painflare

Earlier this week I had a horrific pain flare that I haven’t had in a long while. I’m talking about one where if I wasn’t working I was either in bed or on the couch. I couldn’t shower, I wore the same clothes from Monday through Thursday and going up and down the stairs was excruciating.

I FINALLY started feeling better by Thursday evening (yay!) and was able to shower and do a full outfit change. I still feel some residual pain, but most of it has subsided thankfully. During my time I was resting I couldn’t help but feel guilty for “neglecting” my responsibilities.

Do you ever feel this way? Maybe you feel “bad” for taking a nap whenever your physical or mental health symptoms are acting up. I want you to know it’s OK to prioritize yourself when you need to rest. It’s something I’m still learning myself, and we can learn it together.

Share your experiences with me in the comments below. I’d love to know more.

And if you have been a bit hard on yourself recently during a symptom flare, it’s OK to forgive yourself. ❤️

#MentalHealth #ChronicIllness #Parenting #Disability #RareDisease #ChronicPain #Fibromyalgia #painflare #EhlersDanlosSyndrome #Migraine #Undiagnosed #Productivity #Guilt #52SmallThings #Selfcare #rest #Forgiveness #forgive

#painflare #fibroflare #Fibromyalgia #ChronicIllness #FoodRestrictions

It's not easy being a singer/song writer on days when she can't even sit at the piano. But Xandra is working on 3 new songs in spite of not getting piano time.

One good day this week she put on a gig outfit and practiced with her stage mic for 20 minutes. She had a pain flare afterwards. But it was worth it.

#ChronicPain #chroniclife #ChronicIllness #painflare

One of the most difficult things I’ve been learning on this chronic pain journey is that my body has limitations...The kind of limitations that no “can-do!” attitude can fix. Sometimes, my body needs to rest. It whiplashes me out of whatever plans I made (no matter how glorious they may be). It isn’t personal. It is just simply a fact of what’s happening. Accepting this for what it is, letting myself be, and welcoming rest is by far the most difficult and freeing thing I have felt (ESP as a recovering perfectionist). To all those who feel shame for not being able to tackle the things they want to, I see you. You are worthy as is. You don’t have to earn it or achieve it. You can face this. I can face this. We are the Mighty. ✊