Hi, my name is JennMCRPS2. I've been diagnosed with
#MightyTogether #TrigeminalNeuralgia #DegenerativeDiscDisease #PTSD #HypothyroidismUnderactiveThyroidDisease #ExocrinePancreaticInsufficiency #Anxiety #Depression #Migraine #ADHD #Grief #CRPS #Orthopedic #nightmare
4 reactions Hi, my name is Dkjn1821. I'm here because
#MightyTogether #Fibromyalgia #PTSD #RheumatoidArthritis #EhlersDanlosSyndrome #Anxiety #ExocrinePancreaticInsufficiency
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2 comments
I'm new, my name is Labradored. I am here because of multiple medical and mental health issues. My oldest daughter was born with Rett Syndrome (a pervasive developmental disability with serious health issues) and died from a seizure in my arms at 12 years old in 1993. My youngest daughter died in a car accident at 17 in 2000. They were my only children. I was so very blessed to be their momma.
My medical issues include long term insulin dependent diabetes II, exocrine pancreatic insufficiency, Celiac disease, asthma, osteoarthritis, severe food, drug and environmental allergies, dysphasia, Barrett's esophagus, eosinophilic esophagitis, GERD, chronic stomach issues, and IBS.
My mental health concerns include Major depressive disorder, generalized anxiety, OCD and ADHD, and complicated grief related PTSD.
The memes on this site are helping me get through this current gastro flare, I've been nauseous all day today with vomiting and diarrhea for the last 12 hours . This happens about twice per month. My food menu is quite limited due to allergies to gluten, soy, most non citrus fruit, lactose intolerance and tree nut and peanuts. I feel like I develop a new food allergy every year.
My medical issues began shortly after my youngest girl died. Don't let anyone tell you that grief is just an emotional response, grief has wrecked serious havoc on my body.
I have a wonderful husband, supportive and loving friends, a great career as a behavioral health counselor and three fur babies who provide unconditional love and entertainment.
Most of the time I manage pretty well, but when my health conditions flare, it tanks my mental health as well.
Looking forward to sharing and receiving. 🩵🩷 Blessings upon you all.
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15 comments
I am a 41 year old single mom of three amazing sons and a chronic illness warrior. I have been diagnosed with Small Fiber Neuropathy (SFN), Rheumatoid Arthritis(RA), Chronic Fatigue Syndrome, Irritable Bowel Syndrome (IBS), Reynard’s Disease, Hashimoto’s, Exocrine pancreatic insufficiency(EPI), chronic pain, migraines, and daily chronic headaches and anxiety. I have an upcoming appointment at the end of August to see a cardiologist as I have had two abnormal EKGs. #MightyTogether #HashimotosThyroiditis #SFN #RheumatoidArthritis #ChronicFatigue #ChronicDailyHeadache #ExocrinePancreaticInsufficiency #IrritableBowelSyndromeIBS #ChronicIllness #ChronicPain #Migraine #Anxiety
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Hi, my name is Katie. I'm here because my husband was diagnosed with chronic illness in 2019 and I want to learn more and find community as I accept this new normal.
#MightyTogether #ChronicKidneyDisease #ExocrinePancreaticInsufficiency
Many paths built upon various terrain have updated my perspective quite radically. Within many battles with the external world, I have developed a rich internal world. I would like to share how it sounds and feels and tastes and smells and what a sight it is. #BipolarDisorder #ChronicIllness #ADHD #CysticFibrosis #SensoryProcessingDisorder #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #ExocrinePancreaticInsufficiency #cysticfibrosisrelateddiabetes #Diabetes #AdrenalInsufficiency #MentalHealth
Hi, my name is Jillian :). I’m new to The Mighty and look forward to sharing my true… YES, it IS true, story!
#ExocrinePancreaticInsufficiency
#MultipleSystemAtrophyWithOrthostaticHypotension
#CommonVariableImmuneDeficiency
#InappropriateSinusTachycardia
#VasculitisSyndromesOfTheCentralAndPeripheralNervousSystems
#PostmyocardialInfarctionSyndrome
#Addison 'sDisease
#Meniere 'sDisease
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Hi, my name is kryan13. I’m new to The Mighty and look forward to sharing my story.
#MightyTogether #Depression #Migraine #Fibromyalgia #RheumatoidArthritis #ExocrinePancreaticInsufficiency #CeliacDisease
Hello!
I’ve had EPI for about three years now. Given it’s the pancreas and that i found out about it at the same time as others conditions and accompanying cfs ans fibromyalgia, and I get a wee bit freaked out. It means 90% damagae, and there’s no cure.
I’ve been researching stem cell research to see whether it will help, also for the CFS and fibromyalgia. Do any of you know about these treatments, or ideas outside the box? My GI has referred me to a dietitian.
Thank you so much and sending wishes for a great,
#ExocrinePancreaticInsufficiency
I’m thinking about starting a patient advocate service for pancreatic sufferers! Whether it’s from chronic pancreatitis, acute pancreatitis, pancreatic cancer or some where in between! I have a degree in social work and I’ve suffered for 5 years now with some form of pancreatitis! Or should I say everything but pancreatic cancer!!Any advice on where to start? #ChronicPancreatitis #PancreaticCancer #HereditaryPancreatitis I #ExocrinePancreaticInsufficiency ##pancreaticdivisum
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