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    At Home

    I'm mostly homebound. (Is that a bad word? I don't care. It adequately describes my daily life.) But I can get out sometimes when my pain lets me. I've has a prescription at the pharmacy for a few days now that I haven't been able to get. I haven't been able to get it, and my wife has needed to work late. I know they can deliver it, so I'll probably need to go that route. Anyway...I was hopeful to get there today but woke up in high pain. Maybe it'll come down as the day goes on. We'll see. What do you do when you need something that you're not able to get in a timely manner? #ChronicIllness #Medicine #pharmacy #ChronicPain

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    My Invisible Illness

    I would like to open up about my invisible illness. I first realized there was something wrong about six years ago when i came to New Zealand in couple of months I got really sick had this persistent pain in my body and I kept getting this shooting pain from my neck to lower back. My pain became more widespread, more frequent, and more intense when I was at university.

    I went to several doctors and specialists had several exams for past 6 years finally I was diagnosed in 2022. The neurologist gave my invisible illness a name Fibromyalgia. I was finally relived they found what actually my illness is however it is a chronic illness which is lifelong and has no cure and also accompanied by chronic fatigue and 100 other symptoms.

    Living with fibromyalgia means living with a chronic pain condition that greatly influences daily life. I feel pain all of the time and this affects my ability to do day-to-day tasks.Every task I choose to do has a trade-off with another. For example, if I choose to cook something, doing the laundry becomes more difficult.

    As soon as i was diagnosed,I was forced to slow down all my activities both in personal and professional life it had gotten so worse that full right side of my body from neck to feet was in so much pain i could barely move, close my fist or hold a cup or grab the spoon to cook or eat.

    Hence i had to make so many changes in my life to gain back strength and mobility slowly back to my body.I had to start taking different medications and therapies with many trials until my doctor found what worked better for me, many meds I was on, messed with my sleeping pattern made me feel nauseous and dizzy whole day and others messed with my stomach lining. I tried to work out because I felt that staying active changing my diet to vegetarian would help me sadly it worsened my symptoms even more. The most challenging aspect of fibro, for me, would be the fatigue, since it prevents me from doing a lot.

    Unfortunately, there are not too many medical experts in New Zealand who have done research to understand what I have, and how it affects my daily life. My husband is my number one supporter and he helps me with my stress which is a trigger to pain, but there are also those who don’t understand or care to, so I just distanced myself from those people. I will continue to remove such people from my life, whether blood related or not, if you are not concerned about my wellbeing then I don’t need to have you in my already small circle.

    In the last six years there has never been a day my body was without pain. I dont even know how it feels to be without pain anymore. I can’t be on meds 24*7 so i try to get as much rest as possible. As the meds have other side effects which causes other health issues.Honestly, i have tried all the pain killers in the world none of those have ever made my pain go even 20% less . There are times when I feel like nothing works and then i started to research and study on this illness myself.

    With my findings and study for months i found out that lifestyle management is the only solution with people who have chromic illness. Since western medicine doesn’t have any cure i studied Ayurveda and gain knowledge around it and observed myself by doing trial and errors with Ayurvedic diet and practising spiritualism as a result to balance and manage my lifestyle Ayurvedic food diet which works for me in subsiding symptoms related to fatigue and stomach lining. Spirituality also really helped me such as meditation and yoga in order to focus on the positivity around me and to push myself to keep fighting with my body in order to live my life to the fullest.

    As far as being open about my illness & symptoms, I hate to complain, because I know it can be annoying to hear someone talk about how much pain they are in daily, so I keep it to a minimum. I hate to hear that it will get better, when I know it’s not going to get better because there is no cure. So, I had kept it to myself. Remember to be kind to people as behind that smile we don’t know who is fighting a battle not everyone likes to open up about their struggles. I have had people commenting on my life about gaining weight or not going out or visiting families and friend. Last six years has been a roller coaster ride for me. I have been faking being okay!

    My biggest battle is the pain I deal with daily, but the biggest is putting on a brave face, getting up and starting my day and trying to keep up with my daily responsibilities either personally or professionally. There was many moment in my life where i would want to scream at the top of my lungs. I just have no control over this illness that has taken over me and i would want to take my life. Then i look around and see I have family who i love dearly, and one look at them, tells me that my life is important and worth fighting for.

    Honestly taking it one day at a time, is how I balance my illness in my personal and professional life, there is no other way. I had always been a high achiever and proceeded to put a lot of pressure on myself in every aspect of my life hence people always say i am lucky whenever i attained my goals whether it was graduating with academic excellence being the top scholar or getting a corporate job at management level or buying a brand new home or travelling around and buying luxury items at early 20s it is not luck it is hard-work sacrifices and most importantly journey of fighting with my own body, health and mind to live life and achieve of my dreams. I just want to say to each one of you if your healthy you are lucky one as Health is Wealth!!

    I would like people to know and understand that this condition is real and it’s depressing- please be supportive. If you find that you can’t be of any help to that person suffering from Fibro, then remove yourself from their lives, and spare them further pain.

    My words of encouragement for others who are living with Fibro are to try to find a doctor who is caring and believes in your pain, and work with them in finding medication that can help you control some of the pain, because right now, there is nothing that take it all away. Continue fighting, and don’t give up, we have people who need us and depend on us, so we must find a way to fight to continue living. And lastly we should all come together and help us spread the word, and know that you are not alone.

    Lastly, this message was not for sympathy it was for awareness in the community which is must needed.
    #Fibromyalgia #ChronicPain #fibromyalgiawarrior #illness #Fibro #healthiswealth #Bekind #ChronicIllness #symptoms #treatment #RheumatoidArthritis #FibroFog #Medicine

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    Shopping Addiction. When #Shopping is beyond #retailtherapy and Breaks the Bank 👀

    This cat in the image gives me the face I make when my husband sees me reaching for something to put in the cart and tells me to put it back. I feel like I am so wrong or about to do something that will #hurt me. When things are #Wrong or #IAmStruggling it doesn't feel like I have #power . I feel #powerless .

    #shoppingaddiction is real. My mother has it worse than me right now, whereas I have people telling me "No!" And "Put it Back!" Holding me accountable. It still feels hurtful.

    I no longer go to stores just to "Look." I cannot go to a store just to "Look around." Especially an issue if I see something and cannot buy it. We are all experiencing some kind of #financial issues. #Medicine is so dang expensive, and that often causes us to fall into a pit. I do not know what to do, but I have been trying things other than talk #Therapy .

    I decided to click online "Add to Cart" or "Add to Wishlist." This is common for websites like Amazon or Bath & Body Works. Especially now that the Christmas season is here.. I see things I want to #Buy for other people, or things I want for the #home or for #Myself . It feels #bad .

    Have you experienced #shoppingaddiction ?

    If so, what do you do?

    I need #Advice .

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    Thinking About The Season Ahead

    🎭 Hello!

    I am a blend of emotions this past week, but I am doing better. I have slacked on my classwork for my University studies. I pray that I can make it through without struggling too much. I seriously need help to make it through this class because of how difficult my emotions have been. I believe it's #hormonal but I am confident that I am going to be OK.

    I am curious about you guys though, how are you?!



    I gave up my dream to my mental illness

    Don’t get me wrong, I’m happy that I’m recovering from trauma and that I’m getting better and metter at managing the symptoms, but what’s done is done you know? And I won’t be getting back the time I lost battling my own brain. And that sucks. And makes me mad. And also makes me feel like maybe I’m not worth what I think I am.

    I always dreamt of being a doctor. Psychiatry was my dream, how ironic is that?
    But I would have loved to be a surgeon as well and work with Doctors Without Borders cause I just love helping people that no one else is willing to help. Because nobody should be in the position of not having anyone to back them up. Nobody should be in the position of being helpless and alone. Nobody should be in the position of not being given a chance. Whether it’s because of money, race, sexuality or anything else.

    But then I found myself in that position. Or at least I thought I was. And I had to fight my mind to understand that wasn’t the case. But as I graduated high school I was not in my right mind and I most certainly didn’t have the strength to face uni. So I thought “okay I’m one year ahead anyway, I can lose a year of med school”. But then a year passed and I didn’t feel ready yet, so I chose another faculty. I gave up.

    I do like what I’m doing, I do think I will find my spot and enjoy my career, whatever that will be. But I’m never gonna be a doctor. And I hate it. I could go into med school now, yes, but I won’t cause if there’s something that I hate more than not achieving what I want is achieving it after others. So I can’t stand the idea of becoming a doctor at 32 at best (where I live med school is 6 years + 4 to specialize). Also my parents aren’t getting any younger, my father is 70 and retiring in October, my mum is 60, so I can’t put the pressure on them to financially support me till I’m 32. I just can’t.

    Problem is every time I’m at at hospital, every time I see something even remotely related to doctors, I’m reminded of my “failure”. Worst part is both my parents are doctors and my older sister is in med school.
    Would be kinda funny to see from outside I suppose.
    So yeah, I’m proud of myself for overcoming my problems and getting better, but all my life, every time I’m working, or anytime I see my parents and/or my big sister, every time I enter a hospital, every time someone I meet tells me they are a doctor, I will be reminded that I am not.

    And I hate it.
    #MentalHealth #Recovery #dreams #Medicine #givingup


    Have you ever #Forgotten to take your medicine?

    #Medicine and #Selfcare are very important. Lately I have had some symptoms flare up. Bad memory, and mixing up my medicine as a result of it.

    I feel bad, but I truly believe that I am going to make it through. What about you?


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    Wellness Wednesday: Medicine Adherence & Diabetes

    Medication adherence means how well patients follow their doctors' prescriptions and taking medications correctly. According to Cecelia Health, this includes:

    💊 Getting prescriptions filled
    💊 Understanding the medications’ directions
    💊 Taking the correct dosage
    💊 Taking medication at the right frequency
    💊 Being persistent and consistent with taking medication

    Non-adherence isn't just about patients not taking their medicine. The health care system, socioeconomic factors, and medical comorbidities all affect adherence. According to Cecelia Health, non-adherence comes in a lot of forms:

    💊 Initiation: the individual fails to fill their prescription or begin their treatment
    💊 Implementation: the patient doesn’t take the medication as prescribed (delayed or incorrect dosages), making the medication then appear ineffective
    💊 Persistence: The individual starts out taking their medication, but eventually discontinues their treatment

    There are several barriers or causes to medication adherence that patients experience, including:

    💊 Lack of acceptance of the diagnosis
    💊 Feeling fearful or overwhelmed
    💊 Incorrect perceptions of condition or medication
    💊 Struggling with financial resources
    💊 Literacy or language barrier
    💊 Challenges with lifestyle changes
    💊 Access to care

    Ultimately, maintaining medication adherence is key to managing diabetes and living a healthier life.

    Read Diane Talbert's story about overcoming medication non-adherence:

    ❓How have you dealt with medication non-adherence?
    ❓What was the cause of it?

    Share your experiences in the comments 👇🏾

    Source: Cecelia Health

    #Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #prediabetes #GestationalDiabetes #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #Medicine #HealthCare #Health #HealthInsurance #Stress #MentalHealth #Support #SupportGroups #MightyTogether


    Therapy Fears/ Medicine Concerns

    So it’s been a while since I’ve been to see anyone to talk to or try to see a psychiatrist to see about medicines that might help. And I’m scared to try again. I’ve had 1 good therapist in the 10 years I was going and I lost that one when they transferred to a different program to Better help people. They’re replacement didn’t click with me and it was hard after having such a good one for nearly a year. It’s been 2+ years since then due to Covid. I’m scared to try again. It’s also hard cause I’m not sure I’ll do well in a phonecall/video call sessions but so many aren’t doing in person still. I’m scared to try medicine cause the medicines I took as a teenager made me feel robotic/zombie like even if my dad always said I was angrier in them. Meanwhile the anxiety medicine I was on a couple years ago I forgot to take many times so it didn’t help me. I just. Idk. Is is weird to feel this way? Is it strange? Bad? Any advice? Thank you. #ChronicDepression #ADHD #Anxiety #MentalHealth #Medicine


    Pill Identify #Medicine

    Does anyone know what a small white oval pill with BL on on e side and 25 or 2S on the other could be? Thanks


    A Dream Is A Wish Your Heart Makes

    Hello my friends. Yes... It is me again.

    Today i had quit my job that I was hired at about a week ago. I barely could make it through my day yesterday evening. It was quite awful because of the fact that I had stayed late, and did not get to go to sleep until closer to midnight. I struggled because I had to take #Medicine for my #Insomnia . I know how much I have been struggling for years with this disorder. The job started out kind of fun, but was lacking proper training. I realized that most employees were new, and kind of just thrown into the mix of store operations. One of the managers had a #personality clash with me. She came off very harsh, and snippy which made me so #nervous . I was #Crying about it, and could not seem to get myself out of that #worry .

    I read somewhere that those who have #BipolarDisorder also have a connection with #Insomnia . Some may have reason to believe that it has to deal with a wandering mind due to a hypomanic episode. Yet, I think they fail to understand that it is not always the reason why.

    I have a serious case of #DeathAnxiety that does not seem to go away. It has gotten better since my father had passed away, as I feel a little more comfortable with the facts that this happens to us all. However, I am still struggling. Each day that passes is another day completed of my life and I do not know when God will call me home. There is this weird feeling that I get in my chest that creates this #Weird thought process. I feel this hallowed out sensation in my chest, and I also experience a feeling like I need to whine or cry or yell "I do not want to die." Sometimes I call out for my #Dad who is no longer with me. Therefore, I noiced I have reached out to my #mom a whole lot. I #cherish the time that I have to live.

    If you have made it this far through this message, I thank you.
    I really would love a #reply .