don’t know what’s wrong once again. No doctor you’ve seen knows why your symptoms are happening. I’ve lived like this for almost 13 years without answers. “Could it all be in your head?” doctors ask. Now imagine trying to function in the world as a young adult with all of this happening inside of your body. You still have to work, but you can’t stay awake for a full shift, so you have to quit your job. You haven’t been able to eat in weeks, and you faint regularly, so you can’t drive anywhere safely. You can have an allergic reaction or a vomiting spell anywhere you are — and at random — so you can’t socialize or leave your house without carrying around a bag. You have to take so many medications to have a bowel movement that you can’t leave your toilet for longer than 15 minutes. You are dehydrated too, so you’re really grumpy and everything is hard. Life is hard. This is my life with Ehlers-Danlos Syndrome (EDS) . Ehlers-Danlos Syndrome is a genetic condition that causes the body to make faulty collagen — the connective tissue that makes up our body’s structure. EDS can cause gastrointestinal disorders, like gastroparesis , colonic inertia , chronic constipation, gastroesophageal reflux disease (GERD) , involuntary vomiting, paralysis of the esophagus, stomach, intestines, and colon, and distention and bloating. EDS can also cause dysautonomia — dysregulation of the autonomic nervous system that can result in fainting , feeling dizzy, temperature dysregulation, chronic fatigue, exercise intolerance, and blood pooling in the lower legs. Some of the most common dysautonomia diagnoses are postural orthostatic tachycardia syndrome (POTS) , orthostatic intolerance, and neurocardiogenic syncope . EDS may cause mast cell activation syndrome too, which is when the mast cells in the body attack random substances as if you’re allergic to those things. This can cause anaphylaxis , rashes, trouble breathing, swelling, welts, hives, redness, facial flushing, tingling, and immune system responses. It may cause people to be hospitalized. EDS can also cause many neurological conditions, including spinal tethering, which may cause weakness and tingling in the lower extremities as well as constipation and bladder incontinence. It can also cause  C hiari malformation and craniocervical instability — often-painful conditions affecting the neck and skull. Ehlers-Danlos syndrome may involve cerebral spinal fluid leaks, which may cause painful migraines and headaches. It’s no wonder patients with EDS sometimes develop eating disorders , such as anorexia or bulimia, as a result of these difficult symptoms. Not only does an EDS patient often lose their healthy lifestyle and identity, but they also often are in agony and may be afraid to put anything in their mouth. Personally, I never struggled with food before I became sick. I was able to eat and defecate just fine. I was even an athlete trying for the Olympics. But when I became ill, I lost my career as a skier, I lost my friends and teammates, I lost my identity as an athlete, and I lost the little joys in life because I felt so miserable all the time. The stress of my EDS caused me to restrict my food intake during the day so I could be present with people and not be stuck hugging the toilet. At night, I would allow myself to eat whatever I wanted because I knew it was going to make me sick anyway, I missed food, and I was hungry. I’ve been to inpatient and residential treatment centers for my eating disorder 13 times, but I’m not recovered yet. So many patients with EDS are “repeat admissions” at eating disorder treatment centers because treatment often doesn’t work for those of us whose gastrointestinal systems are paralyzed. With the right care, though, many patients fully recover fully from their eating disorder s — even if they have to be tube-fed. Every single time I was discharged from eating disorder treatment, I relapsed because I was no longer being force-fed. I couldn’t tolerate increasing the pain I live with even more by forcing food into my body. The treatment centers downplayed the role my EDS played in my eating disorder , saying I would no longer have GI issues once I was at a healthy weight. But that’s never been my experience. I’ve never gotten any relief from what treatment centers tell me to do. I got relief from switching from eating food to total parenteral nutrition (TPN), though. Total parenteral nutrition is intravenous nutrition given through a port in the chest. It doesn’t use the GI system. My GI system is non-functioning, so this is how I am fed. It is an option for when your GI system is shut down. I’m not surprised I have an eating disorder with all of these symptoms. The gastrointestinal distress alone causes me to have a challenging relationship with food. If you have EDS and an eating disorder, before another doctor dismisses this very real genetic disorder that you are born with and shames you for having an eating disorder , remind yourself that you are not “bad” for struggling with life. You are a warrior for living daily life if you experience all this pain. And please know I understand why you might develop an eating disorder . Most of my friends have EDS and are in recovery from eating disorders . We stay in touch because it’s healing to have a companion who truly understands what it’s like to live life with these conditions. I’m personally grateful for my friends who have EDS and are recovering from eating disorders because I don’t even have to say anything for them to know my struggles — and for me to know theirs. I just wish we all lived closer — after all, there are so few of us that we are spread around the world. Some of us see our eating disorder s improve when our gastrointestinal and EDS symptoms are tended to (usually with medications, feeding tubes, central lines, and ostomies). But many times, once the eating disorder has “set up camp,” it’s a beast to fight. After living in a state of starvation for so many years, it can be hard to know what is normal. There are some amazing providers in the United States who specialize in EDS , and I am lucky to have one as a doctor. Many of these physicians have a genuine belief in their patients’ experiences. When treatment centers would question my intentions around food and doubt my every symptom, these doctors actually listened to me and took my word as the truth. When my intestines were shutting down, I wasn’t blamed for it like I previously had been in eating disorder treatment. Instead, I was switched to a different form of nutrition that didn’t require my gut. Being believed has made all the difference in my life. I still struggle with all the same symptoms, but I am not alone any longer. I have friends who understand me on a personal level, and I have doctors who relate to me both scientifically and from experience. I have help — real help. I wish that every person struggling with EDS and eating disorders could have help like this.

