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    Chronic illness level up!

    New diagnosis: POTS. Was on ivabradine for a few weeks and ever since I’ve come off it my heart rate hasn’t been happy. For some reason my blood pressure has suddenly become normal after being low for months. Not complaining, just very confused.

    Went for an MRI last week for my sinuses, said it would be about a week for results but still waiting. On the bright side, that probably means it’s not (too) bad news. I’m glad I pushed to see them earlier though, because I caught a cold from my housemate and it caused hell with them. Constant congestion, migraines, lack of appetite, nausea, coughing, and I took about the same amount of painkillers in a week that I had taken in the last few months/ maybe even a year (I am VERY opposed to them & chronic pain has left me with a high pain tolerance anyway).

    Waiting on GERD referral & have heard nothing. Doctor prescribed a PPI but didn’t put it on repeat and the progress made on it was lost when I had to fight for a week to get it re-prescribed after I had ran out.

    Chronic pain has been quite a struggle. I’m concerned about the increase in occurrence of pain so I booked a routine doctors appointment. Also having a flare up of my foot pain (tears when walking) so it’s just an extra thing I get to deal with.

    And on top of all that, trying to keep my mental state okay and making it look like I’m okay to everyone else. It’s all just really exhausting, but there’s this quote that I remember a lot (but will probably get it wrong slightly): “it takes ten times longer to put yourself together than to fall apart”

    Okay, I’ll finish this with some better news. I’m cleared 1 year post-op and hearing loss is confirmed not to be an issue anymore. It was borderline but I’ll take the W. I also had my two jabs, perks of being disabled I guess.

    #ChronicIllness #ChronicPain #Surgery #Postop #MentalHealth #Migraines #PosturalOrthostaticTachycardiaSyndrome
    #GastroesophagealRefluxDisease #HearingLoss #Depression #InvisibleIllness #Disability #Disabled #BackPain #chronicbackpain #Lowbloodpressure #BloodPressure

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    Thrown off a volunteer training programme by an organisation.

    New low? Or...?🙃

    Concerning how 'supportive' organisations that support marginalised communities and claim to be 'accessible' are 🤔

    #Fibromyalgia #ChronicPain #ChronicIllness #Depression #Anxiety #FunctionalNeurologicalDisorder #AuditoryProcessingDisorder #IrritableBowelSyndromeIBS #chronicbackpain #BackPain #Psoriasis


    My Story #Bipolar2 #BPD #chronicbackpain

    Ive been receiving The Mighty newsletter for a few years and the other day decided to try out the App and your social platform. After some scrolling it looks like it will be a great place to share my experiences and in turn get some new insights into what ive been dealing with.

    Im 55 years old and have four children that range from 28, 19, 17 and 15. Ive also had 8 spinal surgeries due to injuries i sustained at work. I've been disabled and retired since Dec 19, 2005- at 39 years old. Due to so much spine trauma ive now been diagnosed with Adhesive Arachnoiditis ( )
    During back surgery #4 i lost 100% of my hearing in my right ear. Likely due to a blood clot. The loss of hearing quickly morphed into incredible Tinnitus. Im doing much better now and havent required my two canes to walk in a number of years. The Tinnitus is tough to adjust to though. Imagine someone screaming in your ear 24/7/365. My sleep was probably the most effected by my Tinnitus for about the first decade. Now i use my bluetooth headset when sleeping to minimize the noise.

    In August of 2020 my wife and i learned that our two daughters suffered some horrific trauma from about 5 years old until about 9 years old. This trauma presented itself in many forms of Behavioral Health conditions as adolescent teens; eating disorder, Bipolar 2, anxiety, depression, suicidal ideation, Borderline Personality Disorder, OCD, self medicating and PTSD. And possibly more.
    My younger daughter is participating in an inpatient treatment program right now as i type this. Shes had three failed attempts in 2021 and has been hospitalized numerous times.
    My older daughter has suffered some traumatic health issues. In 2015 she had two back surgeries. One surgery was to relieve a chronic headache she suffered for about 7 months. The other to correct and stabilize her scoliosis. Then in 2018 she developed Narcolepsy that kept her sleeping about 18 hours a day. She missed so much school and her socialization amongst her peers really suffered, and continues to. Then in 2020 the Narcolepsy left as suddenly as it appeared. But the damage was done. Shes now a 5th year senior trying to get her credits caught up to graduate.

    Im really hoping to get some valuable insight into the best parenting practices to help my girls live a fruitful and rewarding life. While sharing what has worked for me through my back pain. #Depression #OCD #Anxiety

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    Does anyone else feel absolutely knackered and wrecked after speaking with a GP?

    Does anyone else feel ABSOLUTELY knackered and wrecked after speaking with a GP?

    (U.K.: GP=> General Practitioner or primary physician, sometimes you have a GP you always go to, but due to limited resources, often it's an appointment with whomever is free 🤷🏿‍♀️)

    Finally plucked up the courage to ask about the process of getting an ADHD assessment and the condescension.... was unreal 🤣

    Does anyone else pray daily to have the funds to go private? Then feels guilty and laments the privatisation of your beloved National Health Service? 🥲 And overstretched and exhausted medical staff?

    #IrritableBowelSyndromeIBS #Fibromyalgia #ChronicDepression #ChronicPain #ChronicFatigue #chronicbackpain #BackPain #Depression #Anxiety #AuditoryProcessingDisorder #HearingLoss #Insomnia

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    Does anyone else sleep through their alarms? Like a gazillion alarms, but no memory of silencing them or turning them off? 🥲

    Missed a Christmas party for what would've been my first in 2+ years 😭🤦🏿‍♀️

    #Fibromyalgia #ChronicPain #ChronicFatigue #Depression #Anxiety #IrritableBowelSyndromeIBS #chronicbackpain #AuditoryProcessingDisorder #BackPain #FunctionalNeurologicalDisorder


    Anyone can help I'd be very interested. #Fibromyalgia #ChronicPain #chronicbackpain #Arthritis

    I'm looking for some advice, I'm used to all the fibro and chronic pain also the chronic fatigue. Over the years I have had alot of cortizon injections in my lower back plus a rad ablation, This past 7 months I've had chronic back pain going down both legs at the back. This has got worse I have constant bladder/bowel problems and numbness in hips butt so on. This past few weeks has developed a new one chronic foot pain. I work really hard at keeping myself grounded. The doctors here on this little island do not perform tests after tests they only test for the normal blood work. It takes months or years to see the pain specialist infact I waited 2 yrs to see him then another 2 yrs to see the pain clinic phycologist. Still waiting on them. My feet are tingling burning they are not swelling yet feel extremely hot to the touch. I'm a Walker have been for years. Kept going with the help of meditation and mindfulness. This is a new one and any help or advice would be so helpful ⚘💞🌹Thankyou 🌻🙏🌟

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    Your thoughts on the Musk implant? #Bipolar #Bipolar2Disorder #Arthritis #Headache #SleepApnea

    So recently I had a conversation with someone about this brain chip Elon Musk is perfecting. Their answer was hell no.

    My answer he’ll yes......

    If they can control my pain receptors....I’m in.
    If they can control my arthritis....I’m in.
    If they can control my sleep apnea....I’m in.
    If they can control my chronic back pain....I’m in.
    If they can control my self harming....I’m in.
    If they can control all the things my bipolar controls....I’m in

    On top of that, if they can give me the ability to understand other languages and maybe speak them as well....I’m in.
    If the interaction part they’re on about, let’s me interact with my computer and car....wowsers....I’m in.

    Above all, I know I’m older than most on here, (I think), if it lets me lead a long and fruitful life ....I’m in.

    I don’t need to be brighter or massively intelligent. I don’t need to be earning tons of money. Hell I don’t need much to make me happy.....but boot bipolar and pain from my life then.....I’m in.

    So if anyone on here has the ear of Mr Musk.....please tell him I’m a willing human trial for his chip. I can’t pay for one but I sure as hell can be an advertisement if it works. If I die in the process, then no worries. I’ve had more goes over the years and he will just be doing it better.

    #ElonMusk #Bipolar #Borderline #BipolarDisorder #Borderline Bipolar depression #Arthritis #Pain #Headaches #chronicbackpain


    I'm new to the community and would love to hear some of your insights and potential diagnoses to your chronic back pain.

    I am wanting to create a business for chronic back pain sufferers to give support and guidance toward different modalities of care. I'd love to hear if you have found out a diagnoses related to your back pain? What kind of treatment options have you tried? Are there any self-managements you've tried? Meditation etc. Would love to hear from you :) #chronicbackpain #ChronicPain #heretosupport


    The dentist

    I like going to the dentist because I like getting to lie down for an hour. 🙂#chronicbackpain #Fatigue


    Anyone here have/had an intrathecal spinal pump implant? It’s months after post op and I’m concerned. Is this normal?? #ChronicPain #SpinalPain

    My lower abs feel almost detached. I’m very petite and the medication reservoir six out of the side of my abdomen. When exercising I can’t contract lower abs and this can only increase back pain if these muscle atrophy. And then the Bloating and almost overnight weight gain that’s occurred despite no change in diet, no period since implant, & more. Is this normal?? #chronicbackpain #intrathecalSpinalPump