Join the Conversation on
133 people
0 stories
30 posts
Explore Our Newsletters
What's New in
See full photo

Glad today is over ...... #MentalHealth #CheckInWithMe #Anxiety #Depression #Selfcare #ChronicPain

Well after a few days of the most debilitating anxiety I have had for a while due to that appointment today & the severe pain I've been in every day even just moving or walking with this catheter issues , I am just glad today is over !!I've done what and all I can do it's now waiting for results and it's out of my hands so I'm going to tey focus on the other problems and trying to get the help I need for them and try not be stressing to much over waiting for the results !! I feel like rubbish, I feel as though I look like death ,I feel as though I'm so drained with all this pain but tomorrow is a new day and I'm going to do my best to try have a good sleep ,wake up tomorrow and put my mind and focus on to other things .....

#Melanoma #MentalHealth #CheckInWithMe #Anxiety #Depression #Selfcare #PTSD #Positivity #Bekind #loveyourself #ChronicPain #SkinCancer #Endometriosis #COVID19 #longcovid #Catheter #InterstitialCystitis #UTI #AloneTogether #Parenting #GeneralParenting #Insomnia #Upallnight

36 reactions 11 comments
See full photo

Why those who identify as women so often dismissed by the medical profession?

Horribly sad that this is such a universal experience. And I'm sure one that all those identifying as women can associate with.

I'm currently living with the consequences of a UTI being entirely dismissed. Now I am in agony every day and sleep in short bursts.

And the NHS wonders why so many are bitter and sue 🙃

Something that also strikes me is that women identifying medical professionals do it as well. The internalised patriarchy is so strong within the global medical profession.

Women's symptoms ignored by GPs - health group - BBC News

#UTI #ChronicDepression #ChronicPain #Endometriosis #Depression #Anxiety #Fibromyalgia #MedicalProfession #NHS #FunctionalNeurologicalDisorder #BrainFog #ChronicFatigue #SinusInfection #PelvicFloorDysfunction #Pelvicpain #Jointpain #IrritableBowelSyndromeIBS #Insomnia

Women's symptoms ignored by GPs - health group - BBC News

Women are often misdiagnosed or have to push for a diagnosis, a women's health coalition says.

Kidney stones pain

I just found out I have #KidneyStones and #UTI so I hate this pain and on top I have #fibermyalogy so it sucks and I take pills for #Insomina #Depression #Anxiety so I have been feeling well.anything that I can take to break the stones up.let me know.patti California


Doctors often don’t know best

I have been having a hell of a time trying to get my doctors to listen to me. I had a hydrodistension and cystoscope for #InterstitialCystitis last week. Recovery was slow but steady but then I started feeling really off. I called urology right away to tell them I thought I had a UTI. A urine test was ordered. Normally I know urinalysis results take less than 24 hours. Well after almost 48 hours of no news I called the lab. Here the doctor didn’t order a full urinalysis just a culture which is not what I was told. So I called and left a message for the nurse I was told I would get a call back between 2-4 hours. No call. Called yesterday and told them the same thing there was a note from the nurse saying I had no results yet which wasn’t what I asked. They also said I’d get a call back in 2-4 hours. I got fed up after increased pain and symptoms so I called my primary care. She ordered the correct full urinalysis and blood work. I do indeed have a UTI and it’s probably spread to my kidneys based on my results. I knew I had an infection. I knew I was right. Listen to your body. And seek help from another doctor if you are not being helped by the current one. Tomorrow I’m calling that urology office and asking to speak to their patient advocate because this isn’t my first issue.
Trust your body.
#InterstitialCystitis #IBS #UTI


Fibro and muscle relaxers difficulty urinating

Does anyone go thru this?:
When I take muscle relaxers or gabapentin I have difficulty urinating. I end up doing all kinds of gyrations trying to get a stream started let alone keep it going. Then I end up with a UTI because I haven't been fully emptying. It's a if my urinary tract spasms like my intestines do in conjunction with my IBS and when I take the meds Im unable to relax the ureter so I can release. #Fibromyaliga #urinating difficulty#UTI #IBSD #Muscle relaxers #Gabapentin


What do you do when you have a UTI and no access to a doctor, nurse or antibiotics for four days? #InterstitialCystitis #UTI

Hey there. So, I’ve been prone to having urine infections since I was 8 years old. I have a condition called Interstitial Cystitis. I’m 100% certain that I currently have a UTI but tomorrow I have a hospital appointment that will last all day and then I’ll have no access to a doctor, nurse or antibiotics until Monday.

I’m drinking as much water as I can. it currently feels like my urethra is getting pricked with a sharp needle over and over again and my bladder won’t stop spasming. I should say now, I cannot have cranberry juice.

Thank you all in advance! #BladderProblems #UTI #InterstitialCystitis #painful #pleasehelp

See full photo

When it rains it freakin’ FLOODS!!! ⛈🌊🌪

I’m just needing to vent...it all started about 6 weeks ago. I found out i had to have #Surgery (ventral hernia repair). My anxiety got much worse as it was getting closer to surgery. The week before (4 weeks ago) my dad got diagnosed with #Salmonella and my poor mom was having to juggle taking care of both of us. He and i couldn’t be around each other because my surgery was so soon. So my surgery went well but the recovery was soooo much worse than i had expected. Oh my god the pain! Dad was starting to feel better even came up to see me on my birthday. Then he started getting sick again and BOTH toilets at their house broke...TWICE!!!!! And they are starting to act up again 🤦🏻‍♀️. On Wednesday my boyfriend’s 90 year old mom fell and couldn’t get up and couldn’t get to the phone, she ended up on the floor for 18 hours, that poor woman. After spending the next day at the ER, she went home and fell again that night and hit her head. Another trip to the ER led to 5 days in the hospital with a really serious #UTI ...did you know that a uti can cause #Dementia in older women?! Anyway, i spent 2 days at the hospital helping with her which then set my recovery back 3 days. Then today i went to help with my dad and we finally got a diagnosis for what’s going on with him... #Cdiff , something i was fearing for him. And then... my mom’s toilet is, for lack of a better word, rocking. My dad is having a hard time with #Depression and I’m having tons of #Anxiety My poor mom is so done. We are all out of emotional #spoons Please, dear God...no more. We really can’t take anymore. My #dog and #Puzzle are the only things keeping me sane. Still grateful just seriously...enough.


GP Surgery is Driving Me NUTS!

I’ve been using my GP surgery for the last 6-7years. For the first two years I saw a doctor who was not my assigned GP. She was very nice and she listened to me but then, one day when I was waiting to go in for an IBS review... I was told that she no longer worked for the Practice and that I would now have to see my assigned GP. I’d never even seen her around the Practice before and I was very dubious. I’d had trouble before with GP’s refusing to believe that my IBS caused me such an intense amount of pain.

Eventually I plucked up the courage to see ‘my’ GP... And she was wonderful. She listened to me - actually LISTENED. And if she didn’t know what something was (like my POTS) she let me explain it to her. When my diagnoses for Interstitial Cystitis was confirmed we slipped into a routine - if I was getting a lot of pain in my bladder along with any burning urine (or the usual signs of an impending infection) I would go to the Practice, she would dip test it and if there was blood and leukocytes in it she would treat me immediately with broad spectrum antibiotics whilst sending the urine to the lab for further analysis.

This was PERFECT. It prevented MANY kidney infections and unnecessary trips to A&E.

However. When she goes on holiday and I feel like these symptoms come up... I have to practically battle with the receptionist and on-call doctor to be seen! “The protocol for suspected urine infections is that you come in, drop off a sample, we will send it off and when the results are back in a week or so, we will give you antibiotics.” No matter how much I try to explain my condition and the risks... They simply don’t want to know. I have been called (to my face) an attention seeker, a hypochondriac and a painkiller addict. Which is frankly disgusting. I take my medication on time and ONLY at the dose prescribed.

Anyway, quite recently a similar series of events took place. They would not give me antibiotics straight away. A week after I started displaying symptoms, which was when my urinalysis came back, I was at the hospital hooked up to strong IV antibiotics because the infection had travelled quickly and painfully up to my kidneys.

Despite this... No one at this Practice will listen to me. I just want to scream! I do NOT enjoy taking antibiotics that make me feel so so sick.

GAH! #InterstitialCystitis #UTI #PainfulBladderSyndrome #Infection #GP #rant #Vent