Diabetes Type 1

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Diabetes Type 1
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I'm new here!

Hi, my name is Type1diabeticfor50yr. I'm here because I have not had a day without major pain since I was in my 20s. Looking for advice/support on how to manage pain and how to communicate with doctors and others who don't understand. Coworkers my age think I must be lying/exaggerating because they have no pain. Even after many surgeries for carpal tunnel, cubital tunnel, tennis elbow, trigger fingers, frozen shoulders, and frequent cortisone injections I am not taken seriously. I like to work and keep complaints to a minimum, even though I hurt every day. Some days, I am in so much pain I cannot do my job. I also have arthritis and bone spurs in my hands and throughout my body. I have one finger joint that has fused, and others that are getting there. Having Type 1 diabetes for 50 years has certainly contributed, since it is an autoimmune disease and causes inflammation. I keep it well controlled and have no outward signs of the disease. I follow an anti-inflammatory diet. People think since I look healthy, I couldn't possibly be in pain. I joke and laugh a lot, so I'm perceived as happy and healthy. Humor is how I've always dealt with pain. Anyone else?

#MightyTogether #ChronicPain

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I'm new here!

Hi, my name is Sherlock32. I'm here because I need support with my depression, neurologic disorder that prevents me from working as a nurse, and loneliness since nursing was my identity. I can't find a new dream, new hopes or desires, or a reason to live.

#MightyTogether #Depression #PTSD #DiabetesType1

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Introduction

Hi

I am 45 years old, I like to read, and trying out all things in the arts and crafts area.

I live DID and C-PTSD as a result of highly organised and transgenerational severe abuse throughout childhood and adolesence.

Also diabetes 1 since I was a kid, fibromyalgia for as long as I can remember but diagnosed when I was 35, osteoarthritis in knees and hips diagnosed at the same time, and a few years after I developed psoriatic arthritis (no, that did not make either the diagnosis or the symptoms of fibro go away, and you're not the first to ask as this can just be confusing)

So I am used to living with fatigue, pain, nausea, thd fun package of 'self-regulation' that comes with diabetes type 1. And chaos, hypervigilence, etcetera in the mental department. I've long made my peace with that and try to make tomorrow a little better by coping well today (and then there's those days...)

But last Autumn I got a covid-19 infection and developed post covid/long corona. I have been told by thd medics that my autonomous nerve system has been affected by the virus during the acute infection state. That leads to different symptoms for everyone, fatigue being the most prevalent.

In my case the symptoms are that mild exercise or stress can cause severe illness that may last from hours to days (pem), palpitations when I stand for more than 10 seconds (oi/pots, shortness of breath, nausea and digestive problems, muscle tension and spasms, problems expressing myself, problems with concentration, coordination, memory, focus, language processing and reading. And of course the fatigue which is FAR worse than I am used to.

I feel powerless and lost.

I hope to find some peers here who know what I'm going through.

#Diabetes #Fibromyalgia #PsoriaticArthritis #DissociativeIdentityDisorder #DID #PTSD #PTS #CPTSD #postcovid #long_corona #Fatigue #PEM #post_exertational_malaise #POTS #BrainInjury #pais #post_acute_infection_syndromes

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Gratitude

I have been sober for over four years now and I am so grateful today to have my family back in my life. Three of those four years I was institutionalized and prior to that I was in and out of active addiction for a long time not really respecting my family or myself because of the things I did in active addiction, plus I am a T1D and have been for 30 years now. I am so grateful to be alive today and I am not really sure how, but here I am. I am grateful. Thank you!

#Gratitude #Addiction #Type1Diabetes #institutionalized

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Gratitude

I have been sober for over four years now and I am so grateful today to have my family back in my life. Three of those four years I was institutionalized and prior to that I was in and out of active addiction for a long time not really respecting my family or myself because of the things I did in active addiction, plus I am a T1D and have been for 30 years now. I am so grateful to be alive today and I am not really sure how, but here I am. I am grateful. Thank you!

#Gratitude #Addiction #Type1Diabetes #institutionalized

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When do you stop looking?

I've been chronically ill most of my life. And I've tried A LOT of different things to help or find answers.

But I'm tired.

Worn out.

Exhausted.

Grieved.

I wonder if it's time to stop working so hard to eke out a possibility of feeling better, and just let things be as they are. Live as I am, and let it be enough.

But I'm scared that that's giving up.

Or...is it giving in? Surrendering my denial that this is how it is?

I'd love to know what my Mighty family thinks of this.

#ChronicPain
#Anxiety
#MentalHealth
#DiabetesType1
#ADHD
#PolycysticOvarySyndrome
#Fibromyalgia
#GastroesophagealRefluxDisease
#MTHFRMutation
#Undiagnosed
#Grief
#MyalgicEncephalomyelitis
#AdrenalInsufficiency

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Hello 👋🏼

Hi everyone! I am new to this group. I live with Type 1 diabetes, hypothyroidism, anemia and chronic kidney disease. I also have anxiety as a result of living with these conditions. Consequently I am exhausted most of the time and struggle to accomplish things in my life. Nice to meet everyone and hear everyone’s stories here.

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New kid’s on the block

I’m new. Married with just us and two cats. We live in a travel trailer, while I’m out of work. Recently chased down a bunch of new diagnoses after 5 years.

Lupus, fibromyalgia, degenerative disk disease along with ongoing Type 1 diabetes and anxiety.

I enjoy reading posts and stories on here. More of a lurker than a poster.

Bye.

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