Hi, my name is Jessica. I'm here because I have been healing from PPPD/Vestibular Migraine/Dizziness after having a hysterectomy, covid, and severe SSRI withdrawal. I heard about this group from a co worker whose wife has found help with The Mighty.
#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #EatingDisorder #PPPD #VestibularMigraine #longcovid
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Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
Mita’s Story
#chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes
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I have a visual disability called oscillopsia, which in its simplest form manifests as bouncing vision. How I visually interact with the world directly correlates to my chronic migraine, so my eye doctor is a key member of my medical team.
🤓 Something new I’m trying out: Acuvue Oasys Max Daily Contact Lenses
💡 These lenses were specifically developed for “people with a digital lifestyle.” They are supposed to filter out blue-violet light from screens, fluorescent/LED lights, and the sun. Ideally, they can help migraine patients like me who regularly experience photosensitivity.
⚠️ So far, I’m cautiously optimistic. The lenses themselves are a little less wet than I was hoping for (which is important since I’m currently being tested for autoimmune conditions that can cause chronic dry eye), but they really do dim the world ever so slightly and looking at my computer hasn’t been as taxing lately. Ideally they’ll have a positive impact on my pain levels, but the jury is still out.
What about you?
#Migraine #IntractableMigraine #VestibularMigraine #ChronicPain #ChronicIllness #MentalHealth #Disability #RareDisease #Fibromyalgia
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So nearly every day since the 3rd I have been dealing with a migraine of some kind and I feel like I'm going insane. I want to scream and through everything. It's not so much as the headache pain but more so the symptoms I get when I'm recovering from a migraine. Can't talk or walk straight, body is heavy, sensitivity to light and sound that also causes more migraines, extremely tired, brain fog, ibs and fibro acting up too. Body pain with these symptoms always particularly drive me up the wall. F*** global warming, screw the weather not being stable. How February treated you? #VestibularMigraine #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine
Have been having a migraine nearly every day since the 3rd. I feel really sad and alone. When I got sick I isolated myself from everyone and I regret it so much. I wanna be a part of the world again. #VestibularMigraine #ChronicVestibularMigraine #Fibromyalgia
Mighty migraine fam, we’ve heard from so many of you about the importance of the relationship with your headache specialist or neurologist.
For some of you, your doctor is the only one who “gets” it. For others, doctor-patient communication is a frustrating experience. Share whether the above statement feels true or false to your medical care in the comments below.
#ChronicPain #ChronicIllness #IntractableMigraine #MigraineWithAura #HemiplegicMigraine #VestibularMigraine #Migraine #CheckInWithMe #mightywithmigraine #Fibromyalgia
Hi Everyone!
I have been recently starting my migraine treatment journey and have been more diligent about noticing and tracking aura signs.
I've noticed that along with the aura and dizziness symptoms that I seem to have a ringing in my ears and hearing loss as well as an uncontrollable hand tremor.
Do any of you have similar signs?
Knowing other people experience the same thing is kind of comforting...
Thanks!
I have noticed that I have been getting the same pre migraine symptoms everyday. Has any one else experienced this? It's between 6pm and 8pm every day. I am a night owl, so that has always been the best time of day for me. I can't make sense of it. I'm come a long way on my migraine journey, but I am always searching for answers.
#Migraine #VestibularMigraine
I’d love to get your opinion, Mighty With Migraine fam. In the first decade or so of my chronically ill/disabled life, I used the term “I suffer from…” to describe my journey with migraine. Even on my personal website, my bio included the words “I suffer from migraine” for a long time.
But somewhere along the way, my relationship with my condition changed. I began to accept it more and gradually pivoted to saying “I live with migraine.” The nuance may seem subtle, but it was a big change for me. (The same can be said for how I talk about being disabled.)
I’m curious where you’re at in your own life. Do you prefer to use one wording over another? I’d love to know why.
Regardless, I’m here to reassure you that there’s isn’t a right or wrong answer to this question. It’s about personal preference at the end of the day.
#CheckInWithMe #mightywithmigraine #HemiplegicMigraine #Migraine #VestibularMigraine #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Spoonie #Fibromyalgia #Endometriosis
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