A new blog post
New blog post on my site! Come check it out and read my latest post!
#Writing #Disability #Ableism #MentalHealth #ChronicIllness
New blog post on my site! Come check it out and read my latest post!
#Writing #Disability #Ableism #MentalHealth #ChronicIllness
Hey guys, I don’t think this will get lots of attention, but I wanted to share my story of an experience I faced yesterday.
I’d like to share an experience I recently had at a local restaurant where I was mocked and insulted by the owner and her friend. They called me “weird” and “creepy,” claiming I “intimidate locals” because I walk around town. The truth is, I can’t drive due to my disability and medication—walking is how I stay independent.
They also accused me of not paying for food, even though I do most of the time, or bring friends/family who order. Others in the community do the same or even keep unpaid tabs—but I’m the one singled out. I’m on the autism spectrum and live with multiple disabilities.
I believe this treatment was not only hurtful, but a clear example of ableism. I’m hoping to raise awareness and start a broader conversation about how businesses treat neurodivergent and disabled people. I’d be grateful if you could help share my story or guide me to the right place to tell it.
Thank you for your time and advocacy.
For context, the restaurant is called “The Dale” in Mountain Dale, NY. I have schizophrenia, epilepsy, Asperger’s disorder, and a essential tremor disorder which makes it hard for me to walk, do things independently, and makes me act quiet or very talkative in certain circumstances. I do not have a record of any violence, I just take lots of medications so sometimes I stare off into space or look grimaced.
#Ableism #SchizoaffectiveDisorder #Bipolar1 #EssentialTremor #PTSD #AspergersSyndrome #AutismSpectrumDisorder #AutismSpectrum #MightyMoment
I have been feeling really under appreciated at work lately but also on the defensive. Due to my lupus I have an arrangement with my boss that allows me telework after working outdoor events or if I’m having a flare. Well that’s been happening a lot lately but I try to go in the office at least once a week. Anyways to get to the point of my story, when I’m on the office I get comments like “Oh you’re here, I wasn’t sure you still worked here” or snidely “Where have you been?”. It’s so hard to not get snarky because when I’m not at work I’m either in bed or at a doctors appointment or in the hospital. That’s it! I have to use all my PTO for my illness. I don’t get to take a week off for a vacation nor could I afford one since being sick is so expensive in the U.S.
Has anyone else experienced similar social situations?
#ChronicFatigue #ChronicPain #Lupus #AutoimmuneDisease #Ableism #InvisibleIllness #InvisibleDisability #SayTheWord
At one point my podcast was the highest rated for my niche. My former cohosts have turned most of my following against me in retaliation for defending myself against their ableism. My story can be found here: youtu.be/eBBQB500mKE
This song has gotten me through some rough nights and while I know it was written about sexual assault, I find that it works for other traumas, too, because it gorgeously, wrenchingly describes the resulting isolation.
A colleague left a hideously ableist comment on an interview I recently did--so bad that the podcast host removed it, god love him--and I keep thinking that one day this miscreant will wake up to find his body no longer cooperates and *then* he'll apologize like the others before him.
I don't know why some individuals must learn the hard way--seems like it'd save everyone time and effort to proceed with kindness--but after 3+ decades with disability, I've learned that some folks only truly get it when they become ill and/or disabled. At which point they're filled with remorse and start asking both for pointers and physician recommendations.
I don't wish any of this on the person in question, but almost no one dies in their sleep at 105 and, most likely, something will get him long before then.
So, I'll accept his apology when he offers it.
But I gotta say, I won't be that bummed out when it happens to him.
Day 13 of 365
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #cfsisamisnomer #pwme #ChronicIllness #Disability #Ableism
Trigger Warning Abuse, Gun Violence
These Chronic Negative ideations are getting to me today
Just I'm feeling it very hard today
Just recorded myself Talking couldn't do a video today
Was that anxious
Just Feel like a Burden on Society and Nobody understands
I kinda get tired of people calling me lazy or Unmotivated.
When in reality they never had Agoraphobia
Because at the End of the day
I still have Agoraphobia had it since I was 5
Is getting a little better
But still have the condition
Maybe Its not like in 2010 when I couldn't step outside my house
With Therapy I still can't stand outside my house very long
But with the Anxiety and panic symptoms
I'm able to Pay bills and food and stuff some physical checkups occasionally now.
But can't do it everyday it's occasional
Maybe once or twice a month
Because I try to Occasionally push through since it's one day.
Because I know I can't do it everyday I would kill myself
The feelings are overwhelming
And doing that I feel bad panic symptoms.
Dizziness headaches heart aches
It messes with my separate migraine diagnosis which I had since I was a little boy.
Take meds just for those specific days just to pay bills.
Which I been doing every month if I could.
But I feel so sick.
Just I tried several jobs over the years.
From Warehouses and factories McDonald's which I had panic attacks
Dropping money and patties.
Not being able to handle the open Spaces of a McDonald's restaurant.
Had a panic attack
Goodwill, Carwashes, Landfills, Wet Factories
Lifting 200 to 300 lb barrels of Fruit and veggies and water.
Which water is Heavy than people expect when in barrels.
And water is not dense as well. It's a liquid.
That spilled on the floor.
And lifting that repeatedly with and without help
This very different than weight training
That you do sets for maybe a few minutes to a hour
This is repetitive lifting throughout a shift for 8 hours+
And had 10- 12 hour days Alot it never ended at 8 hours flat.
And you doing it at a fast rate.
Since it's a factory and those bins fills up quickly from the leftover food on the floor.
Since some people shoulders gave out
And mines didn't. Thankfully
Having panic attacks every night felt like Giving up.
Everytime I came home.
Even was thinking about working at a Tire Plant.
Which I didn't do the Tire Plant.
Too crowded. Definitely couldn't handle that environment.
I Did Every Entry Level Physical Job Imaginable.
Public jobs that I can think of.
But nobody understands or sees that.
Only IRS knows that.
Because They Take A portion of the Pay out of my check.
Which I loved Paying Taxes.
Since I was working
But couldn't handle the Jobs.
Agoraphobia and Severe Social Anxiety and anxiety in general and panic attacks daily
Is very real condition.
But Ableism exists.
So they say Ableist Statements
Saying anxiety is not a real disability
And saying tough through it
Or MAN UP.
Which Nobody Understands My Situation.
Just Even Work At Home. I be Feeling like a Burden A lot on Society.
Just I Been Feeling like a Burden since I was a kid.
Felt I was a Burden That Kept My Mom from Going to the Military 🪖
Fresh out of High School.
Which she never said.
Since She Got pregnant with me.
By the time she was going to start Basic Training
And she had the option To Either Have a Abortion or Go Through Basic Training
Or Have Me and Had to Lose her Opportunity To Enlist.
When I got shot at when I was 17 in 2011
I thought maybe I should've gotten shot.
Maybe if I was dead I wouldn't be a burden
On People and this Capitalist System.
Just I Deal With Unemployment.
And if you Judge me by me typing this.
You shouldn't probably be in my life in the first place
But people don't understand
It's Very hard to keep a job
I do want to work a job or something
But Main Thing I have a conditions
I had for years.
This just didn't come up when I was grown
I had this anxiety and stuff since I was 5 I can remember.
Been feeling ideations since I was 15.
Had To go to the hospital for the first time.
Of trying to Cope with the issues.
Didn't know it was a mental health condition.
Until I was trying to do something to myself in 2010.
Been a ongoing problem
Just People don't understand how this can cause me to not keep a stable job or employment.
Which would be considered Gainfully or Substantial Employment.
I have difficulty due to my condition
I did try in public places.
I had a panic attack heart beating everyday.
Feeling dizzy and my pre existing migraine problems becoming more prominent due to this.
Just Even Working at home it's very difficult.
Because they want you to still talk on the phone
And type stuff and stay on the computer..
Which I don't even due in my personal life.
Because it causes bad anxiety being on the internet and the phone.
Since I still have to interact with people.
Just it's Interreacting with people in general
That gets me very bad anxiety.
And Working at Home means you Are Independent.
You still work under someone else.
It's not like I'm the owner of a fortune 500 company deciding how my day will go.
I'm just a Worker for Someone else like majority of people.
So I have to Do What they feel is Profitable to do so.
People act like these companies really care about my well being
When they give accommodations
Which the accomodations still favors the business owner more than the employee
Which I understand.
Those accomodations really didn't do anything to better my condition
and anxiety and stuff I constantly feel daily.
Just Even if I could do a job for one day.
That's not substantial to survive.
And I'm just going to feel sick and dizzy and blurry vision
And aggravates my preexisting migraine condition.
But The Way Society is.
Due to being Very Hyper Competitive and stuff.
Just Someone like me can't compete with someone
That doesn't have my issues.
At job positions.
Just Life.
It Really doesn't accommodate someone with my conditions.
Be trying to see some work at home jobs fit my condition...
But nothing I can do at a consistent substantial rate gainfully rate.
Doesn't make sense to Start a job that I'm going to have a physical anxiety and panic attacks daily
And eventually quit.
Doesn't make sense. Because it's not substantial
Instead of wait until something I can actually handle.
I'm trying just.
I can't survive off that condition.
Just feel like it's my fault for having these issues.
I didn't ask for.
I feel anxious texting people.
And people don't understand.
I try to go on social media and stuff for therapy.
Since I don't leave my house.
And Agoraphobia and Social Anxiety disorder and stuff.
It's a Double edged sword.
Because being alone I don't get panic attacks as often
And feel those horrible feelings I feel mentally.
But Being alone also makes you more Depressed and Lonely and sader
So I try to balance it.
But even going online is very anxious provoking.
I try to do it for therapeutic reasons.
And have flashbacks as well
And non anxiety based such as getting shot at in 2011
And other stuff I'm not going to publicly going to disclose.
Only people I don't feel anxious is My Mother and my immediate brother and sister.
The ones I lived with growing up.
Just them all other family members I struggle just calling them.
Just my life sucks.
I constantly hear I'm lazy or Unmotivated
Or whatever you call it.
Just society doesn't understand.
Why I'm having difficulty keeping a job.
It's seems like it's not profitable.
Like my condition doesn't work under a hyper Capitalistic society.
Just I'm trying but I can't work for the best of me.
I have to work with accommodations that are best for employers
Which I understand.
Since profit is the driver or capitalism.
The Accomodations they give me I still have anxiety.
I can't do 8 or 4 hours consistently.
Maybe for one day but after that
I'm going to feel exhausted and dizzy vi
.
.
.
.
.
.
.
.
.
.
Being autistic feels like a fucking crime these days.
I was staying at a hotel because was about to lose my fucking mind staying at home with my youngest nephew making a lot a noise constantly throughout the day. What my dad said earlier about check-out, I’ve misinterpreted, but he fully apologized and takes full responsibility as he should’ve made it clearer.
I was getting ready to check-out, but it was an hour later because I was getting ready to check-out. Security came to my door and said that I needed to come out, and I told them that I was just getting ready to leave. Packing as fast as I possibly could, they came back again and threatened to call the police on me if I didn’t get out of there soon. I literally told them that I was packing as fast as I could and that I had an appointment an hour after the check up time (and I couldn’t reschedule or else my mom would have to pay over $100 for canceling ,and I didn’t want to do that to her!) … and of course they did care about that last part.
Pissed off, I left the hotel in tears and placed the card keys at express check out. I wanted to complain, but I didn’t bother because I was just so mad and honestly scared for my life.
My dad told me that the police part is just something they say to get others out. If this is a fucking neurotypical norm, I want to let you know: 1) I HATE being pressured or someone trying to rush me and 2) I HATE being FUCKING THREATENED, especially regarding something TO DO WITH THE POLICE! Are you kidding me?!?!
Society SERIOUSLY needs to know how traumatizing and/or stressful that is to hear for neurodivergent individuals who 1) completely misinterpreted what check-out restrictions mean, 2) are trying their fucking hardest to do something in time, and 3) LITERALLY MEAN NO FUCKING HARM!!!!!!!
Now, I’m fucking scared to even go outside anymore. I feel like society just doesn’t want me. I feel like society just sees me as a criminal, or just sees my autism as criminalistic.
I know I was overstimulated earlier with my younger nephew, but I’d rather deal with this and possibly lose my mind than be FUCKING THREATENED TO HAVE THE POLICE ONTO ME!
#IsThisAbleism #MyAutismIsNotADisorder #Anxiety #SocialAnxiety #NeurotypicalNorms #StopThis #Police #overstimulated #Norms #scared #Stress #Society #venting #Vent #triggerwarning #MentalHealth #Ableism
Problems with the terms high functioning and low functioning to describe autism
When you use those terms you are subconsciously creating a caste type hierarchy/system where the people labeled as high functioning get better treatment and more opportunities than those who are labeled as solely autistic or are labeled low functioning, leading to the Matthew effect.
I've noticed that it has come to the point where almost everyone who is verbal claims they are high functioning because they see the people who have the labels of high functioning and Aspergers getting preferential treatment as mentioned a few sentences earlier.
There is no universal consensus of what should be considered high functioning as of today: as people like Temple Grandin (who was labeled as severe during childhood) have achieved more than some people who were labeled as mild during childhood yet never had any motivation to go to a university or trade school.
A few years ago I saw a video of Edward Snowden saying something along the lines of high functioning should be used to describe people like the "MIT whiz kids" as opposed to everyone that's not intellectually challenged, those who can hold a steady job, and those who can hold a conversation--thus showing that there is such a spectrum when it comes to people showing their strengths and masking their flaws.
Does anyone else as a chronically ill young person get treated differently by family/doctors/peers/etc. Because you "look" "young and fine" ?? #Ableism #Ageism #MentalHealth #ChronicIllness #ComplexRegionalPainSyndrome #PTSD #Fibromyalgia