cps

I read Brianna’s story about when friends get tired of hearing about your chronic illness, and then a “friend “ texted me and asked how I’m feeling and I said “the same”… but this is
What I really wanted to say…

l have better days and then really bad days where I can’t do anything at all because the pain is so bad or the symptoms are in full force- it depends on the day.
It’s like one day I can pick my leg up instead of dragging it and then the next day I can’t. The pain is horrible and constant- the muscle spasms are constant and my neurologist is talking about a pump for the muscle relaxer medication.
I’m learning a lot about syringomyelia though and trying not to get depressed or discouraged but it’s really hard because it’s a very rare and Besides doctors appointments or being in the hospital I haven’t been out of the house since august 13. I literally can’t go anywhere because I can’t walk. My right leg doesn’t work-I have to drag it more or less. A friend of ours offered a wheelchair but dave hasn’t gone and picked it up.

I have a form for the Secretary of State to get a handicapped placard for parking but I have to find out how to get it. the police department here in WC doesn’t do them but —city—- does but i think i have to be a —-city—- resident. I don’t know how to get it.

Since it ls -SPORT- season everyone is busy doing that and with everything that happened to- husbands NAME- he’s not much help which i totally understand. He gets up at 3:30 in the morning every day. Then goes to SPORT practice right after work and comes home and eats dinner and goes to bed at 8:30. On Saturday they have practice and go over film and he and YOUNGEST SON get home at 12:30 then he takes DAUGHTER to the grocery stores and there’s a few hours but he has to do stuff around the house like the garden, yard etc. they do a zoom meeting on Sundays for SPORT too so literally he has no time and I understand. This is what life is always like due SPORT season but usually I’m included in it. I want to go to the games but can’t. It was such a big part of my life and now that’s gone too.

Someone literally told me if I imagine myself walking my brain will make it happen- Nobody understands or gets this. If I had a stroke or broken leg I think people would understand it better but because it’s so rare some doctors don’t even understand it. My primary care doctor said “but aren’t you glad it’s not MS?” Well of course but this is an awful thing in and of itself.

In addition to my degenerative disc disease (I have multiple herniated and bulging discs in my neck and lower back which is painful and causes sciatica in my legs) and I have multiple hemangiomas (blood vessel filled benign tumors on the spine) in my neck, thoracic and lumbar spine which can cause pain too- and now the Syrinx is located at C7 to T1, it’s 5mm wide (your spinal cord is around 6mm wide) so it’s blocking the normal flow of cerebral spinal fluid which is what is causing all the symptoms. (Pain, numbness and pins & needles that travels over my whole body: arms legs chest face back etc , the inability to use my right leg, incontinence and constipation, migraines, dizziness and vertigo,

There’s literally nothing they can do for the syrinx in my spinal cord other than treat the symptoms. It is interrupting the flow of cerebral spinal fluid and also putting pressure on my spinal cord from the inside out - and causing all of my symptoms. I may have had it since 2021 based on MRIs but it was much smaller and since recently it’s swelled and grown in size (see the MRI image) .

In some cases they can put a shunt in to drain the fluid but it literally fills right back up so they drain the spinal fluid into your body- but my team at HOSPITAL NAME said I’m not a candidate for that because of my degenerative disc disease and in some cases it doesn’t help or makes symptoms worse- it’s not a very successful thing either- sometimes they can do a “decompression “ surgery but they usually do it only for syringes that are really big - but they want to monitor it to be sure it doesn’t grow bigger since it has recently swelled and grown. Sometimes syrinxes have a rapid onset and growth period. They keep asking me if I’ve had a recent trauma like falling down stairs etc and the only thing that I can think of is just repetitive motion at work that one day with all the customers in a row but other than that … nothing has happened. They said that could have flared it up but I truly thought at the time it was my degenerative disc disease and associated symptoms.

I want to use my neurologist appointment in October as a second opinion- and I found a doctor in TOWN NAME that has experience with syringomyelia
but his wait list of 12-18 months out.

As for work- I have no idea if I qualify for social security, I haven’t filed yet for it but I’d rather make money other ways- and not depend on that- sooo…
I’ve been doing BUSINESS NAME because it’s all online and I am trying to keep it going because it’s the only way for me to make money. I’m also joining some brands to be an affiliate/ambassador trying to earn commission on sales (also since it’s online) in a nutshell , I’m trying to make the best out of a crappy situation. It’s just hard because one day I might feel ok like I can manage the pain and the other symptoms and the next day might be awful where all I can do is lay on the couch because of the pain or a migraine or can’t feel my arm or hands. Every day is different and I have no idea until I wake up what it’s going to be like.

I’m really sorry to dump all that on you but I’m so not in a good place at all. I’m not saying it to be a “poor me” person but honestly my life sucks right now.
#Syrinx #Syringomyelia #chromic #PainManagement #Loneliness #Depression #cps #EhlersDanlosSyndrome #DegenerativeDiscDisease #DDD #spine #Chiari #ArnoldChiariMalformation #myelin

Medical kidnapping and illegal seizure are terms rarely used in the medical, psychiatric and law community, but they are real terms. You can read about medical kidnapping on Attorney Allison Folmar web site. To explain it to you in terms you may understand. For example, you take you child to the doctors and your complains are regarding their vaccinations. You explain to the doctor that your child had a reaction to the previous vaccination and you do not want to get any more for your child. The doctor does not agree with you and tells you that if your child does not get the vaccine they will cite you for medical neglect, eventhough your child has had all their other vaccines, but due to your refusal the medical personnel at the hospital calls CPS and they arrive. CPS states that since you refused medical treatment, your child needs these vaccinations and that is why they are having medical problems, you disagree, but since the hospital made the call the Social Worker states they have to take the child. This was one example of medical kidnapping.

What was done wrong? Nothing

What could the parent have done differently? Nothing

Where her rights violated? Yes

Where did the child go? The CPS worker took the child to enter foster care, while the case is being created for you to go to court.

Is this legal? No, but Medical kidnapping is crime, but many Attorneys do not practice specifically in this type of crime and do not refer to it as such. Within the medical kidnapping, you have violations of other laws that aren't followed, such as civil rights violations, the 4th, 8th and 14th amendment. Depending on the state you live in there may be other violations.

How can this happen? Financial Incentive

Everytime a child comes into state care, the federal government pays the state agency money for each child. If your child has a disability that comes into foster care, the state receives additional money; therefore, the more kids in care, the more money the state receives. Now, to be fair and honest The State of Maryland Baltimore City Department of Social Services are mandated to uphold policies and procedures to ensure children are safe, but if you don't have an administration that is abiding by the laws, policies or procedures then your rights are violated.

Who advocates or speaks up for the child and parent? Y.O.U

If there are specific questions that need to be answered, please provide them. #Abuse #SocialServices #FosterCare #cps #medicalkidnapping #parentalalienation #narcissistic #triangulation #manipulation #Children #MentalHealth #lawyer

In the next part of this journey I will provide certain laws and terminology used, so you can understand them.

What a Mess! #cleaninginpain
No I don't have ocd. And if I did at least someone would "get me". I tried cleaning a file cabinet in a desperate attempt to find my child's birth certificate; I was careful and am on oxycontin 30mgs daily slow release and had on my tens system. Within 30
minutes my neck had more than enough and within 45 I could not move. The bag of recyclable unneccesary papers was over flowing and I found unused holiday cards. No birth certificate and flat out in bed with fast acting morphine and muscle relaxants. That was my accomplishment for two days. Other than using the embarrassing portable toilet and looking at my mobil/cell telephone in bed my spouse had to wait on me while working full-time from home during quarantine. This is not new. This is everyday quarantine or not. My spouse works fulltime, handles all household chores, pays the bills, comforts me, cooks, does errands, handles my meds and he does not complain. I feel guilty and miss our hikes in the forest, surprising my family with their favorite meal, I miss organizing and cleaning. I must be crazy. Who misses cleaning? I can not accept that my sheets need changing and the family pets need grooming. I can't accept that my best day is a walk with my rollater or walking sticks around our house two times. I hate my disease I hate, hate,hate it. A good day is rare and I remember them in detail because of their rare occurrance. I want to play in the dirt abd swim in the lake and yes,I want to vaccuum my own living room.
Andee in SWEDEN

Would you rather listen to Broadway Show Tunes or Heavy Metal? Alice in Chains or Celine Dion? Barbara Streisand or the best from "Cats"? Beyonce or Bach?
#DistractMe

I do not remember what it felt like to have no pain. That life seems like someone else's. I want people to remember me for my good spirit. I am aiming to generate inner strength and accept my fate. I want to be seen as determined and strong by my friends and family. I am tired of feeling defeated. Each day I will contribute something to make this world a better place. That is my goal.

It is a beautiful, sunny fall day; I am plagued with guilt from lying in bed. I woke, took meds, have on clothes and make-up for no one to see.
#keepgoing #