chronicmigraine

As some of you may know from my previous post, I am on a medical leave from my retail job due to a herniated disk in my lower back. I also suffer from several chronic illnesses (fibromyalgia, CFS, chronic migraines, endometriosis, interstitial cystitis, degenerative disc disease and numerous allergies and sensitivities) and I had a cervical fusion and a non-cancerous mass removed from my spine a few years ago that left me with nerve damage in certain areas. Due to the back injury my other conditions have spiraled out of control and I’m realizing that I may not have the ability to return to my retail job once my medical leave ends. So I have been researching other kinds of money making options and freelance work keeps popping up. I’ve been looking into Fiverr and Upwork and I’m wondering if any of you have any experience with it that you could share? Trying to figure out if it would be an effective way to earn some income. Any input would be appreciated!

#ME /cfs
#Fibromyalgia
#chronicmigraine
#InterstitialCystitis
#DegenerativeDiscDisease
#Nervedamage
#Endometriosis
#Allergies
#cervicalfusion
#ChronicIllness

Does anyone else have Prodroms that indicate the potential severity of the oncoming #Migraine Attack? If my prodrom is a very specific food craving I call it a "Craver Migraine" and it's one of my worst types. If I'm having insatiable hunger, like I eat and eat and eat and I'm still hungry, that's a "Hunger Migraine" and I'm in for an even worse attack than a craver. Tinnitus, random "Ear Worm" song I haven't heard in years but it's stuck in my head out of nowhere, and a "Yawner" prodrom is a mid level and means I can probably break it with what I have. The "Blinding" aka Aura or Occular Migraine depends on what percentage of vision loss occurs as to how severe it will be, 10-20% vision loss I can manage, 30-50% loss I'm looking at imatrex, 60-90% may mean ER level. If I have a combo of Prodroms, like Hunger and Craver together I'm definitely in trouble. Does anyone else name their migraines? Is this just a weird quirk only I do? Lol, I AM weird so no worries if you comment and say I'm weird. ^_^

My migraines have been 24/7, non stop for almost 18 years, that's literally more that 50% of my life (17yo-35yo), and because I've never known a moment without Migraine, abortive meds like Imatrex only help the symptoms like nausea, photophobia, sound sensitivity and smell sensitivity, but doesn't actually affect the Migraine itself or prevent them. Comment and let me know if you name your migraines too.
#Migraine #ChronicPain

If 1000 people with your same condition where in the same room as you , I bet you would be the only one with your perspective on life “

The man at our churches end of summer party responded to me in what felt like a half disgusted , and in another way half impressed form of bewilderment .

He is the type you can tell life had not handed a kind hand to .. and in process he has hardened with the pains he has had to endure
( kind of how the same water that softens a potatoe hardens an egg )

I smiled and said to him

“ Not exactly, I’ve had the opportunity to work along side and get to know many with conditions like mine ,
Or worse .. and the perspective on life with severe illness .. it’s kind of a mixed bag “

And he could just not wrap around his head around how im so happy .. but a 28 year old , with failing health .

I tried to explain how even though im lacking in the physical health department .. I I feel like I can have joy because God has blessed in so many ways .

With a chuckle and a smile he told me he was Jewish 😂❤️.

He could not wrap his head around how I see the world .

And I could not wrap my head around how he sees the world .

Maybe God knew I needed this conversation when it seemed like all I was doing today was marinating in the frustrations of my current situation .

I even came out to our Church cook out knowing I didn’t physically feel good enough to be there , and cursing out the constant drizzle of rain .

But as it rained , 2 rainbows formed

And through my conversation with this man . The rainbows just seemed to get brighter .

As I left the party , feeling a new perspective on how to face my current dilemmas .

I couldn’t help but say a silent prayer to God thanking him for the rain in my life .

So I know just how important rainbows are . 🌈

How has your health changed your perspective in a way others may not understand? #RareDisease #CommonVariableImmuneDeficiency #MastCellActivationDisorder #Epilepsy #LungDisease #MentalHealth #MixedConnectiveTissueDiseaseMCTD #Glaucoma #Gastroparesis #chronicmigraine

I know, I know — it can be difficult to choose just one, especially if you live with multiple health conditions. I’m having a hard time deciding between depression and migraine head pain myself! Both symptoms really seem to have it out for me today.

While the chronic nature of chronic physical and mental illnesses means we are affected by our conditions and their symptoms on a regular basis, there are some days when a single symptom stands out from the rest.

What symptom is getting on your nerves more than usual today? How is it affecting your ability to go about your day and night?

#MightyMinute #CheckInWithMe #Spoonie #ChronicIllness #ChronicPain #MentalHealth #RareDisease #ADHD #chronicmigraine #IrritableBowelSyndromeIBS #Depression #PanicDisorder

Disabled and chronically ill folks do not enjoy being forced to give up the things they love to spend their days in bed. #ChronicIllness #chronicillnessawareness #chronicillnesswarrior #chronicillnesslife #chronicillnesscommunity #ChronicPain #chronicpainawareness #Chronicpainsucks #chronicpainlife #ChronicPainRelief #chronicmigraine #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Fibromyalgia #fibrofighter #fibrowarrior #fibroflare #Flareup #flareupssuck #bedbound #housebound #AmbulatoryWheelchairUser

There’s a joke somewhere about four neurodivergent people walking into a recording booth and attempting to focus on the topic at hand. In this episode, Ashley (hi 👋) is joined by @camararollin, @jwertman, and @skyeg as they dive into the wide spectrum of neurodiversity, imposter syndrome in relation to identifying as neurodivergent, and how neurodivergence can often be misunderstood by the people who are meant to be the most helpful in supporting those individuals — namely doctors and educators. Additionally, find out how stacking diagnoses can feel like Pokémon evolutions (and of course, stick around to hear our favorite ones!).

Grab your headphones, your favorite beverage, and subscribe to Table Talk With The Mighty to hear more topics like this every Wednesday!

bit.ly/tabletalk_10-04-23

#Podcasts #neurodivergent #Neurodiversity #MentalHealth #ADHD #Autism #SensoryProcessingDisorder #chronicmigraine #ObsessiveCompulsiveDisorder #BipolarDisorder