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My little mascot…

Last night I really struggled to get some sleep. On Friday, while walking from a shop to a taxi, I lifted my left leg to take a step and I felt a twinge in my lower back. Then, when I went to lift my right leg to do the same, I nearly crumpled to the floor as an intense cramp went through the entire of my lower back. I managed to hobble my way to the taxi and got myself home.

I’ve been using heat pads and an anti-inflammatory gel and it’s given very little relief, but I persevered. Then, last night at around midnight I had a POTS episode whilst I was on my way to the bathroom before bed. I fainted and hit the floor hard, according to my mum. I’m just glad I wasn’t conscious when I hit the floor because I can only imagine the pain I would’ve felt.

After the episode, I really struggled to get up, get to the bathroom and get to bed. But I managed it. I took extra painkillers but I just could not get comfortable. I tried lying on my side with a pillow between my knees, I tried lying on my back with a cushion under the curve of my spine. Nothing was working. Eventually, I gave up and pulled out my laptop to do some more notes on my novel.

As usual, Loki was sticking to my side. Like he normally does when I’m unwell or in pain. He came up for lots of cuddles and fusses. Until he settled behind my fan, and slowly crawled up until his head was peeking at me from behind the screen. He looked so cute, I had to take a photo. My little mascot. Somehow… He always makes me feel better. And I feel like he really does love me back.

Anyway, I spent the night just tapping away on my laptop, listening to quiet music while I made my notes and tweaks. I just wanted to show you all how much of a good boy he is. Don’t worry - he was given lots of treats and belly rubs.

#chronicillnesswarrior #ChronicPain #POTS #AutonomicDysfunction #EhlersDanlosSyndrome #EDS #PosturalOrthostaticTachycardiaSyndrome #Jointpain #Fainting #BackPain #cramps #Pain #InterstitialCystitis #BPD #NAFLD #LiverDisease #FattyLiverDisease #Diabetes #Migraines #Cats #Animals #TherapyPet #TherapyAnimal #therapycat

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Foot cramps

#cramps #musclespasm #Sleep

I’m new here. I don’t have an official hEDS diagnosis, but I have three specialists who believe I have it. I don’t care if it’s diagnosed, as long as I get appropriate treatment.

Every night I have several painful cramps in my feet. They start when I relax and try to go to sleep, which makes me have trouble relaxing. I tried muscle relaxers and tonic water, as per doctor, but it doesn’t help. I just had an “aha” moment: maybe these spasms are caused by subluxations.

Has anyone else had this problem, and has any strategy to ameliorate the symptoms worked?

4 reactions 5 comments

I feel weird...

So, I have quite a few chronic health conditions, but the two that give me the most pain are Ehler's Danlos Syndrome and Interstitial Cystitis.

As a result of this, I live in pain every day of my life. But I have good days and bad days. I have flares.

Today, strangely, is a very good pain day. It's nowhere near as far as it usually is. If I were to put it on a scale with one being the lowest and ten being the absolute worst... I'd give it a 3. On the average day, I tend to be around 5 or 6. So being feeling like a 3 is... Weird.

I'm so used to the level of pain I'm usually at. But today I feel so strange. It feels like something isn't quite right and it honestly makes me feel very nervous. And I have no idea why. I feel ridiculous.

Does anyone else feel like this when their pain is better than usual? I feel like an idiot.

#chronicillnesswarrior #ChronicPain #POTS #EDS #EhlersDanlos #posturalorthostatictachycardia #InterstitialCystitis #BladderPain #Jointpain #IBS #cramps #NAFLD #LiverDisease #Depression #Anxiety #BPD #Weird

26 reactions 15 comments

Stomach issues..

My whole gut is sensitive right now. Lower right and left. My upper stomach feels like a pit. It hurts to pee, i know theres no infection. They've found no blockages, no ulcers, nothing. Just slow transit and ibs. Taking more omeprazole doesn't help much.

It's just some type of flare, but im drained.

Oh and I might have oral thrush.

Still trying to keep a good face when it hurts

But thinking about donating my body to science, seriously

#IBS #ChronicPain #ChronicIllness #CheckInWithMe #CheerMeOn #constipatio n #cramps #indigestion #GERD #Heartburn #Stomach #Fatigue #Undiagnosed #RareDisease #MentalHealth #PeripheralNeuropathy #Migraine #FODMAP #diet #Pain

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Preventing Hand Pain by Writing with Compression Gloves

As a writer, I am nothing without my hands. Regardless if I am using a keyboard or writing with a pen, I need my hands to write to the best of my ability. Unfortunately, many people throughout their lives, including me, begin to feel physical pain in their hands, limiting how much time they can write comfortably.

In order to prevent these aches — either from a physical injury or pain from swollen joints — compression gloves have been proven to be a great help for me and others with hands that ache and cramp. They are an affordable, non-surgical option that can be used not only when I am writing, but for any everyday activity. Preventing these pains that make day-to-day life a challenge will help you live a happy, healthy life.

#compression #Arthritis #CarpalTunnelSyndrome #cramps

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Catameninal Epilepsy #FlareUps #cramps #episodes #heatingpad #Advice

So I was diagnosed with catamenial epilepsy three years ago after having seizure like episodes around my period. However, I wanted to know if anyone else had severe pain and partial blackouts during this time as well?

I’d have these flare ups ( light/food sensitivities , joint pain and GERD) that are so frequent in between it worries me sometimes.

If anyone with catamenial epilepsy has these symptoms too please like this or comment so I know I’m not alone.

#CatamenialSeizures #Jointpain #Photosensitive #Migraine #foodsensitivies #Periods #help


Having a bad health day .. #Pain #cramps #porcelain throne #Work #Care #cowdens

My lower back aches with the pain radiating down my legs. I’m having stomach cramps that keep me tied to the porcelain throne.. I’m sweaty and clammy from the yuckiness.. I am blessed that my PCP took one look at me (telehealth) and wrote me out till Sunday.. nonetheless I’m a miserable mess.. I need to pick up the littles from school .. I wonder if I’ll make it off the toilet long enough!

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Periods suck!!

So, does anyone know how to get rid or even lesser the cramps that comes with periods? Mines a normal cycle, 28 days. My actual bleeding is only 4 days. First day not bad, barely bleeding. Second day is heavy, and a lot of cramping. Third day is cramping, and half heavy and half light. Fourth day, I'm pretty much done. #periodssuck #Period #cramps

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Not as crabby in person #recovering #overwork #cramps #scar

I’m a little over a month post-op. A week post biopsy (another body part) I’m still so not at baseline. I feel like I’m fighting through jello to get through the day. My scars kill, my stomach hurts, my whole self is sore.. I have no patience to still be so far off my game(it’s not like on my game is that hot)


Fibromyalgia + PMS = Nightmare

Does anyone else have the absolute worst time while they're PMSing. I have fibromyalgia and I take medical marijuana to get through everyday, but when I'm about to come on my period, everything feels 1000x worse, almost sharp stabbing pains and hormone influxes so bad you would think I'm possessed. I just want to not feel alone right now. #Fibromyalgia #WomensHealth #PMS #cramps