Latest
I’m new here!
Hi, my name is DisabledLiv. I want to spread awareness and figure more about my cond
#MightyTogether #ChronicOrthostaticIntolerance #pans/PANDAS #CommonVariableImmuneDeficiency
2 reactions •
1 comment
Common Variable Immune Deficiency
Join the Conversation on
Common Variable Immune Deficiency
Common Variable Immune Deficiency
1.3K people
0 stories
204 posts
About Common Variable Immune Deficiency
What's New in Common Variable Immune Deficiency
All
Stories
Posts
Videos
Latest
Trending
Post
New here!
Hi! I’m new here. I downloaded the app about a year ago, but never used it. I am not a big fan of anything social media related or adjacent. Lol. But…I decided this would be good. I’m still trying to figure it out and how to use it. Haha. I’m sure I’ll get there…eventually.
#PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #EhlersDanlosSyndrome #CommonVariableImmuneDeficiency #MastCellActivationDisorder #chronicmigraine #ADHD #longcovid #Asthma #SystemicLupusErythematosus #RheumatoidArthritis
5 reactions •
2 comments
Post
See full photo
Happy World PI Week to my fellow zebras out there!
World PI Week is April 22-29
Immune Deficiency Foundation
#CommonVariableImmuneDeficiency
1 reaction Post
I'm new here!
Hi, my name is SpoonieSensei. I'm here because bringing awareness to the illnesses with which I fight and many others is crucial to me; awareness necessarily informs, and the the more patients, doctors, and others are informed the more research will be sought out and funded. I fight for every chronic illness warrior out there as well as for my many friends and acquaintances who have been taken by illness and a lack of awareness and information. I don’t want anyone suffering even like I have had to suffer and that motivates me every day!
#MightyTogether #Fibromyalgia #PTSD #RheumatoidArthritis #EatingDisorder #Behcet 'sDisease#CommonVariableImmuneDeficiency #TrigeminalNeuralgia
12 reactions •
6 comments
Post
I’m new here!
Hi, my username is corgiville, chosen for one of favorite books by Tasha Tudor. I'm here because I developed mast cell activation syndrome around 2013, which has almost completely paralyzed my intestines and has now started attacking my muscles, leaving me mostly homebound. I just discovered this site and I already feel much less alone than I have for the past 10 years.
#MightyTogether #CommonVariableImmuneDeficiency #PrimaryImmunodeficiency
4 reactions •
2 comments
Post
I'm new here!
Hi, my name is razzle_dazzle. I'm here because we are better together
1 reaction •
1 comment
Post
See full photo
Always abandoned
Just need somewhere safe to vent.
I’m feeling abandoned by friends. I’m suffering through day 13 of severe covid right now and it just seems to annoy everyone. I have #PrimaryImmunodeficiency along with a few other health issues, so I tried extremely hard to avoid the virus for three years. It finally caught me. I knew I would get very sick, that’s not the surprising part.I’m just let down but the support from certain friends. People I thought would be more concerned or maybe even worried. I’m grateful for those who are, don’t get me wrong. Just still hurts. This is truly just a highlight upon what’s already been an existing fault line in friendships where I’m ignored. I’m the lesser friend because I’m “always ill” or can’t keep up. I can’t go biking or canoeing so I’m just not invited. During the pandemic spike I couldn’t leave my home so I was just left out… occasionally sent a photo of friends together tagged #wishyouhere .
They don’t understand how much it hurts to grieve a life you cannot live. Friends who just leave you behind like garbage. But then again, even the garbage gets to go out once a week.
#CommonVariableImmuneDeficiency #RheumatoidArthritis #Fibromyalgia #ChronicDepression #Anxiety #PTSD
21 reactions •
3 comments
Post
Zebra Strong!
Common variable immune deficiency patient going on 8yrs. now. I wasn’t diagnosed until the age of 28 due to my own insistence after battling a lifetime of illness & infections. We are #zebrastrong ! I’m so happy to support #RareDiseaseDay ! @IDFCommunity #piawareness #CommonVariableImmuneDeficiency
1 reaction Post
See full photo
Introduction post
Hi, my name is DeadStar. I’m here because
#MightyTogether #ChronicIllness #ChronicPain #ChronicFatigue #RareDisease #InvisibleIllness #Disability #DisabilityInclusion #DisabilityRights #piawareness #PrimaryImmunodeficiency #CommonVariableImmuneDeficiency #zebrastrong #IVIG ##Spoonie #spooniesupport #Arthritis #ComplexPosttraumaticStressDisorder #Comorbidities #Anxiety #Agoraphobia
30 reactions •
6 comments
Post
Does Lyme contribute to getting Stiff Person Syndrome??
Anyone out there that contracted Lyme before being diagnosed with Stiff Person Syndrome?? I wonder, could it be a cause???? #StiffPersonSyndrome #CommonVariableImmuneDeficiency #LymeDisease
5 comments
