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Mobility Aids
Anyone know where to buy a walking cane and shower chair? #FunctionalNeurologicalDisorder #Mobilityissues #ChronicPain #Vertigo #mobilityaides
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Wheelchair Obstacles Project #CheckInWithMe #Disability #Wheelchair #mobilityaides
I'm working on a year long project...
I've had many people ask me why I get so worked up about the obstacles I encounter in my day to day travels.
"Why sweat over something you can't change?" they ask.
"Just find a way around, and let it go," they say.
If it was only an occasional minor inconvenience, I would do just that. But mobility device users know it's not 'occasional', and it's not always 'minor'.
Often we're forced to backtrack to the intersection, go around the block, ride out into the road or grass, get back on the train to find the next functional elevator, shout at people to look up from their phone, push garbage bins aside with our chair, and sometimes even not leave home at all. String enough of these together, and eventually it would get on anyone's nerves!
So, I'm taking a photo each time I encounter an obstacle and including the date. After a year, I will assemble them into a video. The idea is to show non-disabled people how often this happens. Perhaps it will generate more awareness and prompt greater mindfulness.
This is the first four months so far. What do you think?
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Capitol Crawl Commemorative Rally #CCCRally
On March 12, 1990, 475 people went to the #Capitol to protest for more rights for disabled. 60 of these brave people set aside the walkers, canes, crutches and wheelchairs to crawl up the Capitol steps. This widely became known as the "Capitol Crawl". Their determination and bravery led to the passing of the Americans with Disabilities Act. We return to the Capitol for additional #medicalfreedom and #qualityoflife
❓Why join us❓30 years after those selfless people fought for ADA laws, the rights of all patients, regardless of disease, ability, mobility, age, gender, race, religion, or veteran status has been infringed upon and crossed. Patients being denied access to treatment, therapies, #medications, #mobilityaides , #ServiceDogs, and a basic #quality of life.
👩🦼👩🦯👩🦽Who: any and all patients with rare disease, #ChronicIllness, #Disease, and recently diagnosed disease. All #Caregivers , #Family members, #Friends, spouses and significant others. All #HealthcareProviders , nurse's, researchers, #therapists , and all other people serving any patient.👩⚕️👩🏫🕵️
Goals:
🦾1. To show #legislators and governing bodies that ALL patient groups are suffering.
🦾2. To show we are serious about the impact legislative restrictions have had on patients, whether this be at the research level, funding issues, medication approval stage, or insurance approval problems.
🦾3. To show each other support, kindness, and love.
🦾4. To validate one another's tribulations and become refreshed with a sense of purpose.
🦾5. To unify in the direction that a person's medical care is between that person and their provider, whether they be an MD, a DO, a PA, a NP, nurse, physical therapist, massueist, chiropractor, accupuncturist, or any other amazing human that breathes life into our diseased bodies.
Yes, we are working on accessible ground transportation, and lodging.
Yes, there are opportunities to some financial travel assistance.
Yes, there will be guest speakers. Prepared to be inspired!!
Yes, we will work our tooshies off to accommodate every attendee's needs.
#Ehlers -danlos #EhlersDanlosSociety #CRPS #ComplexRegionalPainSyndrome #Fibromyalgia #Fibromyalgia #ChronicPain #Chronicpainwarrior #warrior #LymeDisease #rallyingcry #MultipleSclerosis #Undifferentiatedpleomorphicsarcoma #Cancer #AlzheimersDisease #DiabetesType2 #DiabeticNeuropathy #DiabetesType1 #CongenitalHeartDefectDisease #RareDisease #RheumatoidArthritis #AutonomicDysfunction #Dysautonomia #LivingWithPOTS #BipolarDepression #AdhesiveArachnoiditis #PosturalOrthostaticTachycardiaSyndrome #Lymphedema #IdiopathicThrombocytopenicPurpuraITP #PolycysticOvarySyndrome #Adenomyosis #Endometriosis #BipolarDepression #EctrodactylyEctodermalDysplasiaCleftLipPalate #AdrenalInsufficiency #AutoimmuneImmunodeficiency #ChronicFatigueImmuneDeficiencyDisorder #MyalgicEncephalomyelitis #DependentPersonalityDisorder #Aspergers #Autism #OsteogenesisImperfecta #GastroesophagealRefluxDisease #Insomnia
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