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    I Complete Me

    Embracing my thyroid hair loss hat look 🤓. Thankful that it’s winter, and a special shout out to my Alopecia and cancer hair loss sisters. You do not have to be brave for me, or inspire me. I just want to say I see you and acknowledge how vulnerable hair loss makes us in a society which places extreme value in all of us with chronic illnesses being “whole again.”

    For me, courage is saying I may never be whole again—and that’s okay 🖤

    #ThriverThursday #AlopeciaAreata #PostchemotherapyAlopecia #Cancer #HairLoss #HypothyroidismUnderactiveThyroidDisease #ChronicIllness #MyCondition #ChronicFatigue #ChronicBeauty #Fibromyalgia #Spoonie #thisismetrying #iamwhole #wholeself

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    Thursday Thoughts #MentalHealth

    So much to unlearn but having my health need to be my number one priority due to illness - forced me to figure out what I really needed & wanted to be satisfied with my life ♥️

    #MightyTogether #ChronicIllness #ChronicPain #CheerMeOn #ThriverThursday #Anxiety #Depression #BrainInjury

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    On a scale from 1-10 where 1 is "just surviving" and 10 is "really thriving," where do you fall today?

    Many days I've felt *so far* from thriving. The opposite of it. If this feels like where you are right now--I see you ❤️

    Join us tomorrow for a talk on the highs and lows of living with invisible illness, specifically #InflammatoryBowelDiseaseIBD .

    We're here for you.

    #UlcerativeColitis #CrohnsDisease #ThriverThursday #Anxiety #Depression

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    What is a little #medical #Victory you have had this week?

    I about did a happy dance this morning when my doctor told me my white count was down to normal levels... AND he is letting me do 2 more days of IV vancomycin instead of 5! I’ve was diagnosed with an #CommonVariableImmuneDeficiency . and antibiotic resistant pneumonia. So it’s been quite the wild ride! Sometimes the smallest sucsesses can actually be pretty HUGE What is a small medical sucsess you have had This week? #ThriverThursday #MightyQuestions #MightyTogether

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    Your Voice Matters

    Say it loud and say it proud! I am Me and I am Mighty!

    Hey Mighties, as part of this supportive community, I am setting a personal 2020 goal to engage more. A life with multiple chronic illnesses and mental health challenges can create unhealthy isolation. That’s a no-go for me AND a no-go for you. Let me hear those voices, comment below I am Me and I am Mighty! And, are there any goals you’d like to work towards?


    #MentalHealth #SocialAnxiety #Isolation #ThriverThursday



    It is now a new year and I am 9 dats late saying that to you guys but I wanna know what are some goals you have for this year big or small I wanna hear them all #MentalHealthHero #CheckInWithMe #New #ThriverThursday


    What not to do when you see a sick person ! - new article!

    It seems like sometimes when it comes to your chronic illness, friends, family, but especially strangers. Know exactly the wrong thing to say 😂❤️. Illness isn’t a “typical situation “ and it’s HARD to find the right thing to say.

    In this latest article “ what not to do when you see a sick person” I share about the weirdest comments and advice I’ve ever received because of my illness.

    And one Simple question you can ask that may save yourself from a major faux pas! #smileon 🐷 #Spoonie #ChronicIllness #weridquestions #sickchickstrong #MightyTogether #ThriverThursday #InvisibleIllness

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    Six Years of Pain

    In 2013 I got married. I also had my first shoulder surgery. I had a torn rotator cuff and labrum, along with bone spurs and synovitis.

    In 2014 I had a revision, as the first surgery made me worse, along with a carpal tunnel release.

    In 2018, after years of dealing with chronic pain and taking NSAIDs every day to try to manage, I developed a perforated ulcer, so I underwent emergency surgery and spent a week in the hospital.

    In 2019 I was diagnosed with Ehler's Danlos Syndrome, which helps explain why my labrum and rotator cuff tore from a minor accident, and why surgery didn't cure it.

    Today I am much better but I still deal with chronic pain. I probably always will. But I'm fortunate to have a great support system and they help me fight through.

    This group of photos reminds me of what I've been through and what life can be. I'm grateful to be here today even though I'm in pain.

    #MightyMinute #ThriverThursday #MyPainPointOfView #ChronicPain #EhlersDanlosSyndrome #RareDisease


    #ThriverThursday #Dysautonomia I’m Thriving At My Own Pace

    This may seem like a really silly thing to be proud of, but today I have successfully swept the kitchen floor and I plan on sweeping my living room floor too if I don’t die of a heat stroke first because my autonomic nervous system hates me. Right now I am taking a small break and then I shall attempt to complete a few more chores at my own pace. Thanks if you read through this kind of boring post. 😂💜


    Thriving Through Inspirations #ThriverThursday

    I’ve always believed that “for every negative, there is a positive” and have been a silver linings seeking person since I was a child. That has helped me keep going.

    Since college, I began a hobby of collecting inspirational quotes. Surrounding myself with these uplifting words truly helped me handle so much stuff.

    People have often commented on how they find me so inspirational because I work a lot and have so many medical issues thanks to #EhlersDanlosSyndrome . It isn’t easy staying positive when you have unpredictable pain and can’t really plan a future.

    I’ve noticed that so many people could use some inspiration and positivity. That’s why I launched a new Facebook page called Inspirations.

    Follow me on IG @inspire_beni

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