occupational therapy

Good Afternoon Mighty Family n Friends 👋🌞☀️🌡

I've just had my visit From a lovely man called Cat. He was in full PPE , he must have been hot,
He fitted me for some new crutches and showed me how to go up and down my 4 steps properly 😳 so that's why with my walking stick my shoulder and elbow are killing me.
Know I now why 😅

So my neighbours will be looking at me strangely as I keep practicing going up n down , up n down lol.
Ha ha .😅🙃😁🤪

He also fitted a bath board as decided a bath chair was just going to be too heavy for me to use and remove . (Puppy baths)

So a board is better. So I can shower yayyyy, and they coming to fix a rail so I can then get out of the bath better. Whoop whoop. It's what I wanted n so need.

Really nice guy and the pups just layed down and behaved.🐕🐶🐾...what unheard of.. has he got superpowers....🦸‍♂️

Going to fit a under the bed rail too and toilet rail too. Oh and outside rail so I've got one both sides.
Perching stall for kitchen fitted to my butt. Ha ha . Thought that was funny.

Hopefully this will make life and bathing washing my hair much easier. I'm so glad I phoned up and did it.
Thankful for living in the UK and to the NHS

Super grateful for my Mighty family and all your help yesterday. Bringing my anxiety down, and all the love. 💜💙😘

So glad for this community the compassion love kindness
You are all superheroes in my book. 😘💙💜💪🤗👋🦓🦄🦓🦄🦓
Love you all Tj

#MightyTogether #Bekindtoyourself #Hope #OccupationalTherapy #PsoriaticArthritis #Love #compassion #RareDisease #Superheroes #SphincterOfOddiDysfunction #TrigeminalNeuralgia #ClusterHeadaches #GlossopharyngealNeuralgia #Arthritis #Bekind

Hello 👋Mighty Family n Friends

I have scary stuff going on tomo.

I only went and phoned up the occupational therapist and asked if I could have a home assessment didn't I.
Well they phoned me back the same day and went through some of the things I could do with in the house. Well that was last week.

Today someone from my local hospital phoned up........ eek and he is coming tomo, to do the home assessment.
Anxiety is now sky high.....
Do I really want a bath lift, am I that disabled, or is it just my anxiety talking.

Omg omg omg
Someone talk me down from the ceiling plz.😥
It's happening too quickly, I need more time to adjust to this.
I thought with covid19 they'd be far more busy, and it would take longer than this.

It took me over a month to just phone up in January and I phoned the wrong department!!! So I've kept the right phone number and then the Pandemic hit. Now it's all Happening too fast. I can't cope.

Help!!!!!
He is coming at 11 tomorrow morning.
I know I need the help and equipment so why am I panicking so much. Why am I like ... I don't want this. This is stupid, ugh, Grrr.

Love n hugs Tj
Venting ranting in a mess today
🙄🤨😯🙃😕😧😬🤯🤪😵😳 #OccupationalTherapy #Equipment #PsoriaticArthritis #ChronicPain #AnxietyAttacks #Hope #Love #Bekindtoyourself #Kindness #SphincterOfOddiDysfunction #RareDisease #Depression #Disability #InflammatoryArthritis #Osteoarthritis #HipSubluxation

We had our first snow day yesterday – not even halfway through December!

The local hall took in the older kids in the afternoon and provided pizza and bowling.

Meanwhile, I felt that AJ needed to experience the snow. But coming off of being sick and knowing he doesn’t tolerate the cold well, I didn’t want to risk taking him outside.

So we brought the snow inside instead!

I did make him wear gloves. He really wasn’t sure what to think at first.

He eventually decided it was safe to taste test… And his nurse helped make a snowball that they played catch with until it fell apart.

All-in-all, the snow was a win. He truly has been doing so much better at sensory activities lately, and this was a great example of that.

My carpet got a little wet – I’m sure a more on top of it mom would have thought to move to the kitchen floor instead – but he had fun.

In the midst of a way-too-early-in-the-year snow day, it was just what I needed to remember that snow isn’t actually the root of all evil – even if the general consensus on social media seems to say so!

#DownSyndrome #HypoplasticLeftHeartSyndrome #PediatricStroke #PhysicalTherapy #OccupationalTherapy