Community Voices
Community Voices

Life is good.

Why can’t I feel it?
Life is good.
But I’m sad.
I’m depressed.
Everything is
too much.

I love my partner so much. He is everything what I never knew someone could be. He shows me all the kindness and patience I never received.
But here I am.
Being so deeply grateful.

Wanting to end everything as I can’t cope with myself. #Depression #CheckInWithMe #Bulimia #Misophonia #isitadhd

Community Voices

How is it Possible to be SO TIRED?

I am so SO SOOOO exhausted. There has to be another word for fatigued, & whatever word that is, I am that. I want to cry because I am so tired, but I am too tired to cry. I try to do everything right, as far as going to bed at decent times, not drinking too much caffeine, exercising in the mornings, etc. When that doesn’t work I try the opposite (mountains of caffeine). It’s so upsetting. I sit down to do schoolwork & I can’t keep my eyes open. My boyfriend has a day off work, & I can’t stay awake to spend it with him. I have the bare amount of energy to fake it through my motherly tasks, & keep my boys from asking questions, but inside I feel miserable. My body aches, & all I want to do is sleep. Is it the medication? The bulimia? My period? Depression? Another illness? The anxiety over it builds up and my mood tanks. I can’t focus on anything. What the hell is going on here?

#Bipolar1Disorder #GeneralizedAnxietyDisorder #Bulimia

32 people are talking about this
Community Voices

Ending the Mental Health Stigma in Society

<p>Ending the <a href="https://themighty.com/topic/mental-health/?label=Mental Health" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce5800553f33fe98c3a3" data-name="Mental Health" title="Mental Health" target="_blank">Mental Health</a> Stigma in Society</p>
6 people are talking about this
Community Voices

Pls help- Spread word about video Types of Mental Disorders

<p>Pls help- Spread word about video Types of Mental Disorders</p>
2 people are talking about this
Community Voices

Pls help- Spread word about video Types of Mental Disorders

It would mean a lot to me if you were to support my blog on YouTube by watching the video, possibly liking it, commenting on it or potentially subscribing to my channel.

I worked a VERY long time on this video and did so because there really isn't anything on the internet that includes all the mental disorders.

In addition to watching it yourself, please share it with your friends and family or anyone you know who would like to know more about mental illness.

I am especially trying to reach out to educators (teachers to show students or professors teaching our future psychiatrists.   It is a very valuable resource.

Thanks so much!

Types of Mental Disorders

#mentalhealth #MentalIllness #mentalhealthadvocate #mentalhealthblogger #mentalhealthmatters #MentalIllnessAwareness #Schizophrenia #personalitydisorder #PTSD #OCD #Depression #BipolarDisorder #eatingdisorderawareness #Anorexia #Bulimia #ADHD #Selfharm #Suicide #Addiction #Alcoholism #Selfharm #Anxiety #PanicAttack k

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