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What was your experience with your first physical therapy appointment?

Hi all 👋 I’m so happy to have found this group! I have recently been diagnosed with Ankylosing Spondylitis and my doctor had me go to a physical therapist to see if I could start regaining some mobility in my spine. I had my first appointment on Monday, and my physical therapist was super kind and listened, so of course I cried at finally having acknowledgement for this pain I’ve had for so long 😂

Day one after my first session, my pain was CRAZY intense, like one of my worse flare days. I couldn’t even get out of bed without wanting to yelp and didn’t get any work done (I work from home). Did anyone else have a bad flare after their first appointment? I’m doing the stretches the therapist asked me to do, but holy heck it’s brutal. Is it just because I am stretching things that have not been worked in a while? I intend to ask him when I go back for my next appointment, but I was curious if anyone else has had this problem.

Lots of love to you all ❤️
#PhysicalTherapy #painflare #ankylosing #ChronicPain

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My name is Jennifer, I'm 37yrs old from Nicholasville, Ky. I'm looking to meet like minded people.

I'm lonely, have several Health Issues, no one cares, No Support, out of work til further notoce, negative in the bank.

I've been called a Debbie Downer and Burden, not friendship material, etc.

I have

Congenital Hydrocephalus
Retinaopathy of Prematurity
2 L5 S1 Discectomy Back Surgeries
Chronic Knee, Ankle Pain
Groin Pain
Essential Tremors
Carpal Tunnel Syndrome
Possible RA




Is anyone getting random messages, what is up with that???

Is anyone getting random messages, what is up with that????

Usually, they say hey, u say, hey back, they say where u from😡😡😡

It's probably some regular person to looking for love hopefully in all the wrong places, watch yourself.

***Do u all know of any other great support
Groups besides this one that u all would

#Pain Apps


If u all don't mind praying for me, I need a financial blessing now, to go through the future. I've been off work since September, was supposed to have surgery for severe Carpal Tunnel and Dequervains Tenosyvitis, got diagnosed with Covid was getting disability, have no support, care, etc.

Not seeing the light at the end of the tunnel.

Thanks for ur prayers.


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Have you ever felt guilty for resting even though your symptoms were acting up? #CheckInWithMe

Earlier this week I had a horrific pain flare that I haven’t had in a long while. I’m talking about one where if I wasn’t working I was either in bed or on the couch. I couldn’t shower, I wore the same clothes from Monday through Thursday and going up and down the stairs was excruciating.

I FINALLY started feeling better by Thursday evening (yay!) and was able to shower and do a full outfit change. I still feel some residual pain, but most of it has subsided thankfully. During my time I was resting I couldn’t help but feel guilty for “neglecting” my responsibilities.

Do you ever feel this way? Maybe you feel “bad” for taking a nap whenever your physical or mental health symptoms are acting up. I want you to know it’s OK to prioritize yourself when you need to rest. It’s something I’m still learning myself, and we can learn it together.

Share your experiences with me in the comments below. I’d love to know more.

And if you have been a bit hard on yourself recently during a symptom flare, it’s OK to forgive yourself. ❤️

#MentalHealth #ChronicIllness #Parenting #Disability #RareDisease #ChronicPain #Fibromyalgia #painflare #EhlersDanlosSyndrome #Migraine #Undiagnosed #Productivity #Guilt #52SmallThings #Selfcare #rest #Forgiveness #forgive


complaining a little

my wife was home for the past week which happened to be at the same time as a bad pain flare. She was able to go get me things and make me tea when I was in too much pain and too weak to do so myself.

Now she’s had to return to work and I’m still in so much pain and so weak and exhausted and it’s so hard without her here. I’m too tired and in pain to get myself food and drink. Taking the dog out front just for a quick pee makes me feel like I might fall over and to sob with pain when I get back in the house. I really need help during the day. I wish we could afford it. I have a PSW for an hour twice a week and she helps some but it’s not enough. #Vent #ChronicPain #painflare #ThanksForListening

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Good days

It's not easy being a singer/song writer on days when she can't even sit at the piano. But Xandra is working on 3 new songs in spite of not getting piano time.

One good day this week she put on a gig outfit and practiced with her stage mic for 20 minutes. She had a pain flare afterwards. But it was worth it.

#ChronicPain #chroniclife #ChronicIllness #painflare


winter on its way #painflare #Fatigue

my body is really feeling the change of season. aches, pains and fatigue getting worse by the day.

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Whiplash & Wisdom #painflare #Endometriosis #Fibromyalgia #ChronicIllness

One of the most difficult things I’ve been learning on this chronic pain journey is that my body has limitations...The kind of limitations that no “can-do!” attitude can fix. Sometimes, my body needs to rest. It whiplashes me out of whatever plans I made (no matter how glorious they may be). It isn’t personal. It is just simply a fact of what’s happening. Accepting this for what it is, letting myself be, and welcoming rest is by far the most difficult and freeing thing I have felt (ESP as a recovering perfectionist). To all those who feel shame for not being able to tackle the things they want to, I see you. You are worthy as is. You don’t have to earn it or achieve it. You can face this. I can face this. We are the Mighty. ✊