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Contrary to what the mainstream media and "anti-opioid" lobbyists would have you believe, legally prescribed opioid painkillers DO actually work for chronic pain. Opioids have been used for thousands of years to provide relief from pain, so why is there a mis-perception or inference in recent times they should only be used for acute pain?

In America the CDC Opioid Prescribing Guidelines state there is "insufficient evidence to determine long-term benefits of opioid therapy for chronic pain" [SEE LINK BELOW], and in Australia we are told there is a "lack of evidence for opioids in the management of chronic non-cancer pain" [i.e. based on the International Assoc. for the Study of Pain Policy Document February 2018].

Many anti-opioid activists claim there is “no evidence” or "insufficient evidence" opioids work long-term, yet there are NO high quality, placebo controlled studies routinely conducted for longer than 3 months. Therefore, to say there is no evidence is "a misleading statement, because non-opioid pain medications and alternative treatments are not studied for long periods either."

IF there are no reputable or "good studies" that go beyond 3 months [i.e. due to funding and other regulatory and scientific restrictions], surely the absence of evidence is NOT evidence of absence? There is a silent majority of responsible chronic pain patients, using their opioid pain killers safely and successfully for many years, yet their voice is not being heard.

#research #CDC #IASP #OpioidCrisis #PainManagement #Opioids #Painrelief #prescriptionopioids #Dontpunishpain #ChronicPain #PainManagement #OpioidEpidemic #OpioidCrisis #opioidtapering #forcetapering #Dependence #Addiction #opioidprescribingguidelines #OpioidHysteria #fearofopioids #opioidrestrictions #chronicpainpatients #deprescribingopioids #abandonment #untreatedpain #OpioidUseDisorder #SubstanceAbuse #PainKillers #StopTheStigma #Holisticcare #qualityoflife #noonesizefitsall

Study Finds Opioid Medication Effective for Chronic Pain — P...

Study Finds Opioid Medication Effective for Chronic Pain — Pain News Network

By Pat Anson, Editor Opioids have been used for thousands of years to provide relief from pain. But are they an effective treatment? Are they worth the risk of addiction? And do they improve quality of life? Millions of chronic pain patients who use prescription opioids so that they can work,
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Cannabis saves lives #CBD #CBG

Years ago I stopped taking prescription opioids because the negative effects of the medication outweighed it’s benefits. Yes it would help with pain but, I was a zombie all the time. Always tired, always unmotivated. I stopped and thought I’d give Medicinal Cannabis a try. THC causes me to have the most severe anxiety attacks for hours on end. I started getting a high CBD potency flower, and I began using a CBD tincture as well as using topicals. Almost 3 years later I only use a #CBGoil through Lazarus Naturals. Their products have been a literal life saver. My quality of life, and my over all health has improved so much with the help of good quality, genuine CBD and CBG oil. The only downside is that my ex husband who is an EMT for AMR in AZ, and his parents still call me a drug addict. They all treat me as if I’m an irresponsible druggie. It can be so infuriating because I know it’s not factual, and they just need stuff to make me look a certain way to people. For as Liberal as they are, when it comes to my health and wellbeing they’re pretty heartless. I’m thankful that I got a divorce. Since splitting up my health has gotten better by A LOT! #Opioids #Medication #qualityoflife #wholebodywellness



Another day passes, no quality of life. Sleep deprived, stressed, and feel exhausted. Alone, lonely and silenced for too long. This is nothing new, but how much more suffering do I have to endure? #suffering #alone #Sleep #qualityoflife #sjogrens


Wanting to give up

Newly diagnosed with secondary adrenal insufficiency about three weeks ago. Have been diagnosed with HLA-B27 spondyloarthritis and fibromyalgia since 2018, and ulcerative colitis since 2009. I’m pretty convinced at this point the diagnoses will keep rolling in if the SAI doesn’t do away with me first. My support system is basically non existent. I poured my heart out to my boyfriend tonight about how scared I am to die and how I have no quality of life anymore, and that only ended with him screaming at me for daring to ask him to buy a health related product...I have been suffering for so long now, over half of my life has been spent it pain. Doesn’t anyone ever just wish for peace? Sometime I feel like I’m staying alive solely for the sake of others, because they would be hurt if I died. I force myself to suffer through excruciating pain every single day for these people. But some days are much harder than others, some days it’s much harder to see the point. #SecondaryAdrenalInsufficiency #UlcerativeColitis #Fibromyaliga #Arthritis #autoimmune #qualityoflife #Depression #PanicDisorder #CheckInWithMe


The Reality of Chronic Illness and Recovery

I spent years with #hyperinsulemia #Hypoglycemia due to #Complications from #gastricbypass surgery. In April, I have #reversalsurgery to fix the #lowbloodsugar that was #rulingmylife and made me lose my #qualityoflife
I have gained a lot of #weight since the reversal and the body shame is real. The worst part is that people look at you so differently once you have #gainedweight ... less friendly. Like you are less of a person. I know I need to get on top of this, but for the first time in years I'm not sick. I just wish people viewed me through a different lense.


Practical Holiday #GiftGuide (#qualityoflife )

Hello friends I meant to write this gift guide a lot earlier in the month but I just fell very far behind. It's not just for Christmas time but because of the season I was thinking that even though the holidays shouldn't be focused on just gift-giving, gifts can still be a wonderful opportunity for #Spoonies to receive things that could have a positive impact on their quality of life.

When I've been given gifts, as grateful as I am for the beautiful candle or bath bomb or trinket, I sometimes think about how chronic illness has made me wish for more practical things that could help me with daily living.

I also know that it can be pretty challenging for our family and friends to know what to give someone who is living with a chronic illness because, understandably, they don't know what this life is like. In this blog post, I've listed a bunch of ideas that I think are pretty atypical for "traditional gifts" and tried to explain why the gift idea could be helpful or have a positive impact on a spoonie's quality of life.

I'm not actually sure if this is something I'm allowed to share here (so please remove if not) but if you have people in your life who are struggling to figure out what to give for a gift, please feel free to share this list with them. I really hope it helps (and feel free to add your own ideas too!). I'm still working on it and growing the list as I reflect on my own life and think about what would've been helpful during really hard times:


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Capitol Crawl Commemorative Rally #CCCRally

On March 12, 1990, 475 people went to the #Capitol to protest for more rights for disabled. 60 of these brave people set aside the walkers, canes, crutches and wheelchairs to crawl up the Capitol steps. This widely became known as the "Capitol Crawl". Their determination and bravery led to the passing of the Americans with Disabilities Act. We return to the Capitol for additional #medicalfreedom and #qualityoflife

❓Why join us❓30 years after those selfless people fought for ADA laws, the rights of all patients, regardless of disease, ability, mobility, age, gender, race, religion, or veteran status has been infringed upon and crossed. Patients being denied access to treatment, therapies, #medications, #mobilityaides , #ServiceDogs, and a basic #quality of life.

👩‍🦼👩‍🦯👩‍🦽Who: any and all patients with rare disease, #ChronicIllness, #Disease, and recently diagnosed disease. All #Caregivers , #Family members, #Friends, spouses and significant others. All #HealthcareProviders , nurse's, researchers, #therapists , and all other people serving any patient.👩‍⚕️👩‍🏫🕵️

🦾1. To show #legislators and governing bodies that ALL patient groups are suffering.
🦾2. To show we are serious about the impact legislative restrictions have had on patients, whether this be at the research level, funding issues, medication approval stage, or insurance approval problems.
🦾3. To show each other support, kindness, and love.
🦾4. To validate one another's tribulations and become refreshed with a sense of purpose.
🦾5. To unify in the direction that a person's medical care is between that person and their provider, whether they be an MD, a DO, a PA, a NP, nurse, physical therapist, massueist, chiropractor, accupuncturist, or any other amazing human that breathes life into our diseased bodies.

Yes, we are working on accessible ground transportation, and lodging.

Yes, there are opportunities to some financial travel assistance.

Yes, there will be guest speakers. Prepared to be inspired!!

Yes, we will work our tooshies off to accommodate every attendee's needs.
#Ehlers -danlos #EhlersDanlosSociety #CRPS #ComplexRegionalPainSyndrome #Fibromyalgia #Fibromyalgia #ChronicPain #Chronicpainwarrior #warrior #LymeDisease #rallyingcry #MultipleSclerosis #Undifferentiatedpleomorphicsarcoma #Cancer #AlzheimersDisease #DiabetesType2 #DiabeticNeuropathy #DiabetesType1 #CongenitalHeartDefectDisease #RareDisease #RheumatoidArthritis #AutonomicDysfunction #Dysautonomia #LivingWithPOTS #BipolarDepression #AdhesiveArachnoiditis #PosturalOrthostaticTachycardiaSyndrome #Lymphedema #IdiopathicThrombocytopenicPurpuraITP #PolycysticOvarySyndrome #Adenomyosis #Endometriosis #BipolarDepression #EctrodactylyEctodermalDysplasiaCleftLipPalate #AdrenalInsufficiency #AutoimmuneImmunodeficiency #ChronicFatigueImmuneDeficiencyDisorder #MyalgicEncephalomyelitis #DependentPersonalityDisorder #Aspergers #Autism #OsteogenesisImperfecta #GastroesophagealRefluxDisease #Insomnia


Dear English Mighties #living #Working #qualityoflife #Disability #gettingbackontrack #RheumatoidArthritis #Fibromyalgia #BPD #Safety #HealthCare

#Lifestyle Before getting sick, I was living and working in England, I have friends and family there, in Somerset. I got to know that your laws are pretty equal for every human.
Here in Portugal, all I have been doing is taking care of my health so that it doesn't get worse. But I'm only 33... there's no job available for people with disabilities,places to live are more expensive than the minimum wage.
All I wanted is to be "normal" and to be useful!

My family isn't showing any interest about helping me and my friends have a 6 month baby... CAN SOMEONE CONTACT ME, help me?

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Government cuts funding for pain clinics.

The Ontario, Canada government has decided, in all its wisdom, to reduce visits to pain clinics to 4 times a year, not to cover injection medications, and to phase out and close all pain clinics. People who rely on weekly injections (even monthly!!!) will not have access to these medications, nor to the doctors they rely on for any sort of decent quality of life. I have worked hard for 35 years and I shouldn’t have to stop working due to no access to a doctor at a pain clinic. While I understand other countries don’t have the coverage I have had the privilege of having, I choose to live here and pay taxes and have lived my whole life with the expectation that I will have access to the healthcare that I need. I’m so angry. #ChronicIllness #ChronicMigraines #ChronicPain #Fibromyalgia #Injections #qualityoflife


Administrative Genocide

Yesterday, my husband and I sat down with our pharmacist to compare Part D prescription drug plans. If you’re on Medicare you’ll be familiar with this. We left pretty shell shocked. We are literally now unable to afford our meds. Yes, he enrolled in a cheaper premium plan, but his out of pocket costs will more than double. There’s a cheaper premium plan available for me, as well, but again, my out of pocket cost will double. He can’t go off his meds. I can, but the existing quality of my life will be ruined. So, I coined the term ‘Administrative Genocide’. This issue of meds being out of reach financially will affect most of you here, as well as most people in the US. It’s politically driven, and big pharma is out of control. So, what now? #Foodormeds #qualityoflife #Istheendinsight #Medsorthestreet