Autonomic Dysfunction

I signed up to start doing physical activities, and a new diet to help reduce my symptoms, and go travel. Sounds great on paper. Theres always a but, it feels like. My but would be: my medications arent consistent, my symptoms have been flaring up bad again, and I seriously lack motivation. I know this is good for me, steps in the right direction, but it feels so daunting. Any tips? I need help figuring out how to motivate myself. I need help telling myself that the world is not ending, and that I'm not alone. Asking for help is pretty difficult too, but these little steps I keep trying to take will hopefully work one day. So I'm asking for advice, if you've got it.

#AutonomicDysfunction #Arthritis #MentalHealth #Depression

Hi, my name is poohtraybuon. Both my adult children and I have

#MightyTogether #Anxiety #Fibromyalgia #ADHD #Migraine #POTS #Dysautonomia #AutonomicDysfunction #Anxiety #EhlersDanlosSyndrome #MastCellActivationDisorder and so many other acronymns.

I had a really bad setback today. I got really depressed, and didnt have a reason for feeling so hopeless. I felt inconvenient, and lonely, even though no one said or did anything. And no one needed to. Healing isnt linear, and I know I'm going to have flare ups(whether that be POTs, Arthritis, or just depression), no matter how much prevention I do. And it's hard to deal with, but it didnt ruin my day, or up-end my progress. Instead I went out, and did something fun. I still feel kinda bad, but I know it's just a little road block. I dunno.

#POTS #AutonomicDysfunction #MentalHealth #Depression #Arthritis #AnkylosingSpondylitis

I'm trying to figure out how to describe the difference I experience between flare day pain and "normal" post exercise pain.

I used to exercise daily and once did a ton of circuits and then went for a jog that when I was done, my legs were shaking and I could barely walk and when I'd go to sit I'd just collapse. (This was, of course, before I got sick.) It sucked, but it was different than I feel on flare days now. I attempted to describe it to my doctor, but I think I failed.

How would you describe it? #ChronicFatigueSyndrome #ChronicPain #Fibromyalgia #AutonomicDysfunction