autoimmune disorder

Earlier in Febuary I got the flu. As I was recovering I started to slowly lose my vision. I was taken to the hospital where we found out I have optic neuritis. Which than later turned into bilateral optic neuritis spreading to both eyes. I was in so much pain and they put me on IV steroids for about 7 days. I then got to go home and take them orally. I started with 80 mg for two weeks and am tapering down to 0. Currently on 30mg. The side effects are making me very depressed. I've gained so much weight in my mid section, neck, and face. I have to have a low sugar and low carb diet to prevent ny blood sugar from spiking. My hair is falling out in clumps. My back hurts, I'm shaky, I'm CONSTANTLY sweating, insomnia, acne on my shoulders, water retention.... you name it.
And still.... we don't know what caused my body to develop optic neuritis. They are doing so many tests for autoimmune. L.. but I just eant answers because I want to see clearly again and not have so much pain.
This is my MOON FACE. I am so scared that it may never go back to normal. I feel so self conscious because when I see people i know they obviously notice how much weight I've gained. #OpticNeuritis #MoonFace #Steroids #MentalHealth #AutoimmuneDisorder #MultipleSclerosis #ChronicIllness

Just wondering if anyone has recurring dreams that are a little out of the norm... I dream every night, or should say remember a lot of what I dream.

Within the past year or so I've been having numerous dreams of being in the grocery store, or the mall, or wondering around a city, none of which I'm familiar with.

Never had these seemingly 'normal' dream situations that replay over and over. It's obvious to say, "What's the feeling?" Which range from scared, confused, to ambivalent.

But they're driving me batty, and I want to purge them.

Anyone get this, at all??

I've had every which sort if nightmare, but these are something else. A new breed

#dreams #PTSD #Nightmares #Trauma #MentalHealth #Insomnia #Sleep #PeripheralNeuropathy #ChronicIllness #ChronicPain #sleepdisorder #Disability #Depression #Anxiety #OCD #Migraine #AutoimmuneDisorder #Undiagnosed

Where I go, in my memory..

#RareDisease #ChronicPain #Depression #PTSD #Undiagnosed #AutoimmuneDisorder #Anxiety #Arthritis #DistractMe #Neuropathy #Migraines #safeplace #Trauma

Hey all, Ive been having inner nose inflammation for at least 3 months, its worse in the right. I do have chronic sinus issues,but never this. You just look up my nose and the tissue is red. It hurts and has caused nosebleeds at times. I've been to the ENT and they gave me a steroid nasal rinse and ointment. It helped some but didn't go away. I was kinda peeved they weren't trying antibiotics, which i know...i know all about them. It feels raw in these areas and can be pretty painful, cause headaches. I have to go back but am not happy with the treatment plan as I cannot take oral steroids, but that is all they offered. Not sure what to do..just really lost and frustrated. I've had nasal issues over half my life and never had this. I know its not covid, ive been tested. Im on an allergy shot, i take meds, nose rinses, flonase etc. I don't get it at all and not getting much help.#chronicdisease #ChronicIllness #SinusInfection #ent #Inflammation #RareDisease #ChronicPain #nosebleed #Undiagnosed #Upallnight #AutoimmuneDisorder #AutoimmuneDisease #Anxiety #Fibromyalgia #Migraine #nosepain

Is anyone taking hydroxychloroquine for Sjögren’s syndrome? I am in pain. My legs and arms are hard to move, I can hardly grip a pen and my handwriting is off, and there is a constant sensation in my arms and legs that I can’t explain- like neuropathy. The neurologist I’ve been referred to can’t see me until October. I’m thinking of asking my regular doctor for an Rx of hydroxychloroquine. Any thoughts?

Do we have a reset button? And start all over again..

#EllaineTheADWarrior
#AutoimmuneDisorder