Autonomic Dysfunction

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Story of the Week: What tips would you share for parenting with a chronic illness?

Parenting is hard work that takes effort, patience, and a lot of energy — and doing it while managing a chronic illness adds an extra layer of challenges that often requires additional compassion and support.

What advice, tips, or encouraging words would you share about parenting with a chronic illness?

📖 Need a Mighty read? Check out today’s Story of the Week for more tips and insight:
4 Guilt-Free Tips for Parenting With a Chronic Illness

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis
#Cancer #Anxiety #PTSD #CheckInWithMe

4 Guilt-Free Tips for Parenting With a Chronic Illness

"Your family isn't going to look like everyone else's and that's OK."
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What's Up Wednesday

We have had a hard week here. Last night, I asked my daughter to look back on the day and find some moments that made her smile- she was really sad before bed and saying the day had been terrible. After a few moments of naming the few good things she could think of, we were laughing together and went to sleep with smiles on our faces, instead of tears.

Tell us in the comments what sweet moments you find today. 🍬

#Addiction #AnorexiaNervosa #Agoraphobia #Anxiety #Autism #ADHD #BorderlinePersonalityDisorder #BipolarDepression #MentalHealth #PTSD #Schizophrenia #ChronicFatigueSyndrome #Lupus #CeliacDisease #Migraine #AutonomicDysfunction #SjogrensSyndrome #Addiction #Cancers #SuicidalThoughts

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I’m new here! I’m Christoph Muth, originally from Germany, 51 years old.

Hi everyone, my name is Chris.
I’m living with a very rare, severe neurological and autonomic multisystem disorder caused by a #Medication injury. My condition progressed dramatically over the past months.

I’m currently in Israel, and my treatment at Rambam (a leading neuro-immunology and rare disease center) officially starts on November 24/25.
This is my last chance to stabilize and stop the progression.

I’m here because I need connection, support, and visibility — especially from others living with very rare diseases, dysautonomia, neuroimmune disorders, or complex chronic illness.

If you know patient communities, nonprofits, journalists or networks that support rare neurological cases, I would be grateful for any contact. Every connection matters right now.

#ChronicIllness #Neurological
#MightyTogether #RareDisease #AutonomicDysfunction

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Toxic family members

Just a vent:
Yesterday, my niece texted me and said they would try to come visit tomorrow. Within 45 minutes, my niece got a text from my sister ripping into them for planning to see me.
This morning my sister sent this to my mom.

I have been no contact with my sister for about five years. I have been in therapy for almost ten. I have no idea what my sister is on about, but this isn’t normal. I can’t be scapegoating my sister for anything- it doesn’t even make sense. Even if i was scapegoating her- she wouldn’t know because I don’t talk to my sister or almost anyone in my family.

I thought if I was out of her life, she would quit talking about me. Obviously not. She has no new information about me or what I am doing. She doesn’t know about any of my health conditions. Historically, my sister has told my family I am making it all up because I used to be a psychologist- idk what that has to do with my physical health conditions. She tells that to my extended family and I have had to go low contact with them because constantly defending myself got too hard.

I also don’t know what games she is talking about but I wish I had games to play!

#Trauma #ComplexPosttraumaticStressDisorder #Agoraphobia #PanicDisorder #Migraine #ADHD #AutonomicDysfunction #POTS

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