I have many but currently my top ones are:
- weighted blanket
- heatpack
- teas
- water bottle
- deep heat cream
- snacks with protein & fibre
- electrolytes
- ibuprofen
…. What are yours?
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #ChronicPain #ChronicIllness #chronicbackpain #BackPain
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Hi Everyone, I am new and looking for help for my husband, he is 45 and has had 6 back surgeries. He is in constant pain… and is struggling to stay with us. We have a young child also, he is normally very very active until the last surgery. I am desperately searching for ways to help relieve the pain he has and to keep our family. 😔 I myself am a cancer survivor at 30th old, I am now 44…I have arthritis and effects from my treatments yrs ago that also make it hard for myself, lymphedema, brain fog, fatigue, arthritis, fibro, and of course anxiety lol being a mom taking care of my little one and supportive of my husband who is declining has been a real struggle but trying to be thankful for every day we have been blessed with 💜 #chronicbackpain #cervicalcancersurvivor #SuicidePrevention #ChronicPain
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As a Christian, I do know that things can change if God choses to heal and I have to be there for others. Being a Pastors wife and involved in Christian Biblical Counseling I have some tools to help myself. However, sometimes I feel less by the people I am there to help, because of all they know about me missing church or activities. Somehow, because I can't hold a job outside the home, when I am there to help others I feel they think I am weak and what wisdom I have to offer is not taken seriously. I know that anything I do that helps someone is because of the Lord. he gets all the glory and I love it. But my flesh is weak at times and I feel hurt. Pray I get over that for good!#Fibro Fog#Stroke #IBS #chronicm ygraines#AnxietyAttack #chronicbackpain #Chronicbackpain#FibromyalgiaDiagnosis
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I have a major spine surgery quickly approaching this Friday 3/3/23 and l'm extremely anxious. I just had a different type of spine surgery 6/22/22. Something just feels different this time and I can't seem to wrap my mind around it. I keep having nightmares that I’m going to wake up from surgery paralyzed. I didn’t have nightmares or anxiety before my last spine surgery. It makes sense and it’s valid, but it just seems odd to me. In total, this will be my 13th surgery, I’m generally not anxious about surgeries or procedures (colonoscopies and endoscopies every 1-2 years for the last 29 years). It definitely doesn’t help that I’m also in a Crohn’s flare currently. Getting to the bathroom quickly can be very challenging after spine surgery, I learned that from the first surgery. Sitting on the toilet is very uncomfortable/difficult also.
⭐️❤️Any words of encouragement would be greatly appreciated, I'm having trouble escaping/controlling my mind right now.⭐️❤️
Photo is of myself with my awesome Service Dog Onyx, he makes living life much easier for me. 🐕🦺
I've had some difficulties finding groups that are active here, so I'm not even sure where to post or where this post will end up. I'm not giving up on finding people to connect with though.
#MightyTogether #SpinalStenosis #GeneralizedAnxietyDisorder #ChronicPain #chronicbackpain #Arthritis #DegenerativeDiscDisease #PanicDisorder #MajorDepressiveDisorder #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicSpinePain #Anxiety #Insomnia #Nightmares #PTSD #ObsessiveCompulsiveDisorder
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New diagnosis: POTS. Was on ivabradine for a few weeks and ever since I’ve come off it my heart rate hasn’t been happy. For some reason my blood pressure has suddenly become normal after being low for months. Not complaining, just very confused.
Went for an MRI last week for my sinuses, said it would be about a week for results but still waiting. On the bright side, that probably means it’s not (too) bad news. I’m glad I pushed to see them earlier though, because I caught a cold from my housemate and it caused hell with them. Constant congestion, migraines, lack of appetite, nausea, coughing, and I took about the same amount of painkillers in a week that I had taken in the last few months/ maybe even a year (I am VERY opposed to them & chronic pain has left me with a high pain tolerance anyway).
Waiting on GERD referral & have heard nothing. Doctor prescribed a PPI but didn’t put it on repeat and the progress made on it was lost when I had to fight for a week to get it re-prescribed after I had ran out.
Chronic pain has been quite a struggle. I’m concerned about the increase in occurrence of pain so I booked a routine doctors appointment. Also having a flare up of my foot pain (tears when walking) so it’s just an extra thing I get to deal with.
And on top of all that, trying to keep my mental state okay and making it look like I’m okay to everyone else. It’s all just really exhausting, but there’s this quote that I remember a lot (but will probably get it wrong slightly): “it takes ten times longer to put yourself together than to fall apart”
Okay, I’ll finish this with some better news. I’m cleared 1 year post-op and hearing loss is confirmed not to be an issue anymore. It was borderline but I’ll take the W. I also had my two jabs, perks of being disabled I guess.
#ChronicIllness #ChronicPain #Surgery #Postop #MentalHealth #Migraines #PosturalOrthostaticTachycardiaSyndrome
#GastroesophagealRefluxDisease #HearingLoss #Depression #InvisibleIllness #Disability #Disabled #BackPain #chronicbackpain #Lowbloodpressure #BloodPressure
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Thrown off a volunteer training programme by an organisation.
New low? Or...?🙃
Concerning how 'supportive' organisations that support marginalised communities and claim to be 'accessible' are 🤔
#Fibromyalgia #ChronicPain #ChronicIllness #Depression #Anxiety #FunctionalNeurologicalDisorder #AuditoryProcessingDisorder #IrritableBowelSyndromeIBS #chronicbackpain #BackPain #Psoriasis
Ive been receiving The Mighty newsletter for a few years and the other day decided to try out the App and your social platform. After some scrolling it looks like it will be a great place to share my experiences and in turn get some new insights into what ive been dealing with.
Im 55 years old and have four children that range from 28, 19, 17 and 15. Ive also had 8 spinal surgeries due to injuries i sustained at work. I've been disabled and retired since Dec 19, 2005- at 39 years old. Due to so much spine trauma ive now been diagnosed with Adhesive Arachnoiditis ( en.wikipedia.org/wiki/Arachnoiditis )
During back surgery #4 i lost 100% of my hearing in my right ear. Likely due to a blood clot. The loss of hearing quickly morphed into incredible Tinnitus. Im doing much better now and havent required my two canes to walk in a number of years. The Tinnitus is tough to adjust to though. Imagine someone screaming in your ear 24/7/365. My sleep was probably the most effected by my Tinnitus for about the first decade. Now i use my bluetooth headset when sleeping to minimize the noise.
In August of 2020 my wife and i learned that our two daughters suffered some horrific trauma from about 5 years old until about 9 years old. This trauma presented itself in many forms of Behavioral Health conditions as adolescent teens; eating disorder, Bipolar 2, anxiety, depression, suicidal ideation, Borderline Personality Disorder, OCD, self medicating and PTSD. And possibly more.
My younger daughter is participating in an inpatient treatment program right now as i type this. Shes had three failed attempts in 2021 and has been hospitalized numerous times.
My older daughter has suffered some traumatic health issues. In 2015 she had two back surgeries. One surgery was to relieve a chronic headache she suffered for about 7 months. The other to correct and stabilize her scoliosis. Then in 2018 she developed Narcolepsy that kept her sleeping about 18 hours a day. She missed so much school and her socialization amongst her peers really suffered, and continues to. Then in 2020 the Narcolepsy left as suddenly as it appeared. But the damage was done. Shes now a 5th year senior trying to get her credits caught up to graduate.
Im really hoping to get some valuable insight into the best parenting practices to help my girls live a fruitful and rewarding life. While sharing what has worked for me through my back pain. #Depression #OCD #Anxiety
Does anyone else feel ABSOLUTELY knackered and wrecked after speaking with a GP?
(U.K.: GP=> General Practitioner or primary physician, sometimes you have a GP you always go to, but due to limited resources, often it's an appointment with whomever is free 🤷🏿♀️)
Finally plucked up the courage to ask about the process of getting an ADHD assessment and the condescension.... was unreal 🤣
Does anyone else pray daily to have the funds to go private? Then feels guilty and laments the privatisation of your beloved National Health Service? 🥲 And overstretched and exhausted medical staff?
#IrritableBowelSyndromeIBS #Fibromyalgia #ChronicDepression #ChronicPain #ChronicFatigue #chronicbackpain #BackPain #Depression #Anxiety #AuditoryProcessingDisorder #HearingLoss #Insomnia
Does anyone else sleep through their alarms? Like a gazillion alarms, but no memory of silencing them or turning them off? 🥲
Missed a Christmas party for what would've been my first in 2+ years 😭🤦🏿♀️
#Fibromyalgia #ChronicPain #ChronicFatigue #Depression #Anxiety #IrritableBowelSyndromeIBS #chronicbackpain #AuditoryProcessingDisorder #BackPain #FunctionalNeurologicalDisorder
I'm looking for some advice, I'm used to all the fibro and chronic pain also the chronic fatigue. Over the years I have had alot of cortizon injections in my lower back plus a rad ablation, This past 7 months I've had chronic back pain going down both legs at the back. This has got worse I have constant bladder/bowel problems and numbness in hips butt so on. This past few weeks has developed a new one chronic foot pain. I work really hard at keeping myself grounded. The doctors here on this little island do not perform tests after tests they only test for the normal blood work. It takes months or years to see the pain specialist infact I waited 2 yrs to see him then another 2 yrs to see the pain clinic phycologist. Still waiting on them. My feet are tingling burning they are not swelling yet feel extremely hot to the touch. I'm a Walker have been for years. Kept going with the help of meditation and mindfulness. This is a new one and any help or advice would be so helpful ⚘💞🌹Thankyou 🌻🙏🌟
